Cariomyopathy, Thiamin Deficiency, Sleep Apnea...
Geplaatst: wo nov 15, 2006 7:29 pm
Hi,
I've been reading posts on your website forum regarding CHF. I am from the USA. More specifically I'm from Atlanta, GA. I am 43 and soon to turn 44 years old. I am willing to work with you using the forum however I can only speak English. I looked for an entry portal to your English forum however I could not find it. Thank you for intervening. I would like to try a supplement protocal in an effort to help my situation.
Since diagnosis I have changed my lifestyle greatly. This includes Regular Excercise, No Alchohol Consumption and other things listed below. I've been relatively Asymptomatic with the exception of fatique. This condition was discovered as the result of a knee operation. The doctor performed an EKG at surgery time and it was abnormal. Once recovered from the surgery I went to a Cardiologist to investigate the EKG results. The doctor didn't detect an fluid rentention however, Apparently I was retaining some fluid After I started on the treatment I lost 10 pounds almost immediately. Otherwise there was very little to suggest that I even had a problem.
After reading the posts, I went to the local GNC (General Nutrition Corporation) and purchsed several supplements that I read about on the forum. More specifically:
MSM 1000mg capsules taking 3x's day
Chromium Picolinate 200mg capsules taking 1x day
Additionally I purchased the following but haven't taken any of them yet:
Taurine 500mg capsules
L-Carnitine 250mg capsules (Is this the same thing as Acetyl
L-Carnitine?)
I am currently taking (Started before learning about your website:
C0Q10 100mg capsules 2x day
B-12 500m 2x day
Fish Oil 1000mg 3x day (Omega 3)
B-1 100mg 3x day
The doctor has me on the following:
Carvedilol (Coreg) 6.25mg 2x day (Heart Medicine - Beta Blocker)
Benicar 20mg 1x day (Blood Pressure Medicine)
Do I need to make any addtional purchases to be prepared for your protocal?
Here are the responses to your questions:
>You are diagnosed with?
Ideopathic Non-Ischemic Dilated Cardiomyopathy
>Current Condition
A problem was discovered approximately 9 months ago during an EKG as part of Orthroscopic Surgery. (Left Budle Branch Block) I saw a Cardiologist 2 months later who diagnosed this condition. Relatively Asympomatic with the exception of fatique. Class I of IV.
>Ejection Fraction
Approximately 30%, has recently been retested (Echocardiogram) and hasn't changed since the original diagnosis 6 months ago.
>Cause of my disease
Unknown - determined to be Ideopathic however several things have been diagnosed since:
Thiman (Viatmin B1) deficiency. 2 blood tests = 1st was Undetecable level & 2nd was Deficient Level barely registered on the scale. Currently taking replacement therapy.
Low Vitamin B12 - Currently taking replacement therapy.
Sleep Apnea currenlty being treated with CPAP @ 8lbs pressure
Low Testosterone Level a year ago and now in the low side of normal - not taking any therapy for this
>Blood Pressure
High Blood Pressure at varying levels. ie: 200/100, 160/88, 170/90 Currently being treated with Benicar 20mg 1x and Blood Pressure is now ok. In fact, I excercise 2x day and my blood pressure is now low. ie: 111/67 I may ask my Cardiologist if I can reduce or eliminate the meds for high blood pressure.
>Possible Nutritional Restrictions (Salt, Water, Ect.)
Caridiologist has placed on no restrctions other than salt limit of no more than 2000mg per day. I find that it helps my energy level to place myself on a more strict low-sodium diet.
>Are you using diruetics
No
>Are you using Beta Blockers like Sotalol
Yes, Carvedilol (Coreg) 6.25mg 2x day. Due to my low heart rate this is the maximum dosage I can tolerate, according to my Cardiologist.
>Are you frequently tired
Sometimes however I've noticed much improvement when I excercise 2x day. Walk @ 4.7 mph for 1 hour each event. Also, after reading this forum I purchased the MSM 1000mg 3x day & Chromium 200mg 1x day. I've been taking this for the past 3 days and have noticed additional improvement. Now, I'm almost normal as it relates to tiredness.
>Do you use lots of sugar
Yes, I LOVE sweets however I still try to eat sweets in moderation to maintain and loose weight.
>Can you skip a meal or eat three hours later without a problem
Yes
Thank you for providing this service. I'm looking forward to this.
Kevin
I've been reading posts on your website forum regarding CHF. I am from the USA. More specifically I'm from Atlanta, GA. I am 43 and soon to turn 44 years old. I am willing to work with you using the forum however I can only speak English. I looked for an entry portal to your English forum however I could not find it. Thank you for intervening. I would like to try a supplement protocal in an effort to help my situation.
Since diagnosis I have changed my lifestyle greatly. This includes Regular Excercise, No Alchohol Consumption and other things listed below. I've been relatively Asymptomatic with the exception of fatique. This condition was discovered as the result of a knee operation. The doctor performed an EKG at surgery time and it was abnormal. Once recovered from the surgery I went to a Cardiologist to investigate the EKG results. The doctor didn't detect an fluid rentention however, Apparently I was retaining some fluid After I started on the treatment I lost 10 pounds almost immediately. Otherwise there was very little to suggest that I even had a problem.
After reading the posts, I went to the local GNC (General Nutrition Corporation) and purchsed several supplements that I read about on the forum. More specifically:
MSM 1000mg capsules taking 3x's day
Chromium Picolinate 200mg capsules taking 1x day
Additionally I purchased the following but haven't taken any of them yet:
Taurine 500mg capsules
L-Carnitine 250mg capsules (Is this the same thing as Acetyl
L-Carnitine?)
I am currently taking (Started before learning about your website:
C0Q10 100mg capsules 2x day
B-12 500m 2x day
Fish Oil 1000mg 3x day (Omega 3)
B-1 100mg 3x day
The doctor has me on the following:
Carvedilol (Coreg) 6.25mg 2x day (Heart Medicine - Beta Blocker)
Benicar 20mg 1x day (Blood Pressure Medicine)
Do I need to make any addtional purchases to be prepared for your protocal?
Here are the responses to your questions:
>You are diagnosed with?
Ideopathic Non-Ischemic Dilated Cardiomyopathy
>Current Condition
A problem was discovered approximately 9 months ago during an EKG as part of Orthroscopic Surgery. (Left Budle Branch Block) I saw a Cardiologist 2 months later who diagnosed this condition. Relatively Asympomatic with the exception of fatique. Class I of IV.
>Ejection Fraction
Approximately 30%, has recently been retested (Echocardiogram) and hasn't changed since the original diagnosis 6 months ago.
>Cause of my disease
Unknown - determined to be Ideopathic however several things have been diagnosed since:
Thiman (Viatmin B1) deficiency. 2 blood tests = 1st was Undetecable level & 2nd was Deficient Level barely registered on the scale. Currently taking replacement therapy.
Low Vitamin B12 - Currently taking replacement therapy.
Sleep Apnea currenlty being treated with CPAP @ 8lbs pressure
Low Testosterone Level a year ago and now in the low side of normal - not taking any therapy for this
>Blood Pressure
High Blood Pressure at varying levels. ie: 200/100, 160/88, 170/90 Currently being treated with Benicar 20mg 1x and Blood Pressure is now ok. In fact, I excercise 2x day and my blood pressure is now low. ie: 111/67 I may ask my Cardiologist if I can reduce or eliminate the meds for high blood pressure.
>Possible Nutritional Restrictions (Salt, Water, Ect.)
Caridiologist has placed on no restrctions other than salt limit of no more than 2000mg per day. I find that it helps my energy level to place myself on a more strict low-sodium diet.
>Are you using diruetics
No
>Are you using Beta Blockers like Sotalol
Yes, Carvedilol (Coreg) 6.25mg 2x day. Due to my low heart rate this is the maximum dosage I can tolerate, according to my Cardiologist.
>Are you frequently tired
Sometimes however I've noticed much improvement when I excercise 2x day. Walk @ 4.7 mph for 1 hour each event. Also, after reading this forum I purchased the MSM 1000mg 3x day & Chromium 200mg 1x day. I've been taking this for the past 3 days and have noticed additional improvement. Now, I'm almost normal as it relates to tiredness.
>Do you use lots of sugar
Yes, I LOVE sweets however I still try to eat sweets in moderation to maintain and loose weight.
>Can you skip a meal or eat three hours later without a problem
Yes
Thank you for providing this service. I'm looking forward to this.
Kevin