I have a daughter of six month who has diagnosed with dilated miocardiophaty, with a sever left ventricular dilatation and 20% of function.
She is at home, but receiving treatment with enalapril, carvedilol (twiace a day), spirnolactona (3 times a day) adn fursemida (4 times a day).
I´ve found the Children's Cardiomyopathy Foundation Community, and one of the members of that group, told me about you and and the supplements her daughter takes, I would like to learn more about that, to talk to my cardiologist and maybe get my baby better.
I´m sorry but I´m so far away from you that this is the only way to conect you.
If you need to know something more about my baby diagnosis (Lara), let me know.
Thanks a lot for you time
Aleta august 3 schreef:Lara is diagnosed with non compaction CMP
http://en.m.wikipedia.org/wiki/Noncompa ... iomyopathy
We got our firsts tests from the hospital where she first got hospitalizated for the bronquilitis, and then they foun de miocardyopathy. It says BNP 2300 PG/ML (regular valiu under 142 PG/ML) is that what you ask for? what´s that mean??? she is super high!!!!
Check in november
September 2014 vitamin D 38
every other day 1000IU check half decemebr 2014
October 2014 her function now is 28%!!!! 2 months ago was 20%!
December 2014 pro BNP 64 ref 0 - 263
Vitamine D 70 ng/ml
Mitral valve deficiency improved to 70%
New dosis advise januar 2015 viewtopic.php?f=65&t=11562&p=95667#p95667
I wanted to tell you, for your records, that Lara started yesterday (2015 August 12) Ubiquinol