We are all so thankful for your quick replies, and for the hope your site gives us. Following are answers to the questions you posed:
YOUR ARE DIAGNOSED WITH?
I was diagnosed with Idiopathic Cardiomyopathy on May 7, 2009. My husband rushed me to the hospital and they determined this after a 3-day stay. My problem was breathlessness that night, whenever I layed down. I met with the surgeon from the ER department for 3 weeks and was not satisfied with his service after my release. My second Cardiologist, Dr. Young, tested the medications and told me there was nothing more he could do with me. My health had not improved. Dr. Young referred me to a heart failure/cardiac transplant doctor Dr. Hoagland. I told Dr. Hoagland I was not ready for a transplant, so he referred me upstairs, to Dr. Athill, an electrophysiologist.
Dr. Athill is ready to implant a Defribulator in my chest and provide Dr. Hoagland with some of the testing necessary to perform a transplant. After finding your site last night, I am going to put the defribulator and transplant idea on hold for as long as it takes.
YOUR CURRENT CONDITION
I have swelling in my legs and ankles, am out of breath often, and have trouble breathing at times.
I'm not sure what this means, but I think it's at 25%.
CAUSE OF YOUR DISEASE
POSSIBLE NUTRITIONAL RESTRICTIONS
Salt and water I guess
I am also Diabetic, was diagnosed 2 years ago as a Type II.
Januvia, 100mg, 1 tablet daily
Metformin, 500mg, 1 tablet daily
Glipizide, 5mg, 1 tablet daily
Carvedilol (generic for Coreg), 3.125mg, 1 table twice daily Furosemide (generic for Lasix), 40mg daily Lupin, 2.5mg, 1 tablet daily Spironolactone, 12.5mg day, 1 tablet daily
ARE YOU FREQUENTLY TIRED
DO YOU USE LOTS OF SUGAR
I switched to sweeteners, but eat a fair amount of fruit.
CAN YOU SKIP A MEAL OR EAT THREE HOURS LATER WITHOUT ANY PROBLEMS?
Yes. I am very slim and eat only 2 meals a day. 5'9.5" at 130 lbs. Female.
From: Corry Hoenselaars [mailto:email@example.com]
Sent: Friday, September 04, 2009 2:16 AM
Subject: RE: [Vraag] vrouw, 47, Ziekte/aandoening: Cardiomyopathy
Can you tell me a little bit more?
You are diagnosed with?
Your current condition
Cause of your disease
Possible nutritional restrictions (salt, water, etc)
Are you using dueretics?
Are you using Beta Blockers like Sotalol?
Are you frequently tired?
Do you use lots of sugar?
Can you skip a meal or eat three hours later without any problems?
[mailto:firstname.lastname@example.org] Namens email@example.com
Verzonden: vrijdag 4 september 2009 7:37
Onderwerp: [Vraag] vrouw, 47, Ziekte/aandoening: Cardiomyopathy
Cardiomyopathy Forum registration