Baby girl, dilated miocardyopathy from Argentina, need help

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
Aleta
Verslaafd aan het forum
Berichten: 505
Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » vr sep 26, 2014 5:41 pm

OK, let´s do that. in a while I´ll go to the pharmacy and see whats in there. I spoke on the phone with one pharmacy and they has this one, I can split it, but I don´t know if is good:
https://translate.google.com.ar/transla ... edit-text=
Also has Sterogyl, it´s only vitamin D3 and 1000 ui would be 4 drops, or Oravil, or Osteodil, but I can´t find the prospect online :(
If those are no good, I found someone who can bring it, but in 20 days, is not to much? the mail will be arrive in 3 weeks so is the same, but this person can bring it to my door. if you really trust in this product and we can wait 20days we´ll buy it, just let me know.
about the magnesium we´ve stoped for one day in order to stop the little diarrhea, it wasen´t a lot, but just in case it increase. are you agree? what should we do? what happens if always has to stop for a few days because of diarrhea? it works anyway? Can we star the ribose anyway?
A lot of questions I´m sorry, I´ll back to you when I´m back from the pharmacy.

Willy
Verslaafd aan het forum
Berichten: 14897
Lid geworden op: di okt 09, 2001 3:00 am
Locatie: Exloo
Contacteer:

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » vr sep 26, 2014 6:10 pm

The product is not a good product. The vitamin D3 should be an oil filled capsule

And vitamin D2 is not a good product because it is not the active form. The body must transform it into D3

So that is the reason I want to use D3 for Lara. The bio active form
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
Verslaafd aan het forum
Berichten: 505
Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » vr sep 26, 2014 9:09 pm

I couldn´t go to the pharmacy, I´ll go later and send you what they got. if you see it tomorrow and there isn´t any good product, tomorrow we´ll order the now food one.
Lara is still with diarrhea, and I believeher stomach hurts because this days is complainig and eating less. is the body get used to the magnesium at a point, or we gonnna be stop the magnesium over and over? the protocol works if we stop so often??? :(

Willy
Verslaafd aan het forum
Berichten: 14897
Lid geworden op: di okt 09, 2001 3:00 am
Locatie: Exloo
Contacteer:

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » vr sep 26, 2014 9:59 pm

We have to find the right doses. But we do not know if the diarree is caused biy the magnesium.

What we do know is that magnesium can cause diarree, so

Devide the 30% of the tablet into two parts and give here one part a day, so that is 15% of one tablet

Diarree caused by magnesium takes a couple of days to cure, see what happens

Lara is not critically ill we can move with caution because we have the time

IMPORTANT please give Lara the magnesium 15 minutes BEFORE meal to avoid all possible side effects. One side effect of magnesium is that it lowers the acidity of the stomac. That will make food digestion more difficult. If you give magnesium BEFORE a meal there is NO problem.

FACETIME this weekend?
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Willy
Verslaafd aan het forum
Berichten: 14897
Lid geworden op: di okt 09, 2001 3:00 am
Locatie: Exloo
Contacteer:

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » vr sep 26, 2014 10:07 pm

Aleta schreef:I couldn´t go to the pharmacy, I´ll go later and send you what they got. if you see it tomorrow and there isn´t any good product, tomorrow we´ll order the now food one.
oke!

This is what you want

1000IU

Vitamin D3

Oil filled capsule

Without added other vitamins!
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
Verslaafd aan het forum
Berichten: 505
Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » vr sep 26, 2014 10:13 pm

ok, %15 of a tablet. understood. should we wait to start again when the diarrhea stops or we give her tonight? today we didn´t give her. (it is 16:13 pm here)
Yes, facetime when you say.

Aleta
Verslaafd aan het forum
Berichten: 505
Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » vr sep 26, 2014 10:14 pm

Also undestand about the vitamin D, I´ll go a few pharmacys in a while.

Willy
Verslaafd aan het forum
Berichten: 14897
Lid geworden op: di okt 09, 2001 3:00 am
Locatie: Exloo
Contacteer:

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » vr sep 26, 2014 10:17 pm

Wait until the diaree is gone and then start

Diarree is not a good thing, digestion is down and that is not what we want

FACETIME 10:00 your time 15:00 my time. Oke?
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
Verslaafd aan het forum
Berichten: 505
Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » vr sep 26, 2014 10:21 pm

we have 5 hours away? I thought it was 6. tomorrow, right? we´ll be here all morning.

Willy
Verslaafd aan het forum
Berichten: 14897
Lid geworden op: di okt 09, 2001 3:00 am
Locatie: Exloo
Contacteer:

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » vr sep 26, 2014 10:22 pm

Oke!
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
Verslaafd aan het forum
Berichten: 505
Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » vr sep 26, 2014 10:22 pm

thank you :)

Aleta
Verslaafd aan het forum
Berichten: 505
Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » za sep 27, 2014 5:58 am

willy, there are no vitamine D3 in gel capsules, it used to be from Roemmers Laboratory but they don´t do it anymore. there are ones from that lab, but is one little bottle of 2ml=100.000 Ui, and it would be a mess split that. so we are waiting the answer from a seller in mercadolibre (it´s like an e-bay or amazon that we use in argentina), he has some products of now food. if he don´t answer until monday we´ll buy it from amazon or any other way. in the meantime we´ll keep going with supradyn, I hope that keep Lara save. she also is having a prevent treatment, is a spray, fluticorp. can´t find the prospect but here are a description.
https://translate.google.com.ar/transla ... edit-text=
talk to you in the morning, or in a while when you read this.

Willy
Verslaafd aan het forum
Berichten: 14897
Lid geworden op: di okt 09, 2001 3:00 am
Locatie: Exloo
Contacteer:

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » za sep 27, 2014 3:59 pm

FACETIME :D
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Willy
Verslaafd aan het forum
Berichten: 14897
Lid geworden op: di okt 09, 2001 3:00 am
Locatie: Exloo
Contacteer:

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » za sep 27, 2014 6:44 pm

Oke we discussed the situation via facetime

Lara got diarree again. Advise stop with magnesium until this is over and then start 15% doses per day

Try to find out if the diarree is caused by the magnesium

If so we will try a magnesium absorbed via the skin

I will calculate the ribose dose tomorrow.

--------------

Aleta if the hypericum is not working for you discuss this with your doctor and ask him if he wants to prescripe an antidepresiva

In the mean time you can try to go out of the house. Take lara to a restaurant and drink there something. Usally the morning is the most difficult part of the day if you are depressed. In the eavening things go better.
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
Verslaafd aan het forum
Berichten: 505
Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » za sep 27, 2014 7:26 pm

yes I´m doing therapy and I think I´ll be having antidepressive next week or the other. the doctors are always telling us that Lara shouldn´t go to closed paces, and not be around with a lot of people, especialy with kids. then I can´t go out to much. Besides, go over and over to the clinic is depressing for me, doctors have not a big human touch.

But spring is here and the days are starting to be more nice, so We´ll go out to open places. I feel very sad when she don´t eat because I feel something wrong is going on with her. when I see her feeling good I feel good too.

But don´t worry, I´ve never gave up on anything in my life and this wont´t be my first time at all, I gonna be stronger to help her and cure her! :)

thank you for worry about us and help Lara! I´ll find the way to thank you properly someday.

I believe the diarree is going away today, hopefuly tomorrow she´ll be fine, but I´m not sure if was the magnesium or she is swalowing mocus again... there´s a tree dust in the air all the time now.

Thank you so much for everythin, have a nice weekend :)

Plaats reactie