Thanks Willy!
And thank you for the beautiful song, she loved it
Er zijn 505 resultaten gevonden
- zo sep 15, 2019 5:19 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
- ma jun 10, 2019 4:54 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi Willy! I have no permission to read that link... Lara is having 1/3 of one jigsaw tablet (100mg) in the morning and 1/3 at night, someting like 33mg in the morning andd 33mg at night. 66mg at day. Lara's weigh is 17,200kg, so 17,200 x 3 = 51,6. You say that we get lower dose now with jigsaw or wh...
- za jun 08, 2019 7:03 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi Willy! Yes this is a good team! Yo asked: Why did we decide to go for JigSaw magnesium time released? Diarree? Yes, but she was a baby, maybe now she could handle other options like citrate. I get Malate magnesium only jigsaw and Now food. Citrate has more options, I couls even get some brand her...
- ma jun 03, 2019 4:45 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi Wiily, I hope you're doing great. I have a quick question, Lara is having 42mg twicw at day (84mg total), of magnesium. We use jigsaw health magnesium which is magnesium malate. I'm having truble getting that brand. Now foods os ok? Is there any other brand? She hast to take malate or can have ma...
- vr mei 03, 2019 11:48 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi Willy! Lara did great at check up, the numbers are still the same, her left atrium and ventricle are still dilated, but very little. Cardio told us that the atrium probably is bigger than normal in consequence of the mitral ring that had to be reduced in the surgery. The valve is good and the siz...
- za apr 27, 2019 8:28 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi Willy, great timing!
Our check up is may 3, next friday. Already freaking out.
She looks great with lot of energy but this year started preschool 7 hours at day, I hope this wont be too much for her.
I'll thell how it goes, and thank you for think about us!
Aleta.
Our check up is may 3, next friday. Already freaking out.
She looks great with lot of energy but this year started preschool 7 hours at day, I hope this wont be too much for her.
I'll thell how it goes, and thank you for think about us!
Aleta.
- wo jan 23, 2019 6:37 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Thank you! is Sebastian's number
- vr dec 28, 2018 6:34 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Sounds great, jan 16 she has pediatrician appointment, we'll tell you the knew. On jan 23 she turns 5 years old!!!
Have an amazing 2019, you deserve all the best of the world!
Have an amazing 2019, you deserve all the best of the world!
- di dec 04, 2018 8:30 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
I love to read "that is not a big problem"!
- ma dec 03, 2018 2:45 am
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Not for now, but I wonder if those acids means that Lara counld never leave supplements.
- za dec 01, 2018 3:02 am
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi Willy< I was just reminding you how things were at the beggining with thos blood tests.
- do nov 08, 2018 4:50 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi Willy! At the biggining of all, in diagnosis time, in the first clinic we were reffered, they did a lot of tests. On of those was asked by the pedriatric methabolism specialist. Those tests results was some acids a little high, and in case Lara has a mitocondrial desorder, they prescibed 150mg of...
- di nov 06, 2018 7:56 am
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi Willy, long time no see! Lara had her check up with cardiologist after six month, shortening fraction the same, %34-%36, heart size the same, but Lara grew a lot and gained weight, so Z-Score went down to 2.1! Pleaseee, she needs to keep on this track! Also, meds still the same, only enalapril ha...
- vr jun 29, 2018 5:06 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
You made me SMILE
Thank you thank you thank you
Thank you thank you thank you
- do jun 28, 2018 7:57 pm
- Forum: Treatment Heart Failure (cardiomyopathy)
- Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
- Reacties: 1027
- Weergaves: 713930
Re: Baby girl, dilated miocardyopathy from Argentina, need help
Hi, Willy and Sas! I didn't get the forum updates, that's why I didn't write back. Lara's first shortening fraction at PICU was %19, after a round of levosimendan was %20. That was in june 2014, in august we started supplements and in october she got %28. In December 2015 She reached %30 but she nee...