Baby girl, dilated miocardyopathy from Argentina, need help

[Aleta]

but if EJF goes up at a normal range, and her heart don´t get smaller, she can have a life without a transplant and do regular kid stuff? like Emma?
if the EJF is normal means that blood flows right to the rest of the body, is that so?

[Willy]

In the Netherlands children have a maximum EJF of 30%. Check that with your cardiologist. If it is the same in Argentina then she has two third of her heart capacity available. In the Netherlands children will not be transplanted with this value. I think that with this value she can live a normal live with some restrictions.

[Willy]

The documentation of this product is wrong

It says 2,5 mcg = 1000 IU

THAT IS NOT TRUE

1mcg = 40 IU so.......

2,5 mcg = 100 IU

Far to low useless product

I want Lara's blood value of vitamin D

this is what I wrote already about this product, check this with your pharmacy

check this your self, using google or assitance of the pharmacy

[Aleta]

Ok we'll do that. How much vitamine D she needs a day?
The ejp range forma childrens in argentina is 30/40, Lara has 20. Benjamín has 38. The doctor said thar she would be happy if Lara reach 28.
Since yesterday she has bronchospasm, no fever and she feels fine. We have to take Her again today and ser how she is doing. The diarrea was for swollow mocus.

[Willy]

She needs 1000 IU = 25 mcg Vitamin D in an oil filled capsule EVERY OTHER day

and after trhee months a blood test, half december 2014

Send me product specifications

[Aleta]

Hi Willy, Lara is still with a little diarrhea, the pediatrician don´t think it´s caused by the magnesium, she thinks is for swallow mocus for the bronchiolitis (she is good now). What should we do? wait untill the diarrhea stops to start the magnesium again?

[Willy]

How lomg did ypu stop the magnesium?

[Willy]

She needs 1000 IU = 25 mcg Vitamin D in an oil filled capsule EVERY OTHER day

and after trhee months a blood test, half december 2014

Send me product specifications

do not forget this!!!

[Aleta]

and this is the one product we give to babies here, it says 1000 IU of vitamine D per dose
http://www.investi-farma.com.ar/uploads ... 0Sol_A.pdf
sorry, can´t translate

[Aleta]

we stoped the magnesium from thursday

[Willy]

and this is the one product we give to babies here, it says 1000 IU of vitamine D per dose
http://www.investi-farma.com.ar/uploads ... 0Sol_A.pdf
sorry, can´t translate

Not a good product, contains als vitamin C and A

I need an oil filled vitamin D capsule of 1000IU

Like

http://www.topvitamins.nl/vitamine-d3-h ... AqK38P8HAQ

[Willy]

Hi Willy, Lara is still with a little diarrhea, the pediatrician don´t think it´s caused by the magnesium, she thinks is for swallow mocus for the bronchiolitis (she is good now). What should we do? wait untill the diarrhea stops to start the magnesium again?

What are they doing about this? What is the prognosis?

[Aleta]

we are going to see our pediatrician today and I let you know what she says, but I think Lara is fine now. we had to give Lara 2 puff of salbutamol twice a day, but since sunday don´t have mocus noices in her lungs. it was very mild, didn´t got fever or anythig, jus a little whistle on her breathing, she is not now. But maybe still gotsome mocus and she swalows it, that´s why the diarrhea. today still no poop.

[Willy]

Respiration infection, now you know why vitamin D is important and why I try to get the right products to Lara

http://www.ncbi.nlm.nih.gov/pubmed/19063829

http://www.ncbi.nlm.nih.gov/pubmed/21465443

http://www.ncbi.nlm.nih.gov/pubmed/21244571

http://www.ncbi.nlm.nih.gov/pmc/article ... ool=pubmed

[Aleta]

yes, I understand. I´ll try too buy the right product, in the meantime I´ll give her the trivisol, I hope I can get one here! The pediatrician (Mechi, the one who is agree about the supplements combo) saw Lara good, no more bronquiolitis, she said that in ER was wrong, was no bronquiolitis, just a bronchospasm, but today is with a little mocus. The thing is I´m alergic, my mom, my dad, grandma, etc. Benjamin when was little had a lot bronquiolitis and bronchospasm, so it scares me that Lara has the same problem. Mechi said that shouldn´t be a problem for her heart, because is an alergic stuff, but still worries me. In order to prevent other bronchospasm I have to make a puff (with aerochamber) twice a day with fluticort (fluticasona propionato).
about the magnesium she told me to start again, because she thinks the diarrhea was about swalow mocus, the magnesiun should give diarrhea in a small child one or two days after dose.
so if you are agree tonight we´ll give her 15mg, and as you said for a few days more, and then 30mg.
I´ll try to find here the vitamine D you sugested, if I don´t I´ll send you the ones I find.
ok? thank you for everything!
Oh, and Lara gain weight, she is 7320,