Baby girl, dilated miocardyopathy from Argentina, need help

[Willy]

willy, i don´t know exacly when the magnesium will be arrive, in the meantime we have this in our neighboor farmacy, is any good?
http://www.natufarma.com/productos/vita ... nesio-100/

Bad product, this magnesium oxide, it only will give Lara diaree

[Willy]

we ask also for vitamine D and the doc said it was no necesary! but send a blood test (hepatograma, hemogram, GAP, creatinine, urea, plasma electrolytes), maybe there we´ll see the vitamine D? well, still waiting for magnesium arrives!
hope your are doing well!

If the cardiologist does NOT carry out the vitamin D blood test, please ask your Family Docter. I need the blood value

[Willy]

Please read all posts and check if there are open isues and requests from me for more information

If so please provide the requested info

DO NOT FORGET!

[Aleta]

alright, we´ll keep waiting the jigsaw, but Lara should not be taking magnesium by now? I´ll ask for the vitamine D to her ped. but in the blood test that the cardiologist ask is not gonna show vitamine D? Hemogram and hepatogram.

[Willy]

Please ask Family Docter or any doctor

This is the reason why http://cardiomyopathie-hartfalen.pillie ... len.2l.php

This is the science behind it http://cardiomyopathie-hartfalen.pillie ... Vitamine-d

If her vitamin D level is not optimal she will have a higher risk of airway infections like pnemonia

http://www.ncbi.nlm.nih.gov/pubmed/19063829

http://www.ncbi.nlm.nih.gov/pubmed/21465443

[Aleta]

alright, the pediatrician is in a trip and come back tonight, tomorrow I´ll call her and ask for the prescription for the blood test for vitamine D, we´ll do the test next wednesday, the results shoud be quick. my worries is about she still don´t get the magnesium. we got time? shoud I buy some vitamine D in the meantime?

[Willy]

Do not hurry, you heard what the doctor said, there is NO change

So...............

She is not getting sicker

We have to get the good supplements and the right blood tests to see what we have to do

[Aleta]

do you want me to ask the pediatrician a prescription for pro bnp too, or still to early? or do you prefer to do it when we are with whole protocol?

[Willy]

Let's do that if she is for 2 - 3 months on the complete protocol, so around november

First the vitamine D blood test

[Aleta]

ok!

[Aleta]

Hi Willy, last wednesday Lara had her appointment with the cardiologist. As I´ve told you there where no changes. I didn´t want to see the report with the same numbers, but yesterday I´ve got curious and I watched the last one and the one before, and there´s something diferent. it saids: -mitral valvue: mitral annulus dilatation with opening retained deficit and insufficient coaptation of severe degree. FAILURE GRADIENT 85 MMHG- And in the after report, 3 weeks ago it saids 90mmhg. Do you know what that value is? I guess it´s not very relevant because the function and dilatation is the same, but still i would like to know what this is about... is bad or good the smaller number?
...............still waiting the magnesium.....................
Tomorrow we´ll do the blood test, vitamine D incluided.

[Willy]

mitral annulus http://en.wikipedia.org/wiki/Mitral_annulus

coaptation http://en.wiktionary.org/wiki/coaptation

MMHG millimeter of mercury http://en.wikipedia.org/wiki/Millimeter_of_mercury

The presure at the mitral valve is a littje bit reduced 90 -- 85

Although the change is minimal I take that as a possitive sign

[Aleta]

I want to se big GOOD changes but I guess this is little by little... but the number we have to look at is the fraction of eyection, right?
But If you think is a good sing I´ll try to have a bigger smile today.
The magnesium is in argentina, in the office of exchange, 1 and a half hour away from home, I´ll try to pick up tomorrow, I hope they give it to me, we have a lot of issues recieven pacages from outside --nervous-

[Willy]

Pro-BNP and EJF

And we need vitamin D value. To calculate vitamin D supplementation to prevent airway infections

[Aleta]

Tomorrow we take blood for vitamine D; I don´t know how long takes for results, Pro BNP the doctor didn´t wanteds to ask for it :/ But as you told me in november, I´ll ask again then, and if still Dr don´t want to, we´ll ask the pediatrician for the presciption. the valiu of the mitral valvue may it be for the madication or the shape of the heart -maybe- changing?