Dilated Cardiomyopathy
Geplaatst: ma apr 24, 2006 12:33 am
Hello,
My name is Avner, first I want to thank you for this site and forum. You have provided me with a lot of practical and mental support in the first few weeks after I was diagnosed.
I am 53 old male, I was diagnosed with Idiopathic DCM two months ago.
Based on your protocol I take (per day):
* 2000mg L-carnitine
* 2000mg Taurine
* 300mg Q10
Additional to that I take I have added
* 750mg Magenesium
* Hawthorne
* 3000 mg FLAX oil
* 200mg Selenium
* Green Tea
And MSM and Chromium every second day.
I also take 25mg Captopril per day (12.5mg morning and evening).
I have Hypothyroidism for the last 15 years and I take 150mg of Artificial Thyroid medicine (called Altroxine) per day.
My diet is now under the supervision of a Chinese oriented therapist. I eat no sugar, no wheat, almost not fresh vegetables and fruits, only warm cooked or stir fried food, no coffee & no alcohol. This therapist, who is also physician, claims that my left heart is dilated as many other left organs in my body and she thinks that this is a structural issue and not a medical condition. I do not buy that part of her expertise, but I do collect effective pieces from various approaches.
I suffer from moderate arrhythmias but I remember that since I was 30 years old. Maybe now it is more frequent.
I exercise almost every day, swimming, walking and biking.
My father died from Herat Failure at the age of 72 due to Acromegaly that caused Cardiomyopathy. Initial blood tests and physical exams shows that I do not have Acromegaly but ruling it out is still in a process.
As for your questioner:
How did you notice you had it?
I fainted as a result of intensive training after which I took a long hot Sauna (which I do not do anymore). The doctor thinks that this event was not a result of my cardiomyopathy but as a result he asked me to do some medical tests and I than I was diagnosed with DCM.
When was this?
Two months ago.
What is the cause of it, according to the cardiologist?
unknown.
What is your EJF %, pump function?
Rest: 43%
After training: 40%
How is your blood pressure, how high was it without medication and how high is it now?
65-75/120-130 same as it was before
What was your heart rate before and after the present medication?
55-65 resting
Did they examine whether your veins (neck or groin) let enough blood flow?
Yes. They are OK.
Do you suffer with decomposition or swollen ankles?
No
Are there certain things at the moment you can’t do anymore?
One year ago I used to exercise and easily reach 140-150 heart rate. I had stop training for few months and when I exercise today I feel that something is stopping me. It is not a specific feeling, I can hardly reach 130 HR. I am not sure if it is my physical condition or my state of mind.
Can you still climb the stairs for instance?
Yes
Or do you still do sports?
Yes, biking and swimming, 1 hour a day, 5-6 times a week.
How does the cardiologist call your illness?
Idiopathic Dilated Cardiomyopathy
Do you suffer from allergies or have an intolerance to food or medicines?
No.
Do you get tired quickly?
No.
Do you eat a lot of sugar?
Not anymore
After some exertion , do you quickly get short of breath?
In general no but it is harder for me to exercise in the high range of my heart rate (80%)
Hope it gives a good picture.
I have this tendency to over react and over invest when I face a problem. I would appreciate if you can give me your view to help balancing my regime, especially if you find that I overdo or miss something.
I also wish to know what can be the reason that I feel bounded/limited in my exercise though I have no symptoms of short breath.
Thanks again for your time and attention.
Avner
My name is Avner, first I want to thank you for this site and forum. You have provided me with a lot of practical and mental support in the first few weeks after I was diagnosed.
I am 53 old male, I was diagnosed with Idiopathic DCM two months ago.
Based on your protocol I take (per day):
* 2000mg L-carnitine
* 2000mg Taurine
* 300mg Q10
Additional to that I take I have added
* 750mg Magenesium
* Hawthorne
* 3000 mg FLAX oil
* 200mg Selenium
* Green Tea
And MSM and Chromium every second day.
I also take 25mg Captopril per day (12.5mg morning and evening).
I have Hypothyroidism for the last 15 years and I take 150mg of Artificial Thyroid medicine (called Altroxine) per day.
My diet is now under the supervision of a Chinese oriented therapist. I eat no sugar, no wheat, almost not fresh vegetables and fruits, only warm cooked or stir fried food, no coffee & no alcohol. This therapist, who is also physician, claims that my left heart is dilated as many other left organs in my body and she thinks that this is a structural issue and not a medical condition. I do not buy that part of her expertise, but I do collect effective pieces from various approaches.
I suffer from moderate arrhythmias but I remember that since I was 30 years old. Maybe now it is more frequent.
I exercise almost every day, swimming, walking and biking.
My father died from Herat Failure at the age of 72 due to Acromegaly that caused Cardiomyopathy. Initial blood tests and physical exams shows that I do not have Acromegaly but ruling it out is still in a process.
As for your questioner:
How did you notice you had it?
I fainted as a result of intensive training after which I took a long hot Sauna (which I do not do anymore). The doctor thinks that this event was not a result of my cardiomyopathy but as a result he asked me to do some medical tests and I than I was diagnosed with DCM.
When was this?
Two months ago.
What is the cause of it, according to the cardiologist?
unknown.
What is your EJF %, pump function?
Rest: 43%
After training: 40%
How is your blood pressure, how high was it without medication and how high is it now?
65-75/120-130 same as it was before
What was your heart rate before and after the present medication?
55-65 resting
Did they examine whether your veins (neck or groin) let enough blood flow?
Yes. They are OK.
Do you suffer with decomposition or swollen ankles?
No
Are there certain things at the moment you can’t do anymore?
One year ago I used to exercise and easily reach 140-150 heart rate. I had stop training for few months and when I exercise today I feel that something is stopping me. It is not a specific feeling, I can hardly reach 130 HR. I am not sure if it is my physical condition or my state of mind.
Can you still climb the stairs for instance?
Yes
Or do you still do sports?
Yes, biking and swimming, 1 hour a day, 5-6 times a week.
How does the cardiologist call your illness?
Idiopathic Dilated Cardiomyopathy
Do you suffer from allergies or have an intolerance to food or medicines?
No.
Do you get tired quickly?
No.
Do you eat a lot of sugar?
Not anymore
After some exertion , do you quickly get short of breath?
In general no but it is harder for me to exercise in the high range of my heart rate (80%)
Hope it gives a good picture.
I have this tendency to over react and over invest when I face a problem. I would appreciate if you can give me your view to help balancing my regime, especially if you find that I overdo or miss something.
I also wish to know what can be the reason that I feel bounded/limited in my exercise though I have no symptoms of short breath.
Thanks again for your time and attention.
Avner
I am glad if I can help you a little bit by giving advice 
