Dilated cardiomyopathy of unknown origin

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Ma Nov 02, 2009 2:19 pm

Hello Christine,

Yes we are doing fine, thank you for asking :D
Will you let me know when your taking 3000 mg MSM a day?

greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

christine1
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Berichtdoor christine1 » Do Dec 31, 2009 3:54 am

Hello Corrij:

A few days ago, I had a new medical exam, and I am a little better. My ejection fraction improve and it looks like the swelling of my heart went down a little. I want to thank you again for all your support. :D

I wish you a very Happy New Year, for your family and everyone who visit this forum.

Christine.

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Do Dec 31, 2009 2:08 pm

Hello Christine,

That is good news :D
What supplements are you taking right now?
Its time to add a few new ones.

I wish you a very happy New Year, and all the best for 2010 :D

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

christine1
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Berichtdoor christine1 » Do Jan 07, 2010 5:11 am

Hello Corrij,

Thanks for your wishes.

Right now, I take daily the following vitamins supplement:
L-Carnitine (1,500mg)
CoEnzyne Q10 (200mg)
Taurine (1,500mg)
MSM (2,000mg)
B-1 (100mg)
Complex Vit B (1 caplet daily)
Ester-C (1,000mg)
Chromium picolinate (200mcg)
Fish Oil (2,000mg)

In addition, I also take daily: Ramipril (2.5mg); Digoxin (0.25mg); Aldactone (25mg) and Cardioaspirin (81mg).

Best regards. :D

Christine.

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Do Jan 07, 2010 1:03 pm

Hello Christine,

The vitamin C should be 3x1000 mg a day.
I also want to add vitamin D3 2000IE a day

For more than a year, the Intermountain Medical Center research team followed 27,686 patients who were 50 years of age or older with no prior history of cardiovascular disease. The participants had their blood Vitamin D levels tested during routine clinical care. The patients were divided into three groups based on their Vitamin D levels -- normal (over 30 nanograms per milliliter), low (15-30 ng/ml), or very low (less than 15 ng/ml). The patients were then followed to see if they developed some form of heart disease.

Researchers found that patients with very low levels of Vitamin D were 77 percent more likely to die, 45 percent more likely to develop coronary artery disease, and 78 percent were more likely to have a stroke than patients with normal levels. Patients with very low levels of Vitamin D were also twice as likely to develop heart failure than those with normal Vitamin D levels.

Findings from the study will be presented at the American Heart Association's Scientific Conference on Nov. 16 in Orlando, Florida.

"This was a unique study because the association between Vitamin D deficiency and cardiovascular disease has not been well-established," says Brent Muhlestein, MD, director of cardiovascular research of the Heart Institute at Intermountain Medical Center and one of the authors of the new study. "Its conclusions about how we can prevent disease and provide treatment may ultimately help us save more lives."

A wealth of research has already shown that Vitamin D is involved in the body's regulation of calcium, which strengthens bones -- and as a result, its deficiency is associated with musculoskeletal disorders. Recently, studies have also linked Vitamin D to the regulation of many other bodily functions including blood pressure, glucose control, and inflammation, all of which are important risk factors related to heart disease. From these results, scientists have postulated that Vitamin D deficiency may also be linked to heart disease itself.

"Utah's population gave us a unique pool of patients whose health histories are different than patients in previous studies," Dr. Muhlestein says. "For example, because of Utah's low use of tobacco and alcohol, we were able to narrow the focus of the study to the effects of Vitamin D on the cardiovascular system."

The results were quite surprising and very important, says Heidi May, PhD, MS, an epidemiologist with the Intermountain Medical Center research team and one of the study authors.

"We concluded that among patients 50 years of age or older, even a moderate deficiency of Vitamin D levels was associated with developing coronary artery disease, heart failure, stroke, and death," she says. "This is important because Vitamin D deficiency is easily treated. If increasing levels of Vitamin D can decrease some risk associated with these cardiovascular diseases, it could have a significant public health impact. When you consider that cardiovascular disease is the leading cause of death in America, you understand how this research can help improve the length and quality of people's lives."

Because the study was only observational, definitive links between Vitamin D deficiency and heart disease could not be assigned -- but the findings create an impetus for further study, says Dr. Muhlestein.

"We believe the findings are important enough to now justify randomized treatment trials of supplementation in patients with Vitamin D deficiency to determine for sure whether it can reduce the risk of heart disease," he says.

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

christine1
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Berichtdoor christine1 » Di Jan 12, 2010 6:26 am

Hello Corrij,

Several years ago, I take Calcimate Plus 800 (GNC). It contains Calcium (as Calcium Citrate Malate: 800mg), Vitamin D (as Ergocalciferol D2: 800 IU) and Magnesium (as Magnesium Oxide: 100mg).

I usually take 2 caplets daily for around a month, then I stop for a couple of weeks, and start all over again. My gynecologist considers that it is better not to take it all the time.

Today I found Vitamin D3, 400 IU.

Can I take 1 caplet of Calcimate Plus and 3 tablets of Vitamin D3 daily? What do you think?

Take care.
Christine.

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Do Jan 14, 2010 1:52 pm

Hello Christine,

Why do you take so much calcium?

An intensive advertising campaign, our beginning 50 years to believe that there is milk supplied the necessary calcium and the consumption amount may be unlimited. Now we know precisely the unbridled consumption of milk (related) products contributes to various lifestyle diseases including osteoporosis.

For the calcium consumption is therefore: more is not always better. It is even so that excess calcium from underlying processes could eventually lead to a calcium deficiency in some parts of the body! And so among other osteoporosis.

Calcium and magnesium-These two minerals work together intensively and it is therefore wise to use a preparation in which both minerals in a good proportion represented.

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

christine1
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Lid geworden op: Ma Okt 12, 2009 1:14 pm

Berichtdoor christine1 » Wo Jan 20, 2010 6:01 am

Hi Corrij:

Thanks for your answer. Several years ago, I had a mild osteoporosis in one of my hip. My doctor recommended me to take calcium, so I have taken calcium, but not too much and not all the time. Now, I stopped to take Calcimate Plus 800.

As you suggest, I take daily 5 tablets of vitamin D3 (400 IU) and 3 tablets of Ester C (1000mg).

Corrij, I am a little worried about my disease and the correct treatment.

A few months ago, when the doctors diagnosed me a dilated cardiomyopathy of unknow origin, they recommended me to walk every day for 20 o 30 minutes, and try to have a normal life.

Last December, I met a doctor who considers that if the dilated cardiomyapathy has a viral origin, is better to stay in bed all the time for 3 o 4 months (stop working, physical exercises, avoid walking, etc…). He said that it is a way to decrease the inflammation of my heart.

I have a lot of weeks without walking, but I don’t know if I am doing the right thing.

According to your experience, what you think about that? What must I do?

Thanks for your support.

Christine.

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Wo Jan 20, 2010 11:35 am

Hello Christine,

DCM can be inherited (familial DCM), but it is primarily caused by a variety of other factors, including:

Severe coronary artery disease
Alcoholism
Thyroid disease
Diabetes
Viral infections of the heart
Heart valve abnormalities
Drugs that are toxic (or cause damage) to the heart
It can also occur in women after childbirth (postpartum cardiomyopathy).

Most cases of DCM are idiopathic (an exact cause is not known). When that's the case, the condition is called idiopathic dilated cardiomyopathy or dilated nonischemic cardiomyopathy.



Viral infections can cause dilated CM, but this is usually a diagnosis of exclusion since there are no reliable tests to determine if a viral infection of the heart muscle has occurred. The question of exercise with dilated CM depends on the severity of the cardiomyopathy, the response to medications used to treat heart failure, and the risk of developing a serious rhythm disturbance with intense exercise.

Many sufferers of chronic illness experience a decrease in their capacity for exercise, and cardiomyopathy patients are no exception. That’s why exercise and cardiomyopathy is such an important combination, with fitness training often recommended as part of a comprehensive approach to the condition.

It is important to note that while there can be exercise-affecting abnormalities caused by cardiomyopathy (i.e. leg blood-flow decreases), the relationship between lack of exercise and cardiomyopathy is quite weak. There should be no standing reason a cardiomyopathy patient cannot engage in at least some exercise routine. Even patients who have cardiomyopathy-induced breathing problems find a reduction in symptoms once respiratory muscle training has begun.

The benefits of exercise and cardiomyopathy training are primarily peripheral (indirect) changes, like increased muscle-oxygen extraction, better leg blood flow, lower lactate levels, and larger leg muscle area. There are some direct or central benefits as well, however. These include enhanced vagal tone (brain muscles/cells) and decreased sympathetic nervous system activity (involuntary stress). Even further, many patients of cardiomyopathy experience deficient strength or glucocorticoid-induced myopathy. Once again exercise, and cardiomyopathy patients have proven this in the past, has been shown to provide at least 50% prevention of both.

There are many different forms of exercise, and cardiomyopathy patients should talk to their doctors about what level of intensity would work best for them. But effective exercise can come in the form of anything from 15 minutes of bike riding up to 5 times a week or simply walking 3 times a week.

Exercise and cardiomyopathy should never be an overlooked connection, and can be beneficial to your health, lifespan, and state-of-mind.


greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

christine1
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Lid geworden op: Ma Okt 12, 2009 1:14 pm

Berichtdoor christine1 » Za Jan 30, 2010 8:30 pm

Hi Corrij,

One of my relative will travel to USA soon, so I would like to take the opportunity to ask him to buy me some supplements.

Right now, I take daily:
L-Carnitine (1,500mg)
CoEnzyne Q10 (200mg)
Taurine (1,500mg)
MSM (2,000mg)
B-1 (100mg)
Complex Vit B (1 caplet daily)
Ester-C (3,000mg)
Chromium picolinate (200mcg)
Fish Oil (2,000mg)
Vit D3 (2,000mg)

Do you think that I need to add some new protocol’s supplements for the next months?

Thanks again for your support.

Have a nice weekend. :)
Christine.

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Zo Jan 31, 2010 3:26 pm

Hello Christine,

Your supplement list is oke :D
At this stage I wouldn`t add new supplements.
Maybe in the future but not for now, let these supplements do there job :D

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

christine1
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Lid geworden op: Ma Okt 12, 2009 1:14 pm

Berichtdoor christine1 » Do Feb 04, 2010 9:25 pm

Hi Corrij,

Thank you very much for the reply.
Let’s keep in touch.

Take care. :D

Christine.

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Vr Mei 14, 2010 8:39 pm

Hello Christine,

Can you give me a little update?
How are you feeling right now?

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

christine1
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Lid geworden op: Ma Okt 12, 2009 1:14 pm

Berichtdoor christine1 » Do Jun 03, 2010 6:29 am

Hi Corrij,

Thanks for your email. I hope that you and your family are ok.

Here, I am regular. I want to tell you what happed to me these last months.

I remember that when I began with the treatment, I felt so good, every day with more energy, and my fraction ejection was getting better. Unfortunately, in January, one of my doctors insisted that I needed to rest if I wanted to recover, so I stopped walking daily. The sedentary life felt me sad and depress, so I began to eat food with sugar, salt, etc.

Last month, I felt very tired, with a lot of dizziness and headache. After some exams, the results were not good, my fraction ejection was not improving comparing with 3 months ago, and I had a high level of cholesterol.

My doctor decreased the quantity of Digoxin and Aldactone that I am taking. Now I am better also, because I walk again every day, and I am take care again my alimentation.

I always take all my vitamins and nutrients (except the Chromium, I stopped to take it 2 weeks ago). I feel very good and I hope that one day, I can recover definitely.

Best regards,
Christine

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Vr Jun 04, 2010 10:50 am

hello Christine,

Your doctor is a fool :roll:
Your did great, so why change a winning team?
Stop eating the bad carbohydrates and please keep walking!

Sugar is a sticky substance and if left in the bloodstream (instead of being burned as energy) the particles will start to stick to the cells. The result is that if you are consuming a lot of sugar each day, you will get more wrinkles, will experience a lack of mobility in the joints, dry brittle nails and hair and a range of other health problems.

Reduce the amount of sugar you eat and you will soon notice a positive change in the way your skin looks. The reason for this is that refined carbohydrates such as white bread and other white flour products, are high in sugar and will cause an inflammation of the skin. This in turn creates high levels of free radicals which attack the collagen that keeps the skin stay firm. Without enough of this collagen, you will start to notice wrinkles.

Not only are free radicals bad news for your skin they are also deadly for the body, which is another reason why sugar is bad for your health. Free radicals can cause a lot of damage in healthy cells and lead to many illnesses of the body.


Sugary foods can also compromise your immune system. Research has shown that white blood cells are less efficient at fighting illness when exposed to sugar. A diet high in sugar will also raise your insulin levels quickly which can lead to many other health problems. You’ll also lack energy as a result of these sugar spikes and the drop in blood sugar that follows.

It’s no secret that obesity and weight-related illnesses are on the rise in many countries and this is directly attributed to our diets and lifestyle. Our bodies simply aren’t able to cope with such high sugar levels and this is why illnesses like diabetes are at an all time high. Cutting the excess sugar out of your diet is one of the best things you can do for your body.

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.


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