do not understand thisAleta schreef:the last link ask for a password
Baby girl, dilated miocardyopathy from Argentina, need help
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Re: Baby girl, dilated miocardyopathy from Aregentina, need
Met vriendelijke groeten,
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Re: Baby girl, dilated miocardyopathy from Aregentina, need
ask for a user name and a password to enter the page
https://login.medscape.com/login/sso/ge ... zg=&ac=401
https://login.medscape.com/login/sso/ge ... zg=&ac=401
Re: Baby girl, dilated miocardyopathy from Aregentina, need
should we ask for D Ribose prescription too?
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- Lid geworden op: di okt 09, 2001 3:00 am
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Re: Baby girl, dilated miocardyopathy from Aregentina, need
Stupid Medscape system forget about the pageAleta schreef:ask for a user name and a password to enter the page
https://login.medscape.com/login/sso/ge ... zg=&ac=401
Met vriendelijke groeten,
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
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- Verslaafd aan het forum
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- Lid geworden op: di okt 09, 2001 3:00 am
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Re: Baby girl, dilated miocardyopathy from Aregentina, need
No, start the magnesium discussion firstAleta schreef:should we ask for D Ribose prescription too?
D-ribose is too exotic
Met vriendelijke groeten,
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Re: Baby girl, dilated miocardyopathy from Aregentina, need
No prescription for magnasium, the pediatrician said that is gonna get diarrea and lost the meds she is taken with it. As we insist, the metabolism doc is gonna Mail us and see if we can start with los dosis.
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Re: Baby girl, dilated miocardyopathy from Aregentina, need
I calculated the doses already.
The doctor is wrong and right about diaree
If you give Lara magnesium oxide she will get diaree so she is right
But we do not, so she is wrong
We will give her magnesium bonded (coupled) to an amino acid
So we wait what the metabolic doctor has to say about it.
If he rejects magnesium I will provide you the correct information why you should give her magnesium
Then, if you agree with me, we will look for a good product
DO NOT GIVE HER MAGNESIUM OXIDE IF THE DOCTOR PRESCRIBES IT NOT EVEN IN A LOW DOSES
The doctor is wrong and right about diaree
If you give Lara magnesium oxide she will get diaree so she is right
But we do not, so she is wrong
We will give her magnesium bonded (coupled) to an amino acid
So we wait what the metabolic doctor has to say about it.
If he rejects magnesium I will provide you the correct information why you should give her magnesium
Then, if you agree with me, we will look for a good product
DO NOT GIVE HER MAGNESIUM OXIDE IF THE DOCTOR PRESCRIBES IT NOT EVEN IN A LOW DOSES
Met vriendelijke groeten,
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Re: Baby girl, dilated miocardyopathy from Aregentina, need
hi Willy. the answer about q10 powder was "there is no other way in Argentina, if you know some other presentation let me know", and about the magnesium said "is long to talk about this via email, lets talk in the next appointment", so, i´ve call the hospital and ask for appointment, they give me august 28, and email her to ask if she can see us earlier ( that is my boy birthday; don´t wanna leave him that day), still no answer. we have time to start with magnesium anyway?
Lara was a little bit agitated when she drank her bottle of milk last night and today, I´m very worry
this was not happening. the rest is fine, she gain weight and her motor skills are improving every day, but worries me that she can´t handle the physical chalenge of growing. it seem like the pediatrician give her bad luck, he ask us if she was agitated when she drink and we said "no", and after that she was! he saw her very good, and I ask if with seeing her that good we can make a proyection and he said "it´s a day by day", aaagh. so frustrating. going nuts today.
Lara was a little bit agitated when she drank her bottle of milk last night and today, I´m very worry
this was not happening. the rest is fine, she gain weight and her motor skills are improving every day, but worries me that she can´t handle the physical chalenge of growing. it seem like the pediatrician give her bad luck, he ask us if she was agitated when she drink and we said "no", and after that she was! he saw her very good, and I ask if with seeing her that good we can make a proyection and he said "it´s a day by day", aaagh. so frustrating. going nuts today.
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Re: Baby girl, dilated miocardyopathy from Aregentina, need
Maybe she had just a bad day.
I think that the metabolic doctor means that she can only prescribe q10 powder in Argentina. Sire you can buy Q10 soft gels in your country
Do this google search
cápsulas de gel de compra q10
You can mail order a gel based 60 mg Q10 based product and show it to her next visit
But........
I told you the 150 mg powder is fine, the high doses counteracts the low vio avalability
Try to find a magnesium connected to an amino acid on the internet and mail me the specifications.
We have time enough
Is lara now on the carnitine and the Q10?
I think that the metabolic doctor means that she can only prescribe q10 powder in Argentina. Sire you can buy Q10 soft gels in your country
Do this google search
cápsulas de gel de compra q10
You can mail order a gel based 60 mg Q10 based product and show it to her next visit
But........
I told you the 150 mg powder is fine, the high doses counteracts the low vio avalability
Try to find a magnesium connected to an amino acid on the internet and mail me the specifications.
We have time enough
Is lara now on the carnitine and the Q10?
Met vriendelijke groeten,
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Re: Baby girl, dilated miocardyopathy from Aregentina, need
yes 150 mg q10 and 500mg of L Carnitina from Albicar brand (since yesterday, before we got the compound with a preparation that we have to give her a lot, we didn´t reach the 500mg/day), she is doing fine, maybe one more dipper to change but not to much.
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- Lid geworden op: di okt 09, 2001 3:00 am
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Re: Baby girl, dilated miocardyopathy from Aregentina, need
So from the 13 of august she is using the correct doses q10 and carnitine, I will add that to her file
See my post on how to check with google for a gel based Q10
I am going to bed now
See my post on how to check with google for a gel based Q10
I am going to bed now
Met vriendelijke groeten,
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Re: Baby girl, dilated miocardyopathy from Aregentina, need
Willy, L Carnitine can decrease appetite? or maybe she may feel full? it maigh gain or lose weight?
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Re: Baby girl, dilated miocardyopathy from Aregentina, need
This is what Sebastian wrote to me via emailSebastian schreef:Hi Willie, I;m writing you because Lara is eating less then usual, and this last days it was very difficult to give her milk, her regular dosis is 600 ml and she is almost reaching the 400ml, somethimes 450 ml.
Could be something with the carnitine dosis? Or just her condition?
We are trying to find explanations of Lara's eating behaviors besides her heart condition, maybe there is not another thing, I don't know, maybe you do.
Thanks in advance,
Sebastian
Met vriendelijke groeten,
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
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- Verslaafd aan het forum
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- Lid geworden op: di okt 09, 2001 3:00 am
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Re: Baby girl, dilated miocardyopathy from Aregentina, need
You have to discuss this with your doctor also!!
Carnitine has as a side effect diaree, not loss of appetite
How many ml carnitine are you giving Lara?
Maybe she is not thirsty any more because she is drinking the carnitine fluid
Carnitine has as a side effect diaree, not loss of appetite
How many ml carnitine are you giving Lara?
Maybe she is not thirsty any more because she is drinking the carnitine fluid
Met vriendelijke groeten,
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina
Willy Witsel
Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina