BEHANDELING HART EN VAATZIEKEN

Hi Willie, we went to the cardio on september 10, but no echo because it was to soon to se any changes. cardio raised up enalapril dosis to 2,5 mg in the morning and half of 2,5 at night. We ran a blood thes and everything was ok but vitammine D, so she is having 100.000 UI every two weeks for 4 mon...

Hi Willy

We are on the new dosis.
Lara started taurine already, and we have to wait for selenium a few days.
it will arrive at the same day ribose, we run out yesterday and we didn t noticed!

next check up with cardio is on september 9, I will let you know how it goes.

Thank you so much!

Hi Willy, Lara is taking all the supplements: 500mg of acetyl L-carnitine twice a day 300mg of ubiquinol a day 400mg of magnesium a day one scoop of the spoon that comes with the ribose, twice a day Her function went down, but she doesn't have any symptoms. We find out at her six-month checkup. Card...

Hi Willy, I hope you're doing well. I'm writing because we thought Lara was out of the woods for good, but last week she had her cardio checkup. Lara is 11 years old and is already in puberty, a stage where the cardiologist had told us there might be some changes, or maybe not, and since she'd been ...

Hi Willie!

This is how we are giving it now because we have 100 and 50 mg capsules. But we already received the ones we ordered for 100 and 200, how do we give them those?

Hi Willie, Now Lara is having ubiquinol 150mg only at morning. Already increased Magnesium and ribose, now we gonna start to increase ubiquinol. I was worried that I would run out of bottles of ubiquinol but we already ordered more from the US and they will arrive in a few days. I was also worried a...

I forgot!
I can’t find ubiquinol in 150mg capsules, can I give her 200mg in the morning and 100mg at night?

Hi Willie, thanks for doing the calculation! We are going to increase the dose, my only question is about the ubiquinol. I thought 150mg was the maximum dose. I'm mistaken? As for the other supplements to add, I'm going to find out how to get them here in Argentina or in US, and talk to the cardiolo...

Hi Willy!

No, she doesn't take taurine and never has.

Hi again Willy!

I´m sorry, Lara´s weigh is 38,6 kg

Hi Willy, Im so sorry for the daly in the response. I dont get the email with the notification about new post or reply in the forum... I cant see the link in your reply aobout the weight, it leads me to a page that says Je hebt geen toestemming om dit forum te lezen. Is that I need a permission to r...

Hi Willy! im so sorry for not reply before, I didnt got the forum notifications, Saskia told me about your post! Thanks a lot for calling Lara, it meant a lot for all of us, and thank you for be here with us all this years. Lara knows about you and she is very grateful, she values averyone who cared...

Hi Willie! Sorry for the delay in responding, this was the first week of school and it was crazy. I hope you are very well, we always think of you! Lara is fine, she has control with cardiologist every six months and still does not meds. About june 2021 shortening fractiosn dropped 36/39 to 34/35 an...

You made cry happy tears!

Thank for all you do for us!!!

HI Willy! So glad to know from you! Lara´s birthday is on saturday, Jan 23. 7 years already! I great to know that your family is fine, even with mild covid. Lara is on NO medication, only supplements.I believe a year and a half already... When we can and things are less complicated with covid, cardi...