Er zijn 505 resultaten gevonden

door Aleta
do apr 11, 2024 2:07 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willie!

This is how we are giving it now because we have 100 and 50 mg capsules. But we already received the ones we ordered for 100 and 200, how do we give them those?
door Aleta
di mar 26, 2024 4:20 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willie, Now Lara is having ubiquinol 150mg only at morning. Already increased Magnesium and ribose, now we gonna start to increase ubiquinol. I was worried that I would run out of bottles of ubiquinol but we already ordered more from the US and they will arrive in a few days. I was also worried a...
door Aleta
vr mar 15, 2024 8:21 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

I forgot!
I can’t find ubiquinol in 150mg capsules, can I give her 200mg in the morning and 100mg at night?
door Aleta
vr mar 15, 2024 8:13 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willie, thanks for doing the calculation! We are going to increase the dose, my only question is about the ubiquinol. I thought 150mg was the maximum dose. I'm mistaken? As for the other supplements to add, I'm going to find out how to get them here in Argentina or in US, and talk to the cardiolo...
door Aleta
wo feb 21, 2024 5:06 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy!

No, she doesn't take taurine and never has.
door Aleta
wo feb 14, 2024 3:13 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi again Willy!

I´m sorry, Lara´s weigh is 38,6 kg
door Aleta
wo feb 14, 2024 4:28 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy, Im so sorry for the daly in the response. I dont get the email with the notification about new post or reply in the forum... I cant see the link in your reply aobout the weight, it leads me to a page that says Je hebt geen toestemming om dit forum te lezen. Is that I need a permission to r...
door Aleta
di jan 30, 2024 7:57 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! im so sorry for not reply before, I didnt got the forum notifications, Saskia told me about your post! Thanks a lot for calling Lara, it meant a lot for all of us, and thank you for be here with us all this years. Lara knows about you and she is very grateful, she values averyone who cared...
door Aleta
vr mar 03, 2023 3:38 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willie! Sorry for the delay in responding, this was the first week of school and it was crazy. I hope you are very well, we always think of you! Lara is fine, she has control with cardiologist every six months and still does not meds. About june 2021 shortening fractiosn dropped 36/39 to 34/35 an...
door Aleta
zo feb 14, 2021 3:47 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

You made cry happy tears!

Thank for all you do for us!!!
door Aleta
di jan 19, 2021 11:59 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

HI Willy! So glad to know from you! Lara´s birthday is on saturday, Jan 23. 7 years already! I great to know that your family is fine, even with mild covid. Lara is on NO medication, only supplements.I believe a year and a half already... When we can and things are less complicated with covid, cardi...
door Aleta
wo dec 02, 2020 4:16 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! So glad to read you! We got Doctor´s best riboce for a while and then bak again with sourse naturals. We managed to stay healthy this auful year. Lara is doing great, she went to school two weeks this yearbefere the lockdown, after that was all homeschooling because school didn´t open unti...
door Aleta
wo mar 25, 2020 7:21 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

HI Willy! I hope you are doing well. What our cardio said is that the tests on ACE inhibitors related with Covid19 has been done with rats and there is no evidence on humans. So, she wants to do more than less and in just in case, she changed the medication to the patients who could do so. She told ...
door Aleta
vr nov 29, 2019 4:57 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

I believe Shortening fraction max is 50? Lara weighs 18,700 kg and is 1,14 mts tall Meds are the same, enalapril 1,87 at day. I believe she will stay with enalapril, we´ve talked a few months ago about take off but now she said that will not adjust for now, so maybe is planning to keep Lara on Enala...
door Aleta
do nov 28, 2019 5:37 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 728813

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! I hope you are doing great! Lara has her check up, everything went well. Her shortening fraction now is 36%-39%, even better than the last time, but doc said that Lara is withing notmal range so 1 or 2 numbers up or down is the same. Did not make the Z Score, so i´m not so sure how big her...