I'm sorry I don't know Dutch and will have to write in English.
I'm 56, female and have cardiomyopathy and a history of ME prior to that. I was also unwell when young.
I was first given a pacemaker as an emergency 10 years age. After blacking out, I was hospitalised and went into total heart block when tested on a treadmill.
Initially I was diagnosed with Lymes Disease but later tests were negative. I was unwell for several years after that and very sensitive to any pacemaker changes.
Approximately 6 years ago I had pericardial effusion and was found to have a thin septum.
I was monitored for several months by my cardiologist and eventually treated by a Chinese Dr with acupuncture and herbs and the effusion healed. (The only option my cardiologist had was open heart surgery to drain the fluid as its location precluded keyhole surgery.)
I am not on any medication as I tend to have low blood pressure.
Five years ago, my pacemaker was changed as the battery was low. As my ejection fraction was dropping and cardiomyopathy developing, the following year my pacemaker was changed to a biventricular pacemaker and a defibrillator. Following this I had phrenic nerve stimulation until the lead was repositioned in 2012. Last year the defibrillator lead broke and I had another 2 operations to remove and replace it. Since then ( last November) I have had pulmonary embolism which is now almost resolved. I have been on blood thinners; reacted to the first medication, including increasing weight rapidly (2 sizes in 4 days) and am still slowly losing weight, and was changed to warfarin which has now stopped. I am aware I am vitamin D deficient and have taken that and CQ10 or ubiqunol.
I think my ejection fraction has now increased to about 40 (was in the 20s) . I also have a heart murmur.
I also react to wheat and dairy, and eat a low GI diet.
I would like to start the protocol. I would appreciate your advise about using the MSM. I have always avoided medications containing sulphur, as I've been told I reacted to this as a child. However I have not had any issues with foods that contain sulphur.
I hope that makes sense. Thanks for any advise.
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june 2014 EJF 28% December 2014 I am doing better in the last week- my breathing has improved. I have only occasionally felt breathless or dizzy.