Baby girl, dilated miocardyopathy from Argentina, need help

[Aleta]

Hi Willy, vitamine D results are 38, minimun value accepted 30 and toxic level higher tan 150. She is ok right?

[Willy]

No she is not

The Dutch references are 50 - 150. So according to the Dutch standards she is deficient

I want her blood level on 100

How much vitamin D are you giving to Lara?

[Aleta]

we are giving 0,6 ml of trivisol, it´s vitamine A,D, and C. it has Vitamina D ...... 1,000 U.I.
here is the link but I can´t translate, http://www.investi-farma.com.ar/uploads ... 0Sol_A.pdf

But, to be honest, we started to give her a few weeks ago, because the pediatrician said that she doesent´t need it anymore, it´s for small babies. But as you insist on vitamine D level we started again. even so, some times we skip it because it seems that have bad taste and she wants to vomit. If you think she has a defieciency I´ll give her every day no mather the taste, and maybe a litte more?
I,m worry about overdose because I read that can be toxic and bad for the heart...

About the non compacted ventricule, the CCF had a webinar last night, and I asked:

with an LVNC/DCM, the enlarged part can get smaller and the function get better, but the ventricule will always not compacted or can be remodelated with time?

and the answer was: the trabeculations on the heart typically don't go away. They may shrink but will always be there. He did say that if the heart function is able to improve in functionality, that is a very good prognostic sign, despite the trabeculations remaining.

And talking with a mom who son has the same that Lara has, told me that the Dr is not really concern about the non compactation, this could be there his entire life and nothing happens. the boy got his heart smaller and with a heart function a little low than normal, after four years of tretment with no pupplements. If that is posible I guess the supplemets can really help Lara no matter the non compaction. Are you agree?

we saw the nutricionist yesterday; Lara gained 380 gr in 20 days, that´s very good!
she saw the blood tests and all is good. I got it printed, when I got the email i´ll send it to you if you want.

The ribose arrive but..... is in the customs office....... one hour and a hal driving from home. Sebastian can get there in a week, I can´t at all because with lara is imposible. it´s ok? still we are in time to start the Ribose? maybe we can work out something to go earlier.....

well, tell me waht you think about Vit D, maybe it is a little low because she was not having to much?

regards and thank you!

[Aleta]

willy, since yesterday Lara has a little diarrhea, 3 times yesterday, not to much each time but liquid. Today already (it´s 15:05 here) twice, first not to much but now it was a lot more and very liquid. Migh be the magnesium? What should we do, we watch what happens for a couple of days? she might be losing meds for the diarrhea?
she have her meds 12:00, and the poop was 14:30...

[Willy]

Could be the magnesium

Stop with the magnesium until the diaree has gone

Start then on 50% of the dosis

[Willy]

Oke excellent

Go for one third of the 100 mg jigsaw tablet and deivde that into two portions

Give her one portion in the morning and one in the eavening

In about a month we will try to increase the dosis to half a tablet per day into two portions

This was my doses advise

One third of a 100 mg tablet and then that one third part divided into two parts.

No only give ONE part per day, after the diaree hase gone

So one tablet divided by three means 30 % of the tablet

If you divide that by two you have two parts of 15% of the original tablet

Give her 15% of the original tablet per day. AFTER the diaree hase gone away

[Aleta]

ok we´ll do that

[Willy]

The documentation of this product is wrong

It says 2,5 mcg = 1000 IU

THAT IS NOT TRUE

1mcg = 40 IU so.......

2,5 mcg = 100 IU

Far to low useless product

I want Lara's blood value of vitamin D

this is what I wrote already about this product, check this with your pharmacy

[Willy]

But, to be honest, we started to give her a few weeks ago, because the pediatrician said that she doesent´t need it anymore, it´s for small babies. But as you insist on vitamine D level we started again. even so, some times we skip it because it seems that have bad taste and she wants to vomit. If you think she has a defieciency I´ll give her every day no mather the taste, and maybe a litte more?

ths is wrong read my scientific papers a coiple of pages back on this forum

[Aleta]

is what it says of all trands that makes trivisol, the combo vit A,D and C. this is what is says the one I got in my hand: For each 0,6ml: Vit A 5.000 U.I., vit D 1.000 U.I., and vit C 50 mg.
the recomended dosis for her age is 0,6 ml.
How much you think she needs?

[Aleta]

we have two pediatricians, one from the hospital were the cardiologic team goes, he seid NO to magnesium. and the other who we see when we have doubs and call worried for something, she is totally on board for supplemets. we´ll continue the supplements, even the cardiologist said it´s ok. but we gonna need your guide.

[Aleta]

maybe go back on Supradyn? has more vitamine D?
https://translate.google.com.ar/transla ... edit-text=
this is the prospect (Lara really hate it, but we´ll try if is best) the doctor recomended 20 drops

[Willy]

and the answer was: the trabeculations on the heart typically don't go away. They may shrink but will always be there. He did say that if the heart function is able to improve in functionality, that is a very good prognostic sign, despite the trabeculations remaining.

And talking with a mom who son has the same that Lara has, told me that the Dr is not really concern about the non compactation, this could be there his entire life and nothing happens. the boy got his heart smaller and with a heart function a little low than normal, after four years of tretment with no pupplements. If that is posible I guess the supplemets can really help Lara no matter the non compaction. Are you agree?

end of the day here, tomorrow my answer

[Willy]

New day here

Aleta I do understand how my protocol provides more bio energy to sick hearts to make it pump better

I already had succes in doing that with more then 50 adults and 7 children

BNP goes down and EJF goes up

What I DO NOT understand ks how these hearts get smaller and regenrate heart tissue.

If Lara's BNP goes down we know that the protocol also provides more energy for her heart.

What we have to wait and see in the coming years is that her heart gets smaller

Normaly that proces of regeneration starts when the BNP is almost normal. I do not know of the damage caused by the NCC wil be healed.

So we have to get used to the idea that we will have a long way to go

That is not a problem because Lara is not critically ill

But you have to make sure that you get back on your feet again to give Lara the coming hears the support she needs.

That means that you have to get out more, do things that please you, go shopping with Valentina, what ever that makes you happy.

And............

Take your hypericum 3 x 300 mg per day

[Willy]

Do you understand this?

Next issue is vitamin D