Baby girl, dilated miocardyopathy from Argentina, need help

[Willy]

About Eva´s cuestion about fat, the doctors always told us that she can´t east fat, I guess this is for

eva maybe this is just a NO FAT scare. Doctors still think that fat causes heart disease but it is not. Refined carbohydrates cause heart disease and.........

Too much omega6

[Willy]

About Eva´s cuestion about fat, the doctors always told us that she can´t east fat, I guess this is for

Eva maybe this is just a NO FAT scare. Doctors still think that fat causes heart disease but it is not. Refined carbohydrates cause heart disease and.........

Too much omega6

Eva I am glad you are helping with some direction. I was wrong with my advise to Aleta to reduce milk. Sorry.

Aleta take the time to read and understand what Eva is providing as extra information in the links.

The questions on supplement timing comes later when this milk issue is going in the rigth direction

The only timing issue you have now is magnesium one hour BEFORE or three hours AFTER milk

[Willy]

About Eva´s cuestion about fat, the doctors always told us that she can´t east fat, I guess this is for

Eva maybe this is just a NO FAT scare. Doctors still think that fat causes heart disease but it is not. Refined carbohydrates cause heart disease and.........

Too much omega6

Aleta check the reasons behind the LOW FAT advise from your doctor.

Eva I am glad you are helping with some direction. I was wrong with my advise to Aleta to reduce milk. Sorry.

Aleta take the time to read and understand what Eva is providing as extra information in the links.

The questions on supplement timing comes later when this milk issue is going in the rigth direction

The only timing issue you have now is magnesium one hour BEFORE or three hours AFTER milk

[Aleta]

Hi you all!

Well, I find myself very cunfused and scared about what Lara can eat or not. This was no problem with Benjamin, but thansfully he is a healthy boy. But with Lara is different, even when she looks very healthy (thansfully), but is confusing.

So there goes some questions:

Lara is having 2 formula bottles and esating more, but sometimes she doesn´t want to eat and ask for her bottle. (I always give her solid first and if she doesn´t want it, goes the bottle).
The bottle in the middle of the day I could replace it with almond milk, but there was an isue about omega 6, and the truth is I don´t think she get a lot omega 3 to balance, so I though to make the almond milk mixed with chia seeds. Sounds good?

The pediatrician recomended that no raw honey until 3 years or 4. so I´ve got molasse (melaza in spanish, not sure in english) and fructose sweetener in order to give almond milk flavor and calories. Also got a lot of Iron, magnesium, and calcium. I got this in a naturist store, so it sopoused to be organic. Also got soy sweet, and peanut paste. Also organic.

I also cooked liver, she still hates it!

I neve gave Lara fish, it scares me that the fish is not fresh and she gets intoxicated (to much worried mom), I think I should search for a place to buy it that give me trust.

I´ve read a lot of sites that Eva gave me, but still not all of them, I´ll get there.


Thank you all so so so much.


Aleta.

[Willy]

We wait and see what Eva will say about this, but.................

FRUCTOSE is out of the question as a sweetner

In fruit it is ok because it is in a very low dosis but as a sweetner the dosis is much to high

she will get liver problems if she consumes a lot of fructose

sorry

[Aleta]

Hi Willy!

I was talking with Saskia about Lara,s BNP, she told me tha Emma´s goes up and down, not always going down, and she is doing great.
Could be Lara´s case too? That her improve with the protocol is not straight lineal?
just thinking...

have a good weekend!

Aleta.

[Willy]

Eva is not joining our discussion anymore

She had some suggestions

She can not understand that you want to give Lara Pizza after all the information she gave to you. Pizza is made of highly refined grains which are high in omega6 and have high glycemic index. This is seen as a risk factor for diabetes type 2

She also can not understand why you insist giving Lara milk. Because you wan to change to almond milk. Almond milk is even worse then cow's milk because of the high inflamatory omega6 that is not reduced with mega3 in fish

[Willy]

So.......

Go back to the information Eva has given to you and read more about healthy feeding of toddlers

You can ask me questions about this information.

[Willy]

NOT ALLOWED ANYMORE

Hihgly refined grains in bread, pizza and cookies. Check the ingredients. Whole grain products are allowed

No fructose, this is as bad as alcohol

No sugar, 50% is fructose. Be aware that 0% fat products add suggar.

So no 0% fat products

No vegetarian diet. No soy. Look on the internet for "the dark side of soy"

Fats: No vegtable oils. Especially no sunflower oil. And all oils containing linolic acid. No margarines

No eggwhite

Reduce salt intake

[Willy]

ALLOWED

Egg yolk (the yellow stuff without the white) is allowed from eggs enriched with omega3 faty acids via the food these chickens get.

Three omega3 enriched egg yolks contain the same amount of omega3 as ond complete fish meal for an adult.

Whole grain bread with cheese, ham

Yoghur. The best yoghurt you can make yourself. Learn how to do that. Yoghurt include healthy gut bacteria

Meat from turkey is the best source for protein

Free range chicken

Fats: butter olive oil, cocnut fat

Fresh fruits, check introduction dates for Lara

Smoothie wil a little spinach and a lot of sweet fruit. Slowely add some more spinach

Make your own sorbet ice cream from fresh fruit and water. Lookup recepe on the internet

I AM ON HOLLYDAY AND WILL ADD TO THIS LIST THE COMING DAYS

[Aleta]

HI Willy!

I understand that all Eva´s sugestions are so much helthier, I really do. But why we have to be so strict with Lara? I don´t see other childrens with cardiomyopathy on a diet like this. Do you believe the protocol is not working and needs to be attack with diet too? Please tell me why do you think we need to be so strict with food...

So, I know refined flour are no good, I´ll try to get grains which are not, and cook pizza, cookies and pasta for Lara and the entire family. I need to get all on board or she will want the other ones food, besides it would be good that we all can be healthier with her

About the milk. I´m not insist, Eva told that we should stop the milk when Lara eats more, we are in that process still. She is eating more but not that much to cut out the milk, and she gets really upset when she is hungry and doesen´t wants food, and wants her bottle. I sugest trade cow´s milk for almolnd´s because Corrij told that it was good for Lara. I´m a little confused in this point.

Eating healthier is always a good idea, but what concerns to me is that with this diet Lara don´t get the calories she needs. All the doctor´s always told us that she needs a high carb and calories diet... this change scares me a little.

Willy please tell me when you come back from holidays so I don´t botter you unless is absolutly necesary.


Cheers and thank you!

Aleta

[Willy]

It is not a problem to write a response

I am in England with Cora visiting friends

What you did with food for Lara was not healthy, you have to improve

Lot of things I wrote down are extremely easy

It is however your choice

Milk is definitely in the way of magnesium and also not a good idea for Lara

[Aleta]

Hi Willy,

The thing with Lara and food has been always and isue. What doctors told us when Lara was hard to feed was, give her anything just to get her entusiastic about food, then improve nutrients. After a time we´ve tryed to give helthier food, but she keeps some habits that now we are trying to get off her, like pudins and cream.

I´ll cook with wholemeal flour enstead white flour, homemade cookies and pizza, bread. no fructose at all, more fruits and vegetables. I din´t know about the white of the egg, so she´ll get the yellow.
She can´t eat ham (to many salt) and just soft cheese. Is not to common eat turkey here, but we´ll get it.

About the sugar, the pediatrician said that is not a concern for her if we give her an responsable amount. Also, it can be a trouble be low in sugar with betha blokers?
I need a food with high calories, I feel I taking her off all the calories

Milk, already reduced to 2/3 bottles, we are waiting Lara to get more solid to cut one bottle more and so, by now is far from magnesium.

We are doing the best we can, it was already stressfull take off ALL the sodium , but we´ll get there!

Enjoy England!

Aleta.

[Aleta]

Hi Willy!

Just want to ask you about the next BNP test, since we are going to the pediatrician to pick up some prescriptions, and we are gonna ask for that too.
The last test we did was in March 21, when do you think we need to do the next one?

Hope yo´re having fun in England

Aleta.

[Willy]

We had a not so good BNP score but also a not so good echo

Together that made me decide to put more effort in Lara

BNP is an early marker for improvement we can see what new value she has now

Read my hints carefully, not everything is difficult

Smoothies en fruit sorbet ice is an example

Omega3 enriched egg yolk (not the white) is also an easy possibility. Try it in different meals and see what she likes

The whole path is trial and error, Lara decides