dosage for a 13 year old

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Suva
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dosage for a 13 year old

Bericht door Suva » wo jul 13, 2016 9:25 am

Hello,

I have been recommended to you by Aleta. Your work is amazing!

My daughter who is 13 years, had chemotherapy at 19 months, and was diagnosed with dilated cardiomyopathy at 8 years. Her cardiologist, after doing various tests, concluded the chemotherapy most likely damaged her heart muscle.She also has down syndrome.

Her fs is at 19 %, and has been around this level since she was diagnosed. She is on

carvedilol - increasing dosage this week from 12.5 to 25mg as she has grown and her weight has increased
lisinopril - 7.5mg once a day
aspirin 100 mg ( twice a week)
Ubiquinol 100 mg once a day
vit d 1000mg once a day

I would appreciate advice from you as to the dosages for Co Q10, L carnitine, D ribose and Magnesium. I am getting a blood test this week to see her coQ10 blood levels. I have read your guidelines for children on gradually adminstering the supplements.

On going, would you recommend any blood tests for eg, liver function tests or kidneys, to check all is OK?

I currently give her bioceuticals brand of coQ10. Are you familar with this brand and the effectiveness of absorption or would you recommend another brand?

Do you recommend any other supplements?

Thank you!

Willy
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Re: dosage for a 13 year old

Bericht door Willy » wo jul 13, 2016 5:51 pm

Hello Suva we have to wait until Corrij is online again

Are you from Argentia as well?
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Willy Witsel

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Suva
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Lid geworden op: wo jul 13, 2016 9:01 am

Re: dosage for a 13 year old

Bericht door Suva » do jul 14, 2016 1:50 pm

Hi Willy

We've from Sydney, Australia. Look forward to Corrij's reply.

Willy
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Re: dosage for a 13 year old

Bericht door Willy » ma jul 18, 2016 3:56 pm

Corrij is at the moment very busy, so...........

I take over but in a slow pace
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Willy Witsel

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Willy
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Re: dosage for a 13 year old

Bericht door Willy » ma jul 18, 2016 3:59 pm

Look for good products, magnesium, acetyl carnitine. ribose and vitamin D, you can buy and post the product description (link)

What is her pro-BNP blood value and Ejection Fraction (Pump function)

And what is her weight in kilo's
Met vriendelijke groeten,

Willy Witsel

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Suva
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Lid geworden op: wo jul 13, 2016 9:01 am

Re: dosage for a 13 year old

Bericht door Suva » wo jul 27, 2016 6:21 am

Hi Willy

Sorry for the slow response as we are still waiting for my daughter’s blood test and pro-BNP blood value. I have been researching brands to use and would welcome your feedback on the quality of the products.

We saw the cardiologist this month, and LVFS ( left ventricle fractional shortening ) is 18 %. He did not give an EF %. In June 2015 her LVFS was 19 % and EF 51 %.Weight is 46.8 kg. I would welcome your feedback on dosage levels for Ubiquinol, L Carnitine, Magnesium & D Ribose. Would you also recommend any other supplements?

She is on ACE inhibitor ( Lisinopril), Beta Blocker ( Carvedilol) to lower her blood pressure ( she does not have high blood pressure) and aspirin. Will any of these supplements lower her blood pressure further? Her cardiologist has this month doubled Carvedilol from 6.25 mg to 12 .56 mg because she is growing and has increased her weight.

I’m reading about L carnitine, and there is a variety to choose from. What form would you recommend GPLC, Acetyl L carnitine, acetyl L carnitine arginate, acetyl L carnitine taurine, L carnitine

These are 2 GPLC brands I found

http://au.iherb.com/Life-Extension-Opti ... -Caps/8197
http://au.iherb.com/now-foods-gplc-glyc ... caps/22674

Acetyl L Carnitine

http://au.iherb.com/Now-Foods-Acetyl-L- ... blets/6110
http://au.iherb.com/Source-Naturals-Ace ... lets/12572
http://au.iherb.com/Solgar-L-Carnitine- ... lets/13071


Ubiquinol

We started 200 mg ubiquinol 10 days ago and noticed she is not as tired at bedtime. Previously, we had been doing a daily dose of 100mg. The brand I have used is Bioceuticals, an Australian brand
bioceuticals.com.au/product/preview/Ubiquinol-BioActive-100mg

I’m planning on switching to one of these

http://au.iherb.com/Healthy-Origins-Ubi ... gels/12109
http://au.iherb.com/Now-Foods-Ubiquinol ... gels/57583
http://au.iherb.com/Life-Extension-Supe ... gels/22327


Vitamin d3. Currently on 2000mg a day in the mornings


Magnesium
I’m still researching the products . What form of magnesium citrate, orotate, malate would you recommend?


D Ribose
Still researching


Thank you!!

Willy
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Re: dosage for a 13 year old

Bericht door Willy » za aug 06, 2016 12:42 pm

Acetyl l carnitine from now 750 + 325 on an empty stomach 30 min before meal

Q10 go for Now 200 mg during meal

Now start looking for magnesium citrate
Met vriendelijke groeten,

Willy Witsel

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Suva
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Lid geworden op: wo jul 13, 2016 9:01 am

Re: dosage for a 13 year old

Bericht door Suva » zo aug 21, 2016 4:26 am

Thank you , Willie!

I would like to clarify the dosage of Acetyl L Carnitine. For a 70 kg adult, is it 1980 mg? My daughter weighs 46.8 mg, Would the dosage be 1323 mg per day,so I could get a 750 mg dose and 500 mg dose


http://au.iherb.com/Now-Foods-Acetyl-L- ... g-Caps/316

http://au.iherb.com/Now-Foods-Acetyl-L- ... blets/6110

On the label the Acetyl L Carnitine 750mg says for “cognitive support”. The label for the 500mg says “brain and nerve cell function”. There is also another 500mg which says ‘cognitive support “on the label. Is the Acetyl L carnitine with ‘ cognitive support’ suitable to use to help daughter’s heart?


Magnesium citrate, from Now foods – in powder form

http://au.iherb.com/Now-Foods-Magnesium ... 227-g/1101

in tablet form
http://au.iherb.com/Now-Foods-Magnesium ... ablets/691

in softgel form
http://au.iherb.com/Now-Foods-Magnesium ... gels/22552


Jigsaw has 2 magnesium options – one with vit B and one without vit b. Which one is suitable?

https://www.naturallyreplenish.com.au/c ... free-240ct


this magnesium has vit B included

https://www.naturallyreplenish.com.au/c ... sium-w-srt



Thank you!

Willy
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Re: dosage for a 13 year old

Bericht door Willy » zo aug 21, 2016 1:10 pm

Dosis and products are both correct for carnitine

We discuss magnesium later

After 1 - 2 week q10 you can start ALC
Met vriendelijke groeten,

Willy Witsel

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Suva
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Lid geworden op: wo jul 13, 2016 9:01 am

Re: dosage for a 13 year old

Bericht door Suva » zo okt 16, 2016 12:59 pm

Hello Willie,

During the month of September, I gradually introduced Acetyl L Carnitine starting with 500 mg, then worked up to her recommended dose of 1200 mg. She had a nasty cough during August / September that lasted 5 weeks and I wanted to introduce it slowly.

My daughter is now on the full dosage of Acetyl L Carnitine, 750mg in the morning, and 500 mg at 3pm in the afternoon.

We noticed she takes longer to fall asleep. She is usually asleep by 8pm and is now falling asleep at 9.30 pm – 10 pm some nights. I’m trying to work out if it was the ubiquinol or the Acetyl Lcarnitine keeping her awake.

This week, I now give her 700 mg Carnitine at 7am, and 500 mg at 12.30 pm , instead of 3.30 pm and this seems to have helped her fall asleep at her usual time. She is taking 100 mg of ubiquinol at 7.30 am with her breakfast, and 100 mg ubiquinol at 3.30 pm instead of 6pm. Do you think there is a sufficient gap and spread in time between the morning and afternoon doses of both Carnitine and ubiquinol?

I have read Aceytl L Carnitine can affect the thyroid. Is this a possible risk? Have you come across many people where the Carniitne has caused the thyroid problem. She is not due to have blood tests until June next year.

I have sourced magnesium , from Now foods and Jigsaw. I can get Jigsaw in Australia but the supply is limited as there is just one distributor. Is Jigsaw a better product than Now Foods? What dosage and when should I give magnesium to her.


Magnesium citrate, from Now foods - in powder form

http://au.iherb.com/Now-Foods-Magnesium ... 227-G / 1101

in tablet form
http://au.iherb.com/Now-Foods-Magnesium ... ablets / 691

in softgel form
http://au.iherb.com/Now-Foods-Magnesium ... gels / 22552


Jigsaw Magnesium has 2 options - one with and one without vitamin B vitamin b. Which one is Suitable?

https://www.naturallyreplenish.com.au/c ... free-240ct


this magnesium HAS vit B included

https://www.naturallyreplenish.com.au/c Symposium ... w-SRT


Thank you, and
kind regards

Willy
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Re: dosage for a 13 year old

Bericht door Willy » zo okt 16, 2016 2:44 pm

What an excellent result, she iss less tired and needs less sleep

That is what I think

Yigsaw is the best, take the one with B vitamins
Met vriendelijke groeten,

Willy Witsel

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