Baby girl, dilated miocardyopathy from Argentina, need help

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » za aug 09, 2014 4:10 pm

I tried skype but that failed too

Try to setup a FaceTime to my iphone +31641490894

or skype me on wwitsel

both devices are on and available
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » za aug 09, 2014 5:22 pm

I spoke with you again for one hour

This was the result of the discussion

500mg carnitine is fine, you heave to give this on een EMPTY stomach

150 mg Q10 powder is not very bio available to the body. A gel, oil based product would be better

Ask your doctor about this, express your concerns about a powder based product and use my information in my earlier post on this

I expect that your doctor knows this and therefor has raised the doses to 150 mg,

Children with cardiomyopathie have a higher risk of airway infections. I want to give her vitamin D to protect her. I want to know her blood level vitamin D

You use supradyn for infants for Lara, I want de product specification to look what is included and houw much

And your most important message was

The mitralis valvue problem is a consequense and not the cause of the cardiomyopathy

After 2 - 3 weeks we start the magnesium. Ask the metabolic doctor if she wants to prescribe that as well.

I can understand that she does not want to give Lara d-ribose. That is a more exotic supplement. A view doctors know about it
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
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toneel
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door toneel » za aug 09, 2014 6:08 pm

Hello Aleta,
Very good you found Willy and his protocol.
My little son was also diagnosed with cardiomyopatie and because of the supplements he lives a normal live now.
You must not give up if the results are not immediatly better, it needs some time.
I wish you the best

greetings from Neeltje
groeten Neeltje
een hoopvolle moeder

Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » za aug 09, 2014 6:12 pm

Thanks soooo much for your time!!!
here is the prospect in spañish, of supredyn hummmm
http://www.supradyn.com.ar/html/documen ... fgotas.pdf

and I hope this is good translation:
https://translate.google.com.ar/transla ... edit-text=


Lara takes 20 drops a day.

Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » za aug 09, 2014 6:14 pm

Toonel, thank you for your words, every litlle thing counts to bring me hope! Iám meeting so many wonderful people

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » za aug 09, 2014 8:39 pm

If you want to discuss magnesium with the metabolic doctor you could ask her email and send this link to her

http://cardiomyopathie-hartfalen.pillie ... #Magnesium

This is a direct link to my magnesium research, but....................

Also to all my 500+ research articles I use for the protocol

This will give your metabolic doctor maybe a feeling of professionalism see can trust

Maybe she is willing to help you also with magnesium

And maybe also d-ribose

If she does not want to cooperate and is not willing to let you use her email, do not worry we will find a way to get magnesium to Lara in a safe way
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » di aug 12, 2014 7:33 am

Hi willie i'm sebastian and I was looking for the bio..... article that you mention last time, but I can't find it.
Could you please help me o reach this data?

Thanks in advance
Sebastian

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » di aug 12, 2014 10:21 am

Hello Sebastion can you tell a little bit more about this document you want to read! At the moment I do not know what document you mean.
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » wo aug 13, 2014 7:10 am

Hi willi, tomorrow (today when you read this) we have pediatrician appointment, maybe we could ask for the magnecium prescription, what dosis do you recomend?
The document Seba can't find is one you mencioned about wich q10 the body absorves better, if your can please send a link.
Have a nice midle week!

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » wo aug 13, 2014 10:37 am

Willy schreef:In The Netherlands I do not advise powder based Q10

This is the reason why I do this

According to the results of bioavailability studies, oil-based (e.g., soybean oil) CoQ10 contained in a soft gelatin capsule is absorbed much more efficiently than conventionally marketed, powder-based oral dosage forms

http://www.medscape.com/viewarticle/409742_8

Thus, the data from both the trials show that Q-Gel, the new solubilized form of CoQ10, is vastly superior to typical commercially available preparations of CoQ10. This means much lower doses of Q-Gel will be required to rapidly reach and maintain adequate blood CoQ10 values than with any of the other currently available products.

http://www.ncbi.nlm.nih.gov/pubmed/9565826

Solubilized formulations of CoQ10 (both ubiquinone and ubiquinol) have superior bioavailability as evidenced by their enhanced plasma CoQ10 responses.

http://www.ncbi.nlm.nih.gov/pubmed/17482886
here are the documents on bio availability. Bio availability means how much of the Q 10 will be absorbed by the body
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » wo aug 13, 2014 10:54 am

I advise 200 - 400 mg magnesium to an adult like me 70 kg

That means 2,9 - 5,7 mg / kg / day

Lara is at the moment around 8 kg tha dosis for her is

22,8 - 45,7 mg / day

So a dosis between 30 - 50 mg is fine per day. That means 2 x (15 - 25) mg because it is better to devide the daily doses.

The magnesium should be binded too an amino acid for optimal absorbtion (bio availability)

So for instance magnesium citrate is good

Sometimes doctors subscribe magnesium oxide. DO NOT USE THIS FORMULAE

This will not be absorbed

Magnesium sometimes gives diaree after a week or so. In that case you should take 50 % of the doses
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » wo aug 13, 2014 11:04 am

https://translate.google.com.ar/transla ... edit-text=

The Supradyn Child you use for Lara is extremely low in doses. Therefor I will ignore this supplement in my calculations.

It also contains the wrong vitamin D (D2). So I need lara's vitamin D blood value to calculate how much vitamin D3 she needs
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » wo aug 13, 2014 6:31 pm

we are not give the supradyn, has such an ugly taste that she vomits every time. I´ll ask about her levels of vitamin D, and bmp, the only number we got is from two month ago, that number might change or we tasted in a few months?

Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Aleta » wo aug 13, 2014 6:41 pm

the last link ask for a password :(

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need

Bericht door Willy » wo aug 13, 2014 6:43 pm

Vitamin D bloodtest from an old report is fine

It is to early for an improvement of Pro-BNP

See my time schedule in earlier posts
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

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