Baby girl, dilated miocardyopathy from Argentina, need help

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
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toneel
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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door toneel » do apr 02, 2015 10:28 pm

Hello Aleta,

We already talked with eachother on facebook.
I read the last notes on this forum.
I hope really hope that the other cardiologist specialist can give more details and more hope.

Enjoy your little girl and your Benjamin.
Stay strong.
Love Neeltje
groeten Neeltje
een hoopvolle moeder

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Willy » do apr 02, 2015 10:38 pm

What she don't get is if the calcium is the problem with magnesium, why give her almond milk which has a lot of it.
Corrij do you know if almond is rich in omega-6, What I think

Then this is completly wrong because omega-6 is inflammatory
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Willy Witsel

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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Willy » do apr 02, 2015 10:52 pm

Oke I chekced almonds. They are high in omega-6 so off limit for Lara becuase they are inflammatory

Lara needs more omega-3 in fish like salmon or tuna

Omega-3 is anti-inflammatory

And good for here heart rithm
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Willy Witsel

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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Aleta » do apr 02, 2015 11:08 pm

Ok, no almond or soy milk. I read something about coconut that wouldn´t be good for Lara but I can´t remember what.

About cow´s milw she was drinking four bottles at day and now three. I´ll see if she can miss the one at middle of the day and stay in two.

The milk she drinks has 89 mg of calcium/100 ml of milk. Every bottle she drinks has 170 ml, so if she get used to drink two and eat more that would be ok, right?

About magnesium she is having %30 of one 125 mg jigsaw pill since a long while ago and there is no diaree.
I have to call saturday morning to talk to the biochemistry to see if the Qo10 was mess with water.

Sodium already reduced.

The pediatrician said that she is not afraid of Lara havin sugar in a razonable amount.

Omega 3 is in fish oil? lara is not having that. Omega 3 works like enalapril? Enalapril was raised at double. :(

All of this could be because Lara was in to low meds dosis and her heart is more damending?

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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Willy » do apr 02, 2015 11:22 pm

Bed time here.

We have to make a program to stop with milk
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Willy Witsel

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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Willy » za apr 04, 2015 12:10 pm

Milk increases the risk of type 1 diabetes and the official statement of The American College of Allergy, Asthma and Immunology is: start solid food after six months, with a schedule for specific foods

Milk increases the risk for diabetes type 1

http://www.ncbi.nlm.nih.gov/pubmed/?term=18503496

http://www.ncbi.nlm.nih.gov/pubmed/?term=8112184

American College of Allergy, Asthma and Immunology

Pediatricians and allergists should cautiously individualize the introduction of solids into the infants' diet. With assessed risk of allergy, the optimal age for the introduction of selected supplemental foods should be 6 months, dairy products 12 months, hen's egg 24 months, and peanut, tree nuts, fish, and seafood at least 36 months. For all infants, complementary feeding can be introduced from the sixth month, and egg, peanut, tree nuts, fish, and seafood introduction require caution. Foods should be introduced one at a time in small amounts. Mixed foods containing various food allergens should not be given unless tolerance to every ingredient has been assessed.

http://www.ncbi.nlm.nih.gov/pubmed/?term=16892776

whole article http://www.sipps.it/pdf/algh2006/Paravati1.pdf

Cow's milk is a poor source of iron and should not be used as the main drink before 12 months, although small volumes may be added to complementary foods. It is prudent to avoid both early (<4 months) and late (>or=7 months) introduction of gluten, and to introduce gluten gradually while the infant is still breast-fed, in as much as this may reduce the risk of celiac disease, type 1 diabetes mellitus, and wheat allergy

http://www.ncbi.nlm.nih.gov/pubmed/18162844

LARA SHOULD ALSO BE CHECKED FOR IRON STATUS
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Willy Witsel

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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Willy » za apr 04, 2015 12:23 pm

If Lara gets 3 x bottle milk reduce this to 2 x to create a negative callory balance

This will make here hungry which helps introducing solid foods

Do this 1 - 2 days BEFORE introducing the new food. That she is a little bit hungry or not in a good mood is not important. We had hunger for millions of years

Introduce fruits and berry's from woods like

strawberries blueberries raspberries blackberries

They contain a lot of fiber and vitamins and are low on sugar

You can make a smoothy with them with a yoghurt or just make a smoothy fruit drink with a bit water

Yoghurt is a fermented milk that contains a lot of healthy bacteria. If you want to make yoghurt yourself then I will Teach you how to do that. It will make yoghurt even more healthier

Try to find things she likes
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Willy Witsel

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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Aleta » za apr 04, 2015 8:00 pm

Hi Willy!

We would be very much apriciate not to not have diabetes isues!

Lara is already in 3 bottles, today gonna start trying to give her 2. She is not in a very good mood with the change but she is esting a little more solid. I hope this way she keeps gaining weigh, 400 gm in 1 1/2 moth is great for her age and the big activity she has, and the CM.

Everytime I give her new food that can cause allergy i try once at a time. She is not fruit frendly, she is all about flour, vegetables mixed with eggs, and soy burger. oh and PUDIN, but that has ceam wihc it has fat, so now I´m making my own, but she is not very into it yet :(

No sings of allergies or celiac.

About the yogurt, it has a lot of calcium too, one in the niddle of the day? she is not very fun but if she is hungry maybe we got luck.

Next month when we make the BNP test will do iron to. She is having Iron supplement until she weighs 10 kg. I´m not sure about the meat, in argentina everybody thinks is healthy, but i do not. Specially for Lara that can´t eat fat. Doctors recomends meat :( if you have any thouth about it it will welcome.

Have a nice weekend and thank you as always!

Aleta.

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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Corrij (therapeut) » zo apr 05, 2015 1:10 pm

Hello Aleta,

I can`t help it, but i want too be sure that you know the facts about milk.
Let’s break milk down into its many parts to see what we are actually getting.
What is lactose?

Lactose is the type of sugar found in all kinds of mammal milk—from human breast milk to cow’s milk to camel’s milk—the lactose is exactly the same. Lactose is a low glycemic index carbohydrate. Each lactose molecule is made of two individual sugar molecules–one glucose molecule linked to one galactose molecule. We can absorb glucose and galactose easily, but we can’t absorb them when they are linked together as lactose. So, when we are babies, and dependent on mother’s milk, we have a special enzyme in our intestines called lactase, which breaks the link and frees up the glucose and galactose, so that we can absorb them. Lactase is like a little pair of chemical scissors that cuts the lactose in half.

Between the ages of two and five, most humans lose most or all of their ability to produce lactase, so most of us are lactose intolerant to some degree. Before agriculture was born (at most 10,000 years ago), all humans naturally lost the ability to digest milk in early childhood, after weaning from breast milk. So, all of our hunter-gatherer ancestors were lactose intolerant. However, once people started eating dairy products regularly, a genetic shift occurred that allowed some people to keep the ability to digest milk into their adult years. These people are called “lactase persistent.” They essentially evolved the ability to digest milk over time. However, most of us still lose that ability, so by the time we are in grade school, we lack enough of the lactase enzyme to properly digest lactose. Without lactase, the lactose can’t be broken down and absorbed, so it continues on down the gastrointestinal tract, until it eventually encounters intestinal bacteria, who very much enjoy dining upon it. Unfortunately, they don’t break it into glucose and galactose for us. Instead, bacteria ferment the lactose, releasing lactic acid and gases in the process. Not only will these gases make you unpopular at parties, but they can

Caseins
The casein portion of milk is protein-rich and contains most of milk’s calcium. Caseins are very sticky and clump together (casein has historically been used as the active ingredient in wood glue). Caseins are actually designed to form a clot in the stomach. Why in the world would a newborn want a lump of protein in its stomach? It’s ingenious, really—if the proteins don’t stick together, they get rapidly digested and absorbed. Digestive enzymes take longer to chew their way into the middle of the clump; casein is essentially an extended-release source of protein that is gradually broken down over a number of hours, rather than all at once.

Caseins are very difficult to digest compared to wheys, and cow’s milk contains a LOT more casein than human breast milk. Cow’s milk contains 3 to 4 times as much protein per cup compared to human breast milk because—hello—it’s designed to grow a baby cow, which is SO much bigger than a baby human and grows a LOT faster. A newborn calf can weigh between 40 and 100 pounds, depending on the breed, and gains about 1-1/2 pounds per day, so it needs a LOT more protein. Also, the ratio of caseins to wheys is very different in cow’s milk vs. human milk:

Cow’s milk protein ratio: 80% caseins and 20% wheys

Human milk protein ratio: 40% caseins and 60% wheys*

Whey Proteins

Compared to caseins, whey proteins are softer, finer, much more easily digestible proteins. These proteins include lactoferrin, albumin, and lactalbumin. The whey portion also holds most of the milk’s lactose, as well as the IgA antibodies necessary to pass immune protection from mother to baby.

Human whey proteins are also different from cow whey proteins. The primary whey proteins in human milk are lactoferrin, albumin, and lactalbumin, whereas the dominant whey protein in cow’s milk is lactoglobulin.

cause you significant bloating, pain, and/or diarrhea, as well.

MILK FATS
Saturated Fat
Approximately 2/3 of the fat in whole milk is saturated fat; the rest of it ismonounsaturated and polyunsaturated fat.

The saturated fat in milk fat is called butterfat, and is one of the most complicated mixtures of fats found in nature. The types and relative amounts of saturated fats in milk depend heavily on what the cow is eating, but the predominant saturated fatty acids in butterfat are usually: oleic acid, palmitic acid, and myristic acid.

Omega-3 Fatty Acids
The amount of omega-3 poly-unsaturated fatty acids in milk varies greatly, and depends on what the cow is fed. There are 3 essential omega-3 fatty acids: ALA, EPA, and DHA (see also FATS). Cow’s milk contains varying amounts of ALA, depending on what they eat. Grass-fed cows give milk that is higher in ALA.

Cow’s milk does not contain the other two omega-3 fatty acids, EPA or DHA. DHA is critically important for brain/retina development of the human baby’s brain, which is very different from a baby cow’s brain. Human breast milk does contain DHA, with the amount varying greatly depending on the mother’s own diet. Women eating traditional whole foods diets have much higher levels of DHA in their breast milk than women who eat a typical Western diet.

Trans Fat
You may be aware that trans fats are considered generally very unhealthy, particularly for the heart. However, the health risks associated with trans fats were connected to the trans fats found in industrially-produced hydrogenated vegetable oils. What many people don’t know is that there is a natural source of trans fats in the world— ruminant animals (animals with more than one stomach). Bacteria in the cow’s digestive tract turn unsaturated fatty acids, such as linoleic acid and alpha-linolenic acid, into trans fatty acids. These can then be absorbed by the cow, and incorporated into the cow’s milk and meat.

There are two naturally-occurring trans fatty acids in cow’s milk: conjugated linoleic acid (CLA) and vaccenic acid (VA). About 2-5% of the fat in dairy products consists of these natural trans fats. One cup of standard whole milk contains about 0.2 grams of trans fat. Note: pastured/grass-fed milk contains about twice as much CLA as grain-fed milk does.

CALCIUM and bone health
Cow’s milk contains about 1 gram of calcium per liter, about 4 times as much as human breast milk. There is nothing special about the calcium in milk; it is just as easily absorbed as other forms of calcium from other sources. People eating a typical Western diet absorb only about 40% of the calcium they consume.

MILK HORMONES
How does cow’s milk grow a cow, and why should you care?

Job number one of all mammal milks is to make baby mammals GROW. To grow, you need proteins, fats, and carbohydrates to build body parts, and milk has all of those ingredients. However, just pouring ingredients into an animal doesn’t cause growth unless the hormonal conditions are just right. Think about it this way: you can pour all the food you want into a 45 year old woman but she will NOT get any taller.

How does the body know what to do with all the nutrients you are pouring into it? Should the nutrients be stored for later use? Burned for energy? Or turned into new cells? What types of cells? Bone? Muscle? Liver? All of these decisions are made by HORMONES. So, Mother Nature not only gave milk all the ingredients needed for growth, she also included the directions about how to grow, when to grow, and what parts should grow. These directions come in the form of hormones called growth factors. As we digest the caseins and whey proteins in cow’s milk, they are broken down into growth factors that send signals to our body. Please note that I am not referring here to added bovine growth hormone (added BGH). I am referring to the naturally-occurring hormones in cow’s milk that are supposed to be there for the sake of the baby cow. This is why no milk can ever be labeled “free of growth hormone”—all cow’s milk, even from the healthiest, most humanely-treated, organically-raised, grass-fed cow, contains growth hormones.



Does cow’s milk affect human hormones?

Whey proteins in milk cause our insulin levels to rise. In fact, milk (which has a low glycemic index and therefore doesn’t cause our blood sugar to spike); causes our insulin levels to rise more than pure sugar does. I know that most of us think of insulin simply as the hormone that keeps our blood sugar in check, but this is really not its primary purpose. Insulin is the mother of all growth hormones; it is intimately involved with all aspects of growth (see: Carbohydrates).

Whey proteins in milk also signal our body’s Growth Hormone (or GH; also known as somatotropin) levels to rise. GH is critical for growing taller.

Casein proteins in milk tell our body’s IGF-1 levels to rise by as much as 30%. IGF-1 stands for “Insulin-like Growth Factor-1.” Cow’s milk also contains some IGF-1, which is identical to human IGF-1, but we are not sure if cow IGF-1 is absorbed by people.

GH and IGF-1 work together to grow longer bones and larger organs. They tell cells to multiply. Humans produce this same combination of hormones during puberty, which is why teenagers go through a dramatic growth spurt.

Cow’s milk also contains the pre-hormone 5-alpha-pregnanedione, which can be converted into dihydrotestosterone. Dihydrotestosterone is associated with risk for prostate cancer as well as breast cancer.

MISCELLANEOUS BIOACTIVE PEPTIDES IN MILK
Proteins in cow’s milk and human milk break down during digestion into smaller pieces called “peptides”, some of which have special biological functions.

Peptides with opioid (narcotic) properties

Some milk peptides have natural opioid properties; opioids you may be familiar with include narcotic medications such as morphine and codeine.

So, do milk opioids act like narcotics in our bodies? The natural opioids present in milk are apparently very weak, and may only have effects on the lining of the digestive tract, since it is unclear if they can be absorbed into the bloodstream, let alone cross the blood-brain barrier and make it into the brain. As you may know, opioids act to slow down the activity of the gastrointestinal tract (which is why narcotics tend to cause constipation), so it is possible that some sensitive people may experience this as a side effect of milk products. Some people point to the fact that there are opioid peptides in milk to support the notion that dairy products are addictive and sedating; however, there are no human studies to help us understand the role that these opioids play in our bodies.

Does milk cause iron deficiency anemia?
In babies less than 12 months old, cow’s milk increases the risk of iron deficiency. There are several theories about why this is. One theory is that the proteins in cow’s milk interfere with the absorption of iron from the baby’s intestines. Another theory is that, in about 40% of babies, cow’s milk causes microscopic bleeding from the baby’s digestive tract, and since blood contains iron, the baby loses a little bit of iron every day. This is one of the reasons why parents in the U.S. are advised not to feed cow’s milk to babies under one year of age.

BOTTOM LINE ABOUT DAIRY PRODUCTS:
Milk is not necessary for human life or health, and is therefore optional.

Babies under one year of age should not drink milk because it increases their risk of iron-deficiency anemia.

Mothers who drink milk during pregnancy are more likely to have larger babies

Children under 5 who drink more milk tend to be taller, but this is not due to the calcium in milk.

Dairy products do not strengthen children’s bones.

Adults who drink milk do not have a lower risk of osteoporosis.

Milk whey proteins raise our levels of insulin and other growth hormones, which may increase our risk for a variety of health problems.
Many people are sensitive to or allergic to dairy products and feel better when they avoid them. Areas affected tend to be the gastrointestinal tract, skin, and upper respiratory tract. The most common problems include:

lactose intolerance
constipation
reflux
sinus congestion
recurrent upper respiratory tract infections
asthma
acne
eczema
severe constipation, especially in children under 3 yrs of age
My opinion about dairy products:
There is plenty of strong evidence that dairy products can cause health problems and no good evidence that dairy products are beneficial to health, therefore, eating them for health reasons doesn’t make sense to me.

As with most foods, if you enjoy them, and they don’t seem to bother you, then you may choose to include them in your diet. However, the only way to know if they bother you is to remove them from your diet for several weeks (I would recommend one month) and see how you feel without them. If you choose to eat them, just be aware of the potential risks involved.

Since the most troublesome ingredients in dairy products are 1) milk proteins and 2) lactose, I would recommend choosing full-fat dairy products, since these are lower in proteins and lactose than low-fat versions, are more satisfying (therefore you may eat less of them), and they taste better to many people

greetings,
Corrij
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will not have good health for enough time.

Willy
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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Willy » zo apr 05, 2015 2:23 pm

Hello Corrij and Aleta

All the above things are true Corrij. Even more a reason to stop milk

Eva a specialist on child nutrition will give some advise om the transition from milk to solid food.

I discussed the situation with here and she will give some direction

Eva is my doughter. There are only a few people in The Netherlands who know more about nutrition then Eva.

I am afraid that there will be also an vegetarian problem ahead of us.

A vegan diet is not realy a healthy diet. But people with a good health do not experience the side effects. That is different for Lara, she does not have an excellent health so my advise and that of Eva will be NO VEGATARIAN DIET

I am sorry
Met vriendelijke groeten,

Willy Witsel

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Corrij (therapeut)
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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Corrij (therapeut) » zo apr 05, 2015 2:40 pm

Willy schreef:
What she don't get is if the calcium is the problem with magnesium, why give her almond milk which has a lot of it.
Corrij do you know if almond is rich in omega-6, What I think

Then this is completly wrong because omega-6 is inflammatory
About the almonds, yes they contain omega 6 but its all about the balance between omega 3 and 6. You need omega 6 as well. And Lara doesn`t consume large amounts of it.

This week another large study added to the body of known cardiovascular benefits of eating almonds. Every ounce eaten daily was associated with a 3.5 percent decreased risk of heart disease ten years later. Almonds are already known to help with weight loss and satiety, help prevent diabetes, and potentially ameliorate arthritis, inhibit cancer-cell growth, and decrease Alzheimer's risk. A strong case could be made that almonds are, nutritionally, the best single food a person could eat.

Almonds recently overtook peanuts as the most-eaten "nut" (seed, technically) in the United States, and Americans now consume more than 10 times as many almonds as we did in 1965. The meteoric rise of the tree-nut is driven in part by vogue aversions to meat protein and to soy and dairy milks, and even by the unconscionable rise of the macaron. But the main popularity driver is almonds' increasingly indelible image as paragons of nutrition.

This week's research, led by the eminent David Jenkins, professor and research chair in nutrition and metabolism at the University of Toronto, suggests that in addition to almonds’ idyllic monounsaturated fats, the cardiac benefits may be due to vitamin E, fiber, antioxidant phytochemicals (phenols, flavonoids, proanthocyanidins, and phytosterols), or arginine—and that’s just a partial list of almondic virtues.

This follows a massive study released last fall from Harvard that found eating nuts decreased mortality rates by 20 percent, and it builds on Jenkins’ work done more than 10 years ago which suggested, in the American Heart Association’s journal Circulation, “Almonds used as snacks in the diets of hyperlipidemic subjects significantly reduce coronary heart disease risk factors.”

Eating about 23 almonds a day is an easy way to incorporate many crucial nutrients into your diet. Almonds are rich in vitamin E, calcium, magnesium and potassium. Additionally, almonds are a significant source of protein and fiber, while being naturally low in sugar. One 23-almond serving packs 13 grams of healthy unsaturated fats, 1 gram of saturated fat and no cholesterol or salt. Of all tree nuts, almonds rank highest in protein, fiber, calcium, vitamin E, riboflavin and niacin content by weight. There are 160 calories in 23 almonds. While many of these calories come from fat, it is primarily the healthy unsaturated fats and not the unhealthy saturated kind.

According to the FDA, eating 1.5 ounces a day of most nuts, like almonds, may reduce the risk of heart disease. Many of the nutrients in almonds help contribute to increased heart health. For one, almonds are rich in magnesium, which is critical in preventing heart attacks and hypertension. Several clinical studies have also shown almonds can be effective in reducing bad cholesterol and preserving healthy cholesterol, which plays a major role in heart health.

Almonds may also promote gastrointestinal health and even combat diabetes. The high fiber content of almonds gives them prebiotic properties, which contributes to health in the gastrointestinal tract. Prebiotics are non-digestible food substances, which serve as food for the good bacteria in the intestinal tract and help maintain a healthy balance. According to a study by the American Diabetes Association, a Mediterranean diet incorporating nuts, such as almonds, helps fight diabetes even without significant changes to weight, physical activity or caloric intake.

greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

Eva Witsel
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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Eva Witsel » zo apr 05, 2015 5:13 pm

Hi Aleta,

I'm Eva, Willy's daughter. I have a health blog on http://www.evawitsel.nl and I have two children, 10 years and 8 years old.

The first thing I'd like to address is 'creating a caloric deficit' by reducing the amount of formula you give Lara. Do NOT do this. Babies are never meant to be in a state of caloric deficiency. The normal process of weaning goes something like this: baby is breastfed, around 6 months he will start to become interested in solid foods and take some of the food his mother is eating. This will usually only be a few bites at a time. Over the course of several years, baby will eat more solid food and breastfeed less. Even in periods of low food availability, the mother's milk supply will hardly be effected and baby will always receive sufficient amounts of calories.

If you give your baby formula, it is recommended to start solids around 6 months. Not only because it emulates normal development, but also because formula is damaging for baby's kidneys. So I think it's a good idea to reduce formula and to start introducing more solid foods.

So solids should be introduced in this way: when Lara is hungry, but not *too* hungry since this will make her impatient and unwilling to try new things, first give her some solid foods. When she's done, then you will give her her formula. Over time she will drink less and less of the formula.

Also, start giving her formula in cups instead of bottles. Or is she developmentally behind? If not, she should be able to learn to drink from a cup instead of a bottle.

About what kinds of foods you should introduce: I can't really advice on the cardiomyopathy related restrictions in her diet, I have no experience with that. What I do know is what is optimal nutrition for a baby. And that is most certainly NOT a vegetarian diet. I think healthy people are able to eat a vegetarian diet if they choose to do so, but that is really not a good idea for chronically ill people. A vegetarian diet has too many deficiencies so it won't be able to help heal a chronically ill person.

Here are some tips for info about good, healing baby nutrition:
- do not give your baby processed foods
- do not give your baby industrial seed oils (canola, safflower etc.)
- grains are the last food to introduce to a baby, and when you introduce them, make sure they are properly prepared (this means soaking, fermenting or sprouting the grains before using them)
- you need to focus on giving Lara nutrient dense foods, foods that will help her heal and grow
- read this: http://www.westonaprice.org/health-topi ... wing-baby/ best is to start with egg yolks (not the egg whites as they are allergenic), meat (liver), bone broth, avocado etc.
- I never gave our children pureed foods, we did baby-led introduction of solids and this means that they had 'normal food' from the start: http://en.wikipedia.org/wiki/Baby-led_weaning
- you can find a chart with what to introduce here: http://foodforkidshealth.com/healthy-in ... ing-chart/
- you can find a list of additional reading here: https://nourishingourchildren.wordpress ... lid-foods/
- more info: in my next message as this forum will not allow me to add more than 8 URLs...

You wrote somewhere in this thread that Lara can't properly digest fats or something like that? Can you tell us a little more about this? Why can't she eat fats?
Does she have any allergies that you know of?

Eva


Aleta
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Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Aleta » ma apr 06, 2015 3:43 am

Hi Willy, Corrij and Eva!

First of all thanks for caring and post those long explainings in an easter sunday! I´m sorry for not answer befor but I had all my family at hope eating chocolate eggs!

Corrij, if you wanted to scare us about milk you already succeded :) I know formula is not the best option, even not necesary, I had never formula or simple cows milk in my chilhood and everything went just fine, BUT my hippie naturist lovely mome breathfeed me until 3 years old, which is a LOT in my mind, but very healthy. I couldn´t do breastfeed Lara after diagnosis, when she was in PICU my milk jus went away, and days before that she was to agitated to feed from me. That was when she had 5 months :( besides that, as she bor premature and had a low weight I´ve gave her formula besides, because she was to little and it was like a marathon for her to feed from me, and I haven´t to much milk anyway to pump.

About the almonds, if she gets omega 6, how can we balance with omega 3? She liked the almond milk, but the pediatrician told us not to give her raw honey until 4 years.

About formula she is having only two bottles now, one in the morning and one before sleep, she is 14 months so still has some baby habits. In the day she is eating a little more solid, but is not easy going with food, don´t likes everything that I put her on a plate.

In the las visit to cardiologist back in december, we had green light to give her "anything but salt", so sodium was not a problem, I choose the food with less sodium, but no restricted sodium. Now she is sodium restricted, I believe she couldn´t handle yet. So now is more difficult to choose foods, because she is not so fan of vegetables, meat or chicken. She loves flour and soy, pudins, bread, soft cheese and things like that.

Now, pudin has cream which it has fat, and sodium. I´ve make my own but she is not to into that yet.

About Eva´s cuestion about fat, the doctors always told us that she can´t east fat, I guess this is for her vains/BP, etc.

I try in home not to make procesed food, and Lara didn´t eat a nugget or something like that in her life!

I´m vegetarian since birth but not a fundamentalist one, even Sebastian and Benjamin eats meat which I cook, if Lara needs eat meat I can kill a cow with my naked hands! but my question was about the meat fat.
I´ve try to give her liver, but she hates it. I´ll keep trying!

she eats both parts of the eggs, but in a mix, not along (I told you she is not easy going).

I´ve try to give her what we all it, I have always a plan B.

So, I´ll read the links Eva gave me, thanks a lot! We´ll insist on every vegetable and liver, low low low sodium and no salt as usual, low sugar and things made in home with stevia, and when she is eating a lot we´ll take off milk of her diet. Maybe some for pudin made at home or icecream?

I´ll make more almond milk but how we balance the 2 omegas?

we´ll see a new cardiologist in two weeks, just to see...

I don´t know if I´m forgeting something... If I remeber I´ll back to you.

If you can, please tell me about timemig for supplements besides the magnesium, I´m scared of mess the others.

Best regards and thank you all of you!!!

Aleta.

Aleta
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Lid geworden op: zo aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Aregentina, need help

Bericht door Aleta » ma apr 06, 2015 4:54 am

Eva, I forgot!

You´ve asked if Lara has slow developmentally behind... no, in fact for been premature she is doing things that we´ve spected to see later, but at six month when she started to eat I believe she learn slower than other kids.

And no allergies that I know, but in my family we all have some kind of allergy. About the gluten, just in case we started with gluten little by little. She has no sing of been celiac.

We started cereals at 9 months or so, but she is not fun of it, we gave her a puree called Nestum, by Nestle that contains 4 cereals. She hates it. as she also hate raise texture, we give her raise nestum when she is with more poop tha usual but she hates too, and we have our doubs about Nestle too. My oldest boy was adict to Nestum :(

she loves pizza (no salt in the mix, souce or cheese) so I will start to use my imagination to introduce vegetables in there.

Regards,

Aleta.

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