We had our pediatrician and cardiologist check up.
Ped researched about Lara's hand (the missing bone) and it has naothing to do with DCM. We have to follow the develepment of the bone, but for now is nothing serious.
Lara's weight is still 14kg but she grew 3 cm in four months, so everything is ok.
Lara's function and heart size are the same as last time (but Lara is bigger), so doc told us to stop Carvedilol. Seh was having 3,125mg at day, half in the morning and half at night. We stoped tha night half, and in one month the other half. Back in 3 months.
So, heart meds, only Enalapril. This is very happy and scary at the same time!
Besides this, it happened something crazy... I still having rehab for my arm, and i've met in the office a children heart surgeo, it turns out he is the chief of the first cardiologist that Lara has. We talked about Lara and he said that probably she born with a mitral valve desease which led to miocarditis, and that is why after the mitral valve surgery she got so good. So tha main desease would be the valve and not DCM. Of cours this is something he told without looking an acho or see her, but he was going to check Lara's history. In case he tells me something new, I'm gonna talk about this to our cardiologist to see what she thinks. He knows her and the surgeon who made the valve surgery of Lara, Everyone knows each other! So crazy, I'll let you know if I know something more.
Lara turned FOUR years last week, can you believe it??? I'll never stop to thank you!
Best and warm regards,