Baby girl, dilated miocardyopathy from Argentina, need help

[Aleta]

THANK YOU!!!

[Aleta]

Hi Willy! I hope you are doing well.

It´s almost two weeks since Lara is having 2X15mg of magnesium. She has no diarree. Should we raise it up, or stay the same as she is doing fine with this?

She is still with a lot of energy and we almost never see her agitated, she drinks more milk too, but solid meal still don´t like it a lot.

But as the days gone by I´ll started to worry again that if things get better so easy can get worse too! You know me!
Even so, when I see her smile I forget everything

I forgot to tell you, the doctor raise up the enalapril dose because of her weight, she is 7,600 kg.

have a nice... sundown? here is midday!

[Willy]

Keep the same dosis magnesium for a couple of weeks. Hihger doses enalapril because of more vody weight is understandable.

You have to look to your doughter to see how it goes with here. Try to live by the day, difficult but try.

Make sure you order the supplements in time, so do not run out

[Aleta]

yes, we have a lot of supplemets in order to not run out.
Thank you

[Aleta]

I was thinking (I´m sorry for bother again), it´s not a bad sing that the enlaged part of the heart has grown with the rest of her heart? Thay told us tha the dilatation is the same, so I gues it has grown in proportion... and the rest of the heart in proportion with her body. But that part shouldn´t stop growing?
is this espected? it´s about what you mention about that next year that part would regenenerate?

[Willy]

How the protocol works and provides Lara more heart energy I do understand. The remoddeling of the heart I do not understand.

But in general with the other kids that proces starts after BNP Is normal and after 1 - 2 years

So during that time the heart needs to grow as well

that is what you see now

[Aleta]

Ok, thanks!

[Aleta]

Hi Willy! the vitamine D3 of now foods arrived! I pin the pill and squize the liquid to give her? one at day?
Also we got chloride magnesium liquid in case the diarree starts, I´ll send you a picture via email because I don´t know how to post pictures here, anyway, still no diarree.
cheers.

[Willy]

Yes, pin the capsule and squeze the liquid out. One capsule a day is fine. Vitamin D Blood test in december to adjust the doses if needed

[Willy]

Aleta it is going better with you!!!

[Aleta]

what is going better?

[Willy]

I think you are less depressed

Am I right?

[Aleta]

I have some bad days, but now i have some good ones two before was all bad! I'm improve along with Lara.

[Aleta]

I mean ”too".

[Willy]

That is good news

End of the day here!