Baby girl, dilated miocardyopathy from Argentina, need help

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
Tinus1979
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Lid geworden op: Zo Nov 29, 2015 10:03 pm

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Tinus1979 » Wo Mar 28, 2018 9:56 pm

Hi Aleta,

Thank you very much for the information! Nice to hear the mitral surgery helped Lara!

Aleta
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Aleta » Wo Jun 06, 2018 6:42 pm

Hi Willy!
I hope things are doing well over there. :)

Lara had her check up a few day ago, but we went for a family tripo and here we are giving you the report.

Lara is great, her numbers are the same, the shortening fraction is %34-%36 inside normal range. The meds are the same, just Enalapril 1,3 mg in the morning and 0,7 mg at.

The Z-score the last time was 2.3, and now is 2.4. Tha worries me, but our cardio said tha is nothing to worry about because Lara grew 3cm in 3 months, so probably the heart grew a bit but not for the DCM. Even so, I'm worry.

Cardio told us that Z-score is a little big thn normal, and if she didn't knew Lara from before, she woldn't think that Lara has DCM, just a little enlarged like the sports heart. But as she knows Lara's past, she keeps treating her like a DCM patient, but she says that NOW Lara has no DCM criteria except for her past.

I guess this are great news, I'm very happy aboout it, but I know this can be tricky and the Z-score thing keeps me worrie.

We have to go back in november, a lot!!!

We are in the same dose with supplements.

Sending you big hugs!

Aleta.

sasje1903
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor sasje1903 » Wo Jun 06, 2018 10:51 pm

Great news Aleta!!

We love you all! x

Willy
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Za Jun 09, 2018 3:37 pm

Excellent she slowly out gowths the DCM, that is what I expected would happen

the shortening fraction is %34-%36 inside normal range

6% to much max SF = 30% :D

Keep the sups on the same level, so she gets per KG a little bit less, we do not correct for weight until november cardio visit

May be a Face Time
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

sasje1903
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor sasje1903 » Za Jun 09, 2018 9:41 pm

Here i found Some normal values for Left Ventricle fractional shortning

https://www.echopedia.org/wiki/Normal_Values_of_TTE

Willy
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Zo Jun 10, 2018 2:59 pm

Thank the cardio is correct in huis statement, within normal range

What was this value when we started?
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina


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