Baby girl, dilated miocardyopathy from Argentina, need help

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
Willy
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Za Dec 16, 2017 3:09 pm

Aleta, Irna needs some help and get her priorities right

viewtopic.php?f=65&t=11678&p=98013#p98013

please help her
Met vriendelijke groeten,

Willy Witsel

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Willy
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Za Dec 16, 2017 6:15 pm

Why Vitamin D?

See meta analyses https://www.ncbi.nlm.nih.gov/pubmed/26415519
Met vriendelijke groeten,

Willy Witsel

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Aleta
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Aleta » Zo Dec 17, 2017 4:27 am

Ok, so with that calculation I have to give her 2,94gr at day, we are still ok :)

It's been a while since we don't do a vitamine D dosage, do you want me to ask for it in the next blood work we have to do?

Best regards

Aleta.

Willy
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Ma Dec 18, 2017 6:23 pm

Aleta schreef:Ok, so with that calculation I have to give her 2,94gr at day, we are still ok :)

It's been a while since we don't do a vitamine D dosage, do you want me to ask for it in the next blood work we have to do?

Best regards

Aleta.
Yes
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Willy
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Lid geworden op: Di Okt 09, 2001 3:00 am
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Ma Dec 18, 2017 6:26 pm

Ok, so with that calculation I have to give her 2,94gr at day, we are still ok

3 gram is oke per day
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Aleta » Do Jan 18, 2018 6:45 am

Hi Willy, I hope you're doing well.

I Don't know how to paste an image here so I'll email you.
The picture is an X ray of Lara's hands. She has a weird bone in her wrist, so I took her to a traumatologist and she orderes an x ray.
The thing is that a part of the ulna bone in misisng and one of the little ones, de scaphoid bone is not there. The doctor thinks that this could be a sequel of an infection and that we have to follow her and see how that bone grows.
I asked to our ardiologist if this could be the infection that might caused the miocarditis and she said that no.
To you think that this might be related to her heart in some way?

I'm terrebly worried, because this could mean a surgery in the future, I pray not.

Jan 22 we have pediatrician appointment, 23 LARA'S 4 BIRTHDAY! and 29 Cardiologist check up (fraking out already)

Best regards.

Aleta.

Aleta
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Aleta » Wo Jan 31, 2018 5:14 pm

Hi Willy!

We had our pediatrician and cardiologist check up.
Ped researched about Lara's hand (the missing bone) and it has naothing to do with DCM. We have to follow the develepment of the bone, but for now is nothing serious.
Lara's weight is still 14kg but she grew 3 cm in four months, so everything is ok.

Cardiologist:
Lara's function and heart size are the same as last time (but Lara is bigger), so doc told us to stop Carvedilol. Seh was having 3,125mg at day, half in the morning and half at night. We stoped tha night half, and in one month the other half. Back in 3 months.
So, heart meds, only Enalapril. This is very happy and scary at the same time!

Besides this, it happened something crazy... I still having rehab for my arm, and i've met in the office a children heart surgeo, it turns out he is the chief of the first cardiologist that Lara has. We talked about Lara and he said that probably she born with a mitral valve desease which led to miocarditis, and that is why after the mitral valve surgery she got so good. So tha main desease would be the valve and not DCM. Of cours this is something he told without looking an acho or see her, but he was going to check Lara's history. In case he tells me something new, I'm gonna talk about this to our cardiologist to see what she thinks. He knows her and the surgeon who made the valve surgery of Lara, Everyone knows each other! So crazy, I'll let you know if I know something more.

Lara turned FOUR years last week, can you believe it??? I'll never stop to thank you!

Best and warm regards,

Aleta.


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