Update on progress - yay!

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
andreaQ
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Lid geworden op: Do Okt 04, 2007 10:14 am

Update on progress - yay!

Berichtdoor andreaQ » Za Jun 07, 2008 10:24 am

Hi Corrij,

I'd like to share my news with you and others on the forum. :lol:

I've been on CPAP now for 7 weeks, and had an echo done a week ago. The echo shows that my heart is about as good as it was in late 2006. I no longer have a severely dilated left atrium - it's now only moderately dilated. And my right atrium is normal again. My septal hypertrophy has reduced slightly as well. Everything else, in terms of actual cardiac functioning, is now back to normal, including an ejection fraction of 75% (wow!). I'm not aware of having 'felt' any ventricular arrhythmias since about November, and I can't confirm that without a Holter monitor. I'm seeing my cardiologist again on Wednesday, so I'll see what he wants to do about checking the rhythm again. The only symptom I have now is the occasional PVC, usually linked to exercise or allergies - that's how it was for years before everything went pear-shaped last year.

I suspect that if I reduce my systolic blood pressure from around 130 to 120 or less, then any back pressure from the left atrium will also diminish over time. This should also help the hypertrophy a bit, according to research anyway. I'm still not on any drugs, because of my allergies, but there's a chance I'll be put on beta blockers - apparently they can reverse the re-modelling of the cardiac muscle in some people. I have to be cleared for this by my allergy clinic, so I'm not sure about it yet. I don't smoke or drink alcohol. I also exercise regularly - the only problem I'm left with now is that I need to reduce my weight, and that may be affecting my blood pressure a bit.

I realise that I've used a combination of methods by having the CPAP as well, but I've only had that for a very short time. Other people on the forum may benefit from knowing about it, as there's growing research evidence about the frequency of co-occurring sleep disoders and cardiac problems (the links aren't necessarily causal, but the association is clear). It might also help others to know that I had no symptoms of a sleep disorder, and it wasn't at all serious when it was assessed - the only reason I was put on CPAP was because of the cardiomyopathy. My daughter was assessed as having 'severe' sleep apnoea, but had no symptoms until she was hit by a car in 1998 - the sleep problem was discovered 8 years later, because her 'symptoms' had simply been attributed to her cardiomyopathy.

I'm also beginning to understand why my daughter thinks I've been a bit silly by joining Willy's protocol. If she feels as well as I do now, she may not be seeing the need to look after the long term health of her heart through any other means. I certainly intend to continue though. I've been down many roads since June last year, and it's cost me a small fortune - but the end result is that my health is returning to me.

I can't tell you how thankful I am for your support, and the support of others on the forum. I hope others have similar good news in the months and years ahead. All the best for now.
Stay happy - warm regards.

shane
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Lid geworden op: Zo Okt 14, 2007 1:30 pm
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Berichtdoor shane » Za Jun 07, 2008 6:52 pm

Hi Andrea,

It's so good to hear that you are doing better! Especially about your left atrium reducing size. I bet that news really made your day!

Shane has dilated cardiomyopathy, and the idea of his heart getting it back to more of a normal size would be very promising! He has been on the protocol for a little over six months now, so we need to be patient. Earlier this year though, his local cardiologist told him he was improving! Good news, considering they were telling him back in June he may eventually be getting a heart transplant.

We are going back to the cardiology/heart transplant center in a couple of weeks for his check up. I am anxious to hear what their update of Shane will be. His EF was only 15% as of last June. I'm hoping they will test again this time.

I sure hope that Karla eventually comes around and tries Willy's protocol. Shane wasn't showing signs of improvement until he started getting the proper nourishment for his heart.

Take care, and thank you for the postive update!
Verona

andreaQ
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Berichten: 22
Lid geworden op: Do Okt 04, 2007 10:14 am

Berichtdoor andreaQ » Wo Jun 11, 2008 11:43 am

Thanks Verona - I've posted a reply on your thread :D
Laatst gewijzigd door andreaQ op Za Jun 14, 2008 3:31 am, 1 keer totaal gewijzigd.
Stay happy - warm regards.

Corrij (therapeut)
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Lid geworden op: Do Mei 19, 2005 10:46 pm
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Berichtdoor Corrij (therapeut) » Wo Jun 11, 2008 11:57 am

Hi Andrea,

Its always great to hear good news :D
I am proud of you, thats real girl power :D but I have to say that the men are doing great also, have you read the message from David?

Hello Corrij

Sorry I havent been on here in a while, I try the best I can to forget about this for my own sanity. BUT I had my 6 month echo last week (last one was last Nov). I went to my cardiologist yesterday and ITS GETTING BETTER!!! I realize there is still a long road ahead, but after a year of stress since finding this out its nice to walk out of the Drs with a small smile! My EF went from 25% to 40%...my heart size which was minor enlargement has decreased some! So what do you think now? Stick with the same supplements and doses I have been taking or should I change up some things? Once again I could never thank you enough for all your guidance and concern during all this. Hope you liked to hear the news as much as I did.

Thanks

David


My experience is that people with hypertrophic CM have quicker results than the people with dilated CM.
That Shane is improving his health is a great sign, it takes a little more time when your having a EF like Shane, but he is young and that is a big plus :D


greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

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Willy
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Re: Update on progress - yay!

Berichtdoor Willy » Ma Feb 08, 2016 12:41 pm

Hello

Please help Corrij with here work and post the results of the treatment on the

RESULTS FORUM

viewforum.php?f=106

Explain

1, your condition before treatment
2. what you did
3. and what your have achieved

If you already posted a result message please update this message regularly

Thank You

Willy
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina


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