Baby girl, dilated miocardyopathy from Argentina, need help

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » wo sep 17, 2014 10:52 pm

and this is the ribose we´ve got. http://healthgenesis.com/d-ribose-powder
when you say we can start with it.

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » do sep 18, 2014 12:41 pm

Willy schreef:YES, this was my response on your mail

These are the right tablets

What you did not read is the notice

Serving Size 4 tablets

So 4 tablets contain 500 mg magnesium, so 1 tablet contains 125 mg

You have to give Lara 30 mg per day, one third of the tablet. That is little bit more then 30 mg but that is not a problem
oke start with the magnesium again. Divide the 30mg per day into two doses of 15 mg and give that in the morning and eavening during meal time
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » do sep 18, 2014 12:43 pm

Willy schreef:She needs 1000 IU = 25 mcg Vitamin D in an oil filled capsule EVERY OTHER day

and after trhee months a blood test, half december 2014

Send me product specifications
try to solve this
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » do sep 18, 2014 9:16 pm

ok, today we´ve start the magnesium again
Thank you!

Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » do sep 25, 2014 9:13 pm

Hi Willy, I hope you are doing well. Lara went to the pediatrician appointment yesterday, she looks fine, no symptoms and weighs 7,400. She was drinking a lot of milk and food (just in the dinnet, today I´ve started to give her lunch), but sin a week or so she got less apetite, of course I´m worried :( I was trying to find vitamine D but I did not find any, maybe I just have to go and ask in other pharmacy, the one that Sebastian went said that those are for adults. Anyway, the pediatrician told us to try again with supradyn, that has vvitamine D and the dose for Lara wold be 6 at 12 drops, but when the metabolism doc prescribed said 20, so, i´m worried abour overdose her with vitamine A and D! he said that has more vitamines she might need.
https://translate.google.com.ar/transla ... edit-text=
that is the prospect. maybe she prescribed 20 because she knows about the absorption?
about the magnesium she is handle it well, a little diarrhea but once a day since 3 days ago, but maybe is mocus again, don´t know, it´s alergy time in argentina, so, I don´t know if it´s time to Raise the dose, what do you think?
And the Ribose? it´s time already or we have to wait a little more?

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » do sep 25, 2014 9:49 pm

What was Lara's blood value for vitamine D?
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » do sep 25, 2014 9:50 pm

38, here the normal range is 30-150

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » do sep 25, 2014 10:01 pm

That is a wrong reference, the right reference is 50 - 150

She needs 1000 IU or 25 mcg vitamamin D3 every other day and a blood test in december

We are talking now for weeks about this isue. I gave you the scientific papers on risks if vitamin D is to low.

I lost one child on this issue (pneumonia)
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » do sep 25, 2014 10:18 pm

Yes I understand, in the meantime we can get a vitamine D, we gave her trivisol, that has 1000 U.I. per doce and vitamine A and C. now the doc advise to back to supradyn, because she might need the other vitamines. how do I give her the others vitamines, besides the vitamene D when this product already has vitamine D? it´s no danger in give her to much vitamine D? The supradyn is not a good product with the same dose -1000 u.i-? if is not, tonight I´ll walk around pharmacys to get another vitamine D, and send you the prospect, if there are no good I´ll try to get the ones you sugested. BUT the problem with that is all I buy on internet takes weeks and stays in the comercial office, and as they are "meds" if they don´t want to give us, they just don´t. I have to give them a doc prescription, and nobody wants to make one because they say Lara is ok. with ribose and magnesium we got luck and in the office just give us the pacage because we have a friend who knows a guy there, but I don´t know what is going on the next time we buy something. that´s why I´m asking you if supradyn is a bad product. if is good, one less isue. if is bad, I´ll try to get another no mather what.

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » do sep 25, 2014 10:28 pm

Willy schreef:
Willy schreef:
Willy schreef:The documentation of this product is wrong

It says 2,5 mcg = 1000 IU

THAT IS NOT TRUE

1mcg = 40 IU so.......

2,5 mcg = 100 IU

Far to low useless product

I want Lara's blood value of vitamin D
this is what I wrote already about this product, check this with your pharmacy
check this your self, using google or assitance of the pharmacy
If fthat is this product then it is wrong, I wrote about this several times and asked to investigate

It is extremely difficult to assist you from The Netherlands if you do not follow up

End of the Day here!!
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » do sep 25, 2014 10:42 pm

nop, that is trivisol, the one the doctor sugest yesterday is supradyn from bayer, what I can´t really tell is how many vitamine D has 20 drops, I´ve call the line of bayer and they will be calling back I don´t know when. I traying to figure it out by myself. it says 6 drop for infants to 2 years, 12 if they have a deficiency, but the doctor advise us (one month ago or more) 20 drops. we stop to give her those because has a really nasty taste and she was vomiting, now the doctor said we try again. this is the product:
https://translate.google.com.ar/transla ... edit-text=
Sorry if you feel I don´t follow you up, but we both are. There is nothing more important than Lara at this moment. I don´t want you to feel that you are waisting your time.

Aleta
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Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » do sep 25, 2014 10:44 pm


Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » vr sep 26, 2014 8:47 am

http://www.supradyn.com.ar/html/documen ... fgotas.pdf

Contains 900IU vitamin D2 it should be 1000 vitamin D3

So not the right product

This product is fine

http://www.amazon.com/NOW-Foods-Vitamin ... B000A0LE6O
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » vr sep 26, 2014 9:34 am

Ok, we'll try to find that here, we'll send you the prospect, if we can't find any we'll order those from amazon. But how do we do to give her the rest of the vitamines of supradyn without overdose her? Can we give her both?

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » vr sep 26, 2014 11:03 am

If you give the vitamin D3 1000 every other day you can give them both, but you have to do a blood test in december
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

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