Er zijn 504 resultaten gevonden

door Aleta
do mar 01, 2018 5:51 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Aletta, A while ago I've Read your story. Great to see Lara had made so many progress. Our son Finn has also dilated cardiomyopathy and a strange looking mitral valve. Can you tell me what the problem was with Lara her mitral valve and what kind of surgery she had? Thank you! Martine Hi! I didn'...
door Aleta
do mar 01, 2018 5:40 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Willy, I'm so sorry to read that you still have depression issues. I hope you can get out of that soon! you are a great man and you deserve it! Is today the first day Lara doesn't have her carvedilol dose. Soooo scary, and today she starts her second year in preschool! We have cardio check up in apr...
door Aleta
wo jan 31, 2018 5:14 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! We had our pediatrician and cardiologist check up. Ped researched about Lara's hand (the missing bone) and it has naothing to do with DCM. We have to follow the develepment of the bone, but for now is nothing serious. Lara's weight is still 14kg but she grew 3 cm in four months, so everyth...
door Aleta
do jan 18, 2018 6:45 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy, I hope you're doing well. I Don't know how to paste an image here so I'll email you. The picture is an X ray of Lara's hands. She has a weird bone in her wrist, so I took her to a traumatologist and she orderes an x ray. The thing is that a part of the ulna bone in misisng and one of the l...
door Aleta
di dec 19, 2017 12:33 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: DCM and leaky mitral valve in 2 year old
Reacties: 29
Weergaves: 31043

Re: DCM and leaky mitral valve in 2 year old

Hi Irina, I' Aleta, mom of Lara. She will turn 4 years old in january and has DCM. She had a great outcome in the past years having her supplements everyday. I've read that you stoped supplements while you son had the flu. Just wanna say that is hard to have them on that many oral meds, but still, p...
door Aleta
zo dec 17, 2017 4:27 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Ok, so with that calculation I have to give her 2,94gr at day, we are still ok :)

It's been a while since we don't do a vitamine D dosage, do you want me to ask for it in the next blood work we have to do?

Best regards

Aleta.
door Aleta
wo dec 13, 2017 7:57 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy, I hope you are doing well. I'm still recovering my arm, it's taking a lot! I did the numbers of Lara's supplements doses, and I belive she still is alright, because we always have given her a little more. Laras's weight now is 14 kg first, by prescription of metabolism doctor she has 500mg...
door Aleta
vr okt 27, 2017 3:38 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi willy

Ok, i'll do the Numbers and get back to you.

Thank you!!!

Aleta.
door Aleta
do okt 26, 2017 10:59 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Sorry for the late response, take care of my arm takes so much time of my day :( Yes, are great news! But is hard to be absolutly happy, I'm still scared about her future. So many kids reach normal ranges and sizes and after a few years they get worse. I,m not sure axactly how unpredictable this dis...
door Aleta
di okt 17, 2017 3:21 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! We went to Lara's check up after two weeks of decrease Carvedilol and stop Espironolactone. Well, LV was about 1 or 2 mm smaller, and shortening fraction was %35/36, a little better. Could be a better day for her or something because the difference was small, but still, function at normal ...
door Aleta
za sep 23, 2017 2:47 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Thanks Willy, I'll give you the update of the october 9 check up.

Happy autumn!
door Aleta
do sep 21, 2017 5:39 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682887

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! I hope things are doing good there! We had Lara's cardio check up last week, I'm sorry for take this long to write, but I had my arm broken, then surgery, a day after clinic discharched me we had cardio, and after that took a rest. I'm ok now (it's a lie, still hurts). Lara's heart improve...
door Aleta
di jul 25, 2017 5:16 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: DCM and leaky mitral valve in 2 year old
Reacties: 29
Weergaves: 31043

Re: DCM and leaky mitral valve in 2 year old

we've met via Saskia-Facebook
door Aleta
di jul 25, 2017 3:28 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: DCM and leaky mitral valve in 2 year old
Reacties: 29
Weergaves: 31043

Re: DCM and leaky mitral valve in 2 year old

Hi Irina, so glad you came here.
Willy is the best And I'm sure supplements will help.

Hugs

Aleta.