Baby girl, dilated miocardyopathy from Argentina, need help

[Aleta]

Hi Willy and Corrij!

I don´t know if any of you wrote a reply, I can´t see and I remember the last time you´ve posted an email came but couldn´t see the post. If you didn´t it ok.

Just checking in to tell you that we decided to continue with the new cardiologist. She is highly recomended and she likes a lot, also was very warm with Lara in the appointment.

She called me yesterday and toldme that in may 5 we should raise uo carvedilol, she thinks the dosis Lara is having now is effective but low, one pill of 3.125 a day in 2 takes, now it will be 3 times a day a half o 3.125. Then she wants to see Lara on May 7 too see how she handle the new dosis.

Food: Less mill and more vegetables! hated the coconut milk, I´ll try another recepie. BUT now she cached a cold and is not solid frenly this days, so a little more milk again. I hope we can get back to more solids and less milk in a few days.

I cached her cold too (and Sebastian, but first was Benjamin).

That´s how things are going around here.

I hope you are doing fine!

Regars,


Aleta.

[Willy]

I read the update. Question for the cardiologist: is de mitralis valve deficiency caused by the dilitation? If so does she think that if Lara's heart out grows (grows with here body while the dilitation stays the same) the dilitation, the deficiency will be reduced?

[Aleta]

Hi Willy!

We´ll ask that. It´s a point were some doctors contradict each other, some thinks that first comes the mitral defficiency, others the dilatation.

Lara has the echo to rule out coronary anomaly on May 4. May 5 we raise aup Carvedilol and May 7 we have appointment with the cardiologist, to see how Lara handles the new dosis, talk about the echo report she made, and the results of coronary anomaly. (finger cossed that the doctor can see clearly what is going on in the echo, and don´t have the need to make a MRI!!!)

Lara is feeling better and eating more solid again

Cheers

Aleta.

[Willy]

I read the update. Question for the cardiologist: is de mitralis valve deficiency caused by the dilitation? If so does she think that if Lara's heart out grows (grows with here body while the dilitation stays the same) the dilitation, the deficiency will be reduced?

ask this when you see your cardiologist!

[Willy]

Keep on trying which foods she likes. Look at my suggestions some pages back on this forum

Do not forget the omega3 enriched eggs, try to make something from it what she likes

[Aleta]

Hi willy!

We don´t have to many trands in Argentina of enriched omega 3 eggs, I´m trying to find out were to buy them still. Even so, I´m puttin yold almost to everything and chia seeds.
Now the cold is leaving, but we have 2 new grinders coming out! so hard times for eating!

I´ve made some homemade chicken nuggets (not a big succes, but at least she eated some), burgers of eggplant, zucchini, rice and chia seeds, also lentils, tomato, black beans and chia burgers, and butter beans, black beans and chia burgers. Those was a big success I have a lot in the freezer.
I´m not sure if I can give her sesamo seeds since they have a lot of calcium...
no success with smoothie but I´ll keep trying.

I´m trying to mix foods that you suggested with the ones we have here, some products aren´t easy to find.

And I´m searching for a trusted farm to buy chicken because in regular places they have homones growned chicken!

We got from the new cardiologist a list with trands of low sodium foods wich has been very usefull.

It´s a luck that I like cooking!

Cheers

Aleta.

[Willy]

And meat does she like that?

[Aleta]

Not at all (yet)
Tonight I´ll try liver prosseced and mixed with another tastes and make a burger since she likes the texture.

She liked milanese, maybe I could do that too.

I don´t know if she does not like the taste or the is that she still hasen´t all her molars and find to hard to chew...

[Aleta]

One thing I see since she is having less milk is that she is thiner. I don´t know if I see this because she is taller or what, but I´m scared that I´m not making a good calories diet without formula... we´ll see in two weeks whe we see the pediatrician and see her weight...

[Willy]

You have MILKFOBIA this is realy serious!!

Is there a specialist in Argentina who can treat MILKFOBIA

Or is it an incurable disease?

[Aleta]

Is a difficult disease, you have to understand that we have a lot of cows and we don´t know what to do with them!

[Willy]

That is not so difficult.

Choose for Lara and not for the cows

Imagin that Lara stays on milk until adulthood. Do you think that this is healthy?

No it is not! So it is now, not healthy

Milk is the wrong nutrition

Eat the cows, not drink them

[Aleta]

I know..................... Liver was no seccesfull again, she ate some, but not to much today ´ll try milanese.

I´ll make this work. All of this

[Willy]

It will take a while

That is unavoidable

Keep on trying new healthy foods and look at my healthy not healthy list

[Aleta]

Yes, besides that, she has some baby habits still (she is 15 months old), she wakes early in the morning crying for her bottle, and in the night she won´t sleep untill she has it. During day is easier, I offer some some meal or fruits and she is fine.
I´ll wait her, she is growing