Today we had appointment with the new cardiologist. I already love her, she is so educative about Lara´s illnes!
Shotening fraction 20 days ago was 25-27%, today 25-28%, she says that is moderate and not severe, mitral insufficiency is the same but also moderate or a little severe.
Non compaction for her is not a cardiopathy in Lara, sees trabeculations but a few, so she can´t be sure if this is from birth or not.
She can´t say what may happen in the future but today Lara has NOTHING that indicates a transplant.
She didn´t calculate the Z-score but she thinks is 3+/3,5+, is a big heart but not giant.
Also reduced enalapril to half and spironolactone, because don´t want to much potasium, the enalapril was in the limit of high.
We have to see her next week and see how Lara goes with this new dosis an then raise up carvedilol.
Also, doesn´t think that the mitral valve was the first isue, first was the dilatation. Can´t tell if the mitral valve will be ok if heart get smaller, maybe yes or not, in any case there is a surjury to repair the mitral valve, which now she doesn´t see necesary at all.
About supplements, she is fine with it, she wouldn´t prescribe it (magnesium and ribose) just because there is not enough studys about it, but is ok and says might help.
She said you are welcome to write her and talk about the protocol, Lara, and read the information you have about supplements/heart. So if you´re interest I can send her your email or send her´s to you.
I try to see the future far, you know me, and ask her if Lara could have childrens, and with the hear Lara has TODAY, she could, it would be a risk but she could.
We are happy with the change, and Lara is better from the cold, so it´s a good day
I hope you have a good day too!
Aleta.
