New, my story and questions.

[Aussie]

Hi Willie

I dont have the results with me but will check and post.

[Willy]

Oke, how long are you using Q10 now, because it is may be time for carnitine introduction

[Aussie]

Today will be the 16th day of taking Q10.

[Willy]

Oke start acetyl carnitie 3 x 500 mg a half hour BEFORE meal, so 1500 mg per day

Q10 during meal,were you eat a bit fat

[Aussie]

OK Thanks

[Willy]

In about a week we start with magnesium

[Aussie]

OK

[Aussie]

Hi Willie

Should I start magnesium now?

I know I still need to get vitamin D and proPNP information/resu;ts-haven't forgotten but and will post when I have information.

[Willy]

Q10 --> carnitine --> magnesium. YES! And last but not least D-ribose

Magnesium can have side effects such as diaree

Did you check your vitamin D blood level?

[Willy]

How are you doing at the end of ths year

Did you check your vitamin d blood leverls?

[Aussie]

I am doing better in the last week- my breathing has improved. I have only occasionally felt breathless or dizzy.

I have needed to put most things aside due to recent family bereavement so have not yet
yet checked my blood levels. I have a referral for new tests and should have results this week and will check and post vitamin D.

[Willy]

Good news!

Were are you now with introducing the protocol? Q10 carnitine magnesium?

Current dosis of the supplements?

Corrij the therapist on this forum will also look at your progress, so do not be confused if she response as well

[Corrij (therapeut)]

Hello Aussie,

Can you tell me what your bloodpressure is at this moment?

Dizziness or light-headedness when standing up occurs as a result of abnormal blood pressure regulation. Normally, when people stand, gravity causes blood to pool in the veins of the legs and trunk. This pooling lowers the blood pressure and the amount of blood the heart pumps to the brain. Low blood flow to the brain causes the dizziness and other symptoms. To compensate, the nervous system quickly increases the heart rate and constricts blood vessels, which rapidly returns blood pressure to normal before symptoms can develop. The part of the nervous system responsible for this compensation is the autonomic nervous system

Many disorders can cause problems with blood pressure regulation and lead to dizziness when standing up. Categories of causes include

Malfunction of the autonomic nervous system due to disorders or drugs
Decreased ability of the heart to pump blood
Decreased blood volume (hypovolemia)
Faulty hormonal responses

Do you know your potassium and natrium level?

Heart failure does not mean that your heart is going to stop at any minute. It means that your heart is not functioning as well as it should. Heart failure can be caused by many different conditions. Symptoms include fluid retention, breathlessness and tiredness.

Do you build up some fluid?

greetings,
Corrij

[Aussie]

Hello WIllie and Corrij

I started the Magnesium back on November 24 so have now been taking that for 2 weeks, 145.8mg per day, once per day. I'm also still taking the Acetyl Carnitane 500mg before meals,3 times per day;
CQ10, 2x 100mg once per day; and vitamin D, 1000IU once per day.

I don't know my blood pressure as it hasn't been taken for a while but will get it checked when I see my general physician(GP). I was due to receive a copy of blood tests but as they didn't arrive, I need to see my GP in person to collect these and will then also be able to post past vitamin D levels and check if potassium and nitrium levels have been taken previously.
I do have a referral for new vitamin D test and pro BNP test and will post results when available. Vitamin D tests are usually measure of 25-hydroxy-vitamin D. I will confirm details of results and normal range when I post.

I also have had a new symptom waking with leg cramps the last 3 days- I do get these occasionally but haven't had them for some months.
I do swell up and understand from my cardiologist this is probably fluid. The swelling tends to be all over my body rather than just my lower limbs, and is usually not pitting. I have had this symptom for several years - it first began when I was very ill and diagnosed with ME/CFS. At that time I was told by doctors that it wasn't fluid as I had no pitting. I sometimes wake feeling swollen, or if it happens during the day I can feel my body tighten sometimes and I can find my clothes too tight. I now tend to wear clothes with elastic waists etc in case as I can swell up a full size in clothes.
I hope that makes sense- I know I'm having trouble focusing today as I'm very tired but thats due to recent family events.

I will post when I have further information to answer your questions.

[Corrij (therapeut)]

Hello Aussie,

Do you have a fluidrestriction?
The amount of magnesium is to low, it should be 2 x 200 mg a day.

Less than 30% of U.S. adults consume the Recommended Daily Allowance (RDA) of magnesium. And nearly 20% get only half of the magnesium they need daily to remain healthy.

Do you drink carbonated beverages on a regular basis?

Most dark colored sodas contain phosphates. These substances actually bind with magnesium inside the digestive tract, rendering it unavailable to the body. So even if you are eating a balanced diet, by drinking soda with your meals you are flushing magnesium out of your system.

The average consumption of carbonated beverages today is more than ten times what it was in 1940. This skyrocketing increase is responsible for both reduced magnesium and calcium availability in the body.
Do you regularly eat pastries, cakes, desserts, candies or other sweet foods?

sugar and magnesium depletion

Refined sugar is not only a zero magnesium product but it also causes the body to excrete magnesium through the kidneys. The process of producing refined sugar from sugar cane removes molasses, stripping the magnesium content entirely.

And sugar does not simply serve to reduce magnesium levels. Sweet foods are known by nutritionists as “anti-nutrients”. Anti-nutrients like sweets are foods that replace whole nutritious foods in the diet, yet actually consume nutrients when digested, resulting in a net loss. Because all foods require vitamins and minerals to be consumed in order to power the process of digestion, it’s important to choose foods that “put back” vital nutrients, and then some.

The more sweet foods and processed baked goods you have in your diet, the more likely you are deficient in magnesium and other vital nutrients.

Do you experience a lot of stress in your life, or have you recently had a major medical procedure such as surgery?

Both physical and emotional stress can be a cause of magnesium deficiency.

Stress can be a cause of magnesium deficiency, and a lack of magnesium tends to magnify the stress reaction, worsening the problem. In studies, adrenaline and cortisol, byproducts of the “fight or flight” reaction associated with stress and anxiety, were associated with decreased magnesium.4

Because stressful conditions require more magnesium use by the body, all such conditions may lead to deficiency, including both psychological and physical forms of stress such as surgery, burns, and chronic disease.

4. Do you drink coffee, tea, or other caffeinated drinks daily?

coffee and magnesium loss

Magnesium levels are controlled in the body in large part by the kidneys, which filter and excrete excess magnesium and other minerals. But caffeine causes the kidneys to release extra magnesium regardless of body status.

If you drink caffeinated beverages such as coffee, tea and soda regularly, your risk for magnesium deficiency is increased.

5. Do you take a diuretic, heart medication, asthma medication, birth control pills or estrogen replacement therapy?

The effects of certain drugs have been shown to reduce magnesium levels in the body by increasing magnesium loss through excretion by the kidneys.

Do you experience any of the following:

Painful muscle spasms?
Muscle cramping?
Fibromyalgia?
Facial tics?
Eye twitches, or involuntary eye movements?
Neuromuscular symptoms such as these are among the classic signs of a potential magnesium deficit.

also,

Include fruits and vegetables that are high in potassium—especially avocado, banana, cantaloupe, oranges, dried plums (prunes), artichokes, potatoes, spinach, and squash.
Prepare sweet potatoes or regular potatoes with the skin on.
Consume non-fat dairy products such as milk, yogurt, or cottage cheese, which contain 300-400 milligrams of potassium per serving.
Enjoy potassium rich legumes such as soybeans, lima beans, and white beans.
Include lean meats such as salmon and other fish, chicken, and turkey—each provide over 400 milligrams of potassium for every 3 ounce portion.
While it is important to consume foods rich in potassium, be aware of hidden sources of sodium in canned vegetables and legumes. Be sure to drain all water from canned food before it is consumed.
Choose fruits and vegetables for a snack, or salt free nuts such as almonds—4 ounces of nuts can provide over 700 milligrams of potassium.

greetings,
Corrij