Shane - Diagnosed in June with Dialated Cardiomyopathy

This forum is intended for international users to help them with the treatment of cardiomyopathy or heart failure.
Corrij (therapeut)
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Bericht door Corrij (therapeut) » vr nov 02, 2007 5:50 pm

Those who do not have enough time for good health,
will not have good health for enough time.

shane
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Bericht door shane » zo nov 04, 2007 2:14 am

Corrij,

Thank you for the links! The first link mentioned that there was a study saying that once the patient is stablized on the Coumadin, then it is generally safe to use the CoQ10. Shane has been taking CoQ10 since the beginning of the Coumadin prescribed and they kept having to increase the dose.

Since he needs to get the defribulator at the beginning of December, I am going to have him stay off of CoQ10 until after that procedure because he has a blood clot. They said they need to take him off Coumadin a few days before the procedure probably because of the bleeding that might occur.

Is it okay to proceed with the protocol without the CoQ10 for now?

Thanks so much, :D
Verona

Corrij (therapeut)
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Bericht door Corrij (therapeut) » zo nov 04, 2007 1:55 pm

Hi Verona,

A few days before he`s getting the defribulator he must stop all the supplements, thats better because they can have effect on blood tests.

Let me know when it happens, we start again after it.

greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

shane
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Bericht door shane » zo nov 04, 2007 6:57 pm

Hi Corrij,

He is now at 2000 mg of MSM and is on the Chromium. Should he keep increasing the MSM to 3000 mg? So you say to stop taking everything a few days before. Will he start over with the minimum dose of MSM and Chromium after the procedure or start at where he left off? If we need to start over, should we just have him go off the protocol completely now until this procedure is done?

What are your thoughts?

Thank you so much for all your helpful advice. With your help and prayers, I know my son has the best care available. :P

Verona

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Bericht door Corrij (therapeut) » zo nov 04, 2007 8:52 pm

Hi Verona,

How long will he be in hospital, when they implanted the defribilator?
Is this only one, or will it be a few days?

For now, increase the amount of MSM untill 3000 mg.

We start where he is left off, I don`t want to loose to much time :wink:
We also added some more supplements then.I want him to take the whole protocol as soon as possible.

Have you any idea when they give him the defribilator?So I can make some kind off schedule for him.

Thank you for your kind words,they mean a lot to us, but youre forget the most important one for Shane, and that is his mom :D
Youre doing a great job, he must been very glad with a mom like you :D

you have my respect,

greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

shane
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Lid geworden op: zo okt 14, 2007 1:30 pm
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Bericht door shane » zo nov 04, 2007 9:48 pm

Corrij,

He is going in on December 3rd. I'm not sure if he needs to stay past that day. I will call his cardiologist tomorrow and find out.

Thanks so much,
Verona

shane
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Bericht door shane » di nov 06, 2007 4:43 am

Hi Corrij,

They said that generally their patients spend one night in the hospital for this procedure.

Thank you,
Verona

Corrij (therapeut)
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Bericht door Corrij (therapeut) » di nov 06, 2007 2:56 pm

Hi Verona,

The best way for Shane is to stop the supplements in the last week of November.

We make a new start on December 4rd.

He can build up the MSM faster, so one day 1000 mg if everything is oke the next day 2000 mg en the day after 3000 mg.
The chromium and the carnitine, he can start the full dosis without any problem.

After a week or so we added some more supplements, before Cristmas I want him to take the whole protocol :D

May I aske why Shane himself don`t participate on the forum?Does he believe in the protocol?Is he motivated?

greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

shane
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Lid geworden op: zo okt 14, 2007 1:30 pm
Locatie: Northwestern USA

Bericht door shane » di nov 06, 2007 7:17 pm

Corrij,

Thank you for the reply! Shane doesn't have a computer, so we are working together on this. He doesn't have a problem with the protocol. He has seen supplements help people tremendously in my family with other health conditions.

Thank you so much for helping us get through this! :D
Verona

shane
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Bericht door shane » wo nov 07, 2007 6:38 pm

Hi Corrij,

Shane was taking a multi-vitamin. Should he only take what is in the protocol?

Thanks so much,
Verona

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Bericht door Corrij (therapeut) » wo nov 07, 2007 7:04 pm

Hi Verona,

A good multi is also a part of the protocol :D

Thiamine, or vitamin B1, is a water-soluble B complex vitamin that was first discovered in 1910 in the process of exploring how rice bran cured patients of beriberi. Thiamine is not synthesized in humans, therefore its availability for necessary cellular processes hinges on its continual ingestion. The amount of thiamine one needs to ingest to maintain balance is disease state-dependent or medication-dependent. Severe chronic thiamine deficiency can have significant neurologic and cardiac effects, the latter is reflected in a particular type of heart failure called wet beriberi. This form of heart failure clearly benefits from thiamine supplementation. It is unclear, however, whether thiamine supplementation offers any benefit in other forms of heart failure. Despite this, it is not unreasonable for heart failure patients to routinely ingest a thiamine-containing multivitamin; patients using diuretics have an increased urinary excretion of thiamine and thus are at a higher risk for developing thiamine deficiency. The role of thiamine in heart failure, however, remains arguable.

Be sure that he is taking a multi without vitamin K

greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

shane
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Lid geworden op: zo okt 14, 2007 1:30 pm
Locatie: Northwestern USA

Bericht door shane » do nov 08, 2007 9:23 am

Corrij,

Thank you for the multi-vitamin info! Do you think it is a good idea for Shane to get a flu shot? The cardiologist said it was okay, but there may be a healthier alternative.

I have taken supplements in the past from my natureopath to keep me from getting the flu, or if I l aready had gotten the flu, there was a different supplement that I took to treat it.

What are your thoughts?

Thank you!
Verona

Corrij (therapeut)
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Bericht door Corrij (therapeut) » do nov 08, 2007 11:02 am

Hi Verona,

I can only speak for myself, it is your own decision.
My husband doesn`t get the flu shot in years, and he is never ill, apart from his cardiomyopathy and diabetes :wink:

News reports have been flooding us with articles warning that the impending flu season may be the worst in years. Even though it is difficult to separate the facts from the hype, a close evaluation of the flu vaccine will reveal that serious questions must be raised about the recommendations that are routinely touted, namely high efficacy with little risk. Anyone considering a flu shot should become informed about the substances coming through that needle, and should be determined to investigate the safety and efficacy issues that are still unresolved.

The Vaccine Virus

Each year, a new vaccine is developed that contains three different viruses (one influenza B and two influenza A strains). CDC officials select the new viruses based on which viruses were prevalent during the flu season in China and Australia the previous year. The CDC admits that the viruses selected for the new vaccine are chosen on the basis of an “educated guess.”

What’s in a Flu Shot?

The influenza virus is grown in “specific pathogen-free” (SPF) eggs. Eggs are tested for a variety of agents—usually between 23 and 31—to confirm the absence of those specific pathogens. Laboratories limit the number of agents that are screened due to the shear abundance of potential viruses and/or bacteria to choose from. In addition, screening for every potential agent would be cost prohibitive.[ii] If none of the tested agents are detected, the vaccine is reported as “pathogen free.”

However, it should be understood that there is a distinct difference between “pathogen free” and “specific pathogen-free.” In its July 1996 report, the Institute of Medicine acknowledged that “although it is not possible to produce a completely uncontaminated animal, it is possible to produce an animal [or egg] certified to be free of specific pathogens.”[iii] Viruses that are harmless to their animal host, however, may be potentially harmful to humans.

During the manufacturing process, antibiotics (neomycin, polymyxin B and gentamicin) are added to eliminate stray bacteria found in the mixture. The final solution can contain the following additives in any combination: Triton X-100 (a detergent); polysorbate 80 (a potential carcinogen); gelatin; formaldehyde; and residual egg proteins. In addition, many of the influenza vaccines still contain thimerosal as a preservative. Thimerosal (mercury) is being investigated for its link to brain injury and autoimmune disease.

Does the Flu Shot Protect?

There are no guarantees that the influenza viruses selected for the vaccine will be the identical strains circulating during a given flu season. In fact, it has recently been announced that this year's flu vaccine does not include the strain that is being reported by doctors in the community called the “A Fujian” strain. Outbreaks have been reported in Texas, Colorado and elsewhere[iv] that involve strains that do not match the current flu vaccine. CDC tests have confirmed that more than 80 per cent of the 55 strains of influenza virus isolated thus far are the A Fujian strain. Even so, the CDC still maintains that the current vaccine could provide cross-protection against the new variant, but the fact is, no one knows for sure.

Moreover, the majority of illnesses characterized by fever, fatigue, cough and aching muscles are not caused by the influenza virus. Non-influenza viruses (e.g., rhinoviruses respiratory syncytial virus [RSV], adenoviruses, and parainfluenza viruses) can cause symptoms referred to influenza-like illnesses (ILI). Certain bacteria, such as Legionella spp., Chlamydia pneumoniae, Mycoplasma pneumoniae, and Streptococcus pneumoniae, have been documented as the causes of ILI.[v]

Notably, these microbes are not part of the flu vaccine. Unless an organism’s antigen is contained within the vaccine, there is no protection conferred by the vaccine. It is estimated that most adults will average 1-3 episodes of ILI, and most children will average 3-6 episodes. The CDC also admits that “many persons who have been vaccinated against influenza can still get the flu”[vi]

Targeting the Elderly

The flu vaccine is generally recommended for persons aged 65 and older, and those with medical conditions who could experience serious complications from the flu. Medical journals report broad differences in effectiveness for the elderly, ranging from 0 to 85%.

The CDC states that 90% of deaths from influenza occur among the elderly. Considering that nearly 65% of all deaths (from any cause) occur in this age group, it is nearly impossible to prove that flu shots significantly increase life expectancy in this group. The truth is that most people—young and old—will weather a bout of the flu without hospitalization or complications.

A Serious Concern: Alzheimer’s Disease

Hugh Fudenberg, MD, an immunogeneticist and biologist with nearly 850 papers published in peer review journals, has reported that if an individual had five consecutive flu shots between 1970 and 1980 (the years studied), his/her chances of getting Alzheimer's Disease is ten times higher than if they had zero, one, or two shots.[vii]

Dr. Boyd Haley, Professor and Chair of the Department of Chemistry at the University of Kentucky, Lexington has done extensive research in the area of mercury toxicity and the brain. Haley’s research has established a likely connection between mercury toxicity and Alzheimer’s disease. [viii] In a paper published in collaboration with researchers at University of Calgary, Haley stated that “seven of the characteristic markers that we look for to distinguish Alzheimer's disease can be produced in normal brain tissues, or cultures of neurons, by the addition of extremely low levels of mercury.”[ix]

Does this prove that the mercury contained in the influenza shot can be directly linked to Alzheimer’s? No, absolutely not. But further research in this area is critically needed because the absence of proof is not the “proof of absence.”[x]

Flu Vaccine Now for Children

The Advisory Committee on Immunization Practices (ACIP) adopted a resolution effective March 1, 2003 that expanded the use of the influenza vaccine to include children aged 6-23 months. The recommendations also included vaccinating those aged 2 to 18 years who live in households containing children younger than 2 years of age.[xi]

The flu vaccine most commonly given to children is Fluzone, a trivalent vaccine grown in chicken eggs. Harvested with formaldehyde and containing the recommended ratio of 15 ug of each of the three prototype viral strains, each dose of Fluzone also contains 25 ug of mercury.[xii] The new CDC recommendations include giving the influenza vaccine to children beginning at six months of age and then annually, for the rest of their lives. Children less than age 9 receiving their first flu shot, two doses of vaccine are recommended, with a minimum interval of one month between the two doses. However, the CDC does not provide a direct reference to substantiate this recommendation.[xiii]

On June 17, 2003, the FDA approved an intranasal influenza vaccine for use in healthy persons aged 5–49 years. Flumist is a live-virus vaccine that can cause a litany of problems.

Alternatives?

If you choose not to receive the flu shot, have a discussion with your doctor regarding other options. However, some simple and possibly quite effective things you can do for yourself to prevent the flu include: 1) avoid white sugar;[xiv] 2) exercise regularly; 3) get adequate sleep; 4) eat a healthy diet, omitting trans-fats; 5) drink plenty of purified water daily and 6) wash your hands. A common way people contract viral illnesses is by rubbing their nose or their eyes after their hands have been contaminated with a virus. The CDC states, “the most important thing you can do to keep from getting sick is to wash your hands.”[xv]

We are so used to taking medications—for prevention and treatment—that it is difficult to comprehend that these modest recommendations are really the most powerful ways to minimize the likelihood of getting the flu.

Making the Decision

You may decide to consult a physician who is schooled in alternative medicine to assess a variety of options for you and your family. What is most important, in the end, is to become as informed as possible regarding your options for keeping healthy and avoiding the flu.

REFERENCES

Sabin, Russel and Reynolds. Breakdowns Mar Flu Shot Program Production, distribution delays raise fears of nation vulnerable to epidemic. San Francisco Chronicle. Feb. 25, 2001

[ii] Charles River Laboratories, A Laboratory Animal Health Monitoring Program: Rationale and Development,' (Winter 1990); Source: Internet address

[iii] Institute of Medicine Press Release: Federal Guidelines Needed to Ensure Safety in Animal-to-Human Organ Transplants. July 17, 1996.

[iv]CBS: The Associated Press. CDC Says Flu Season Is Going Strong in Parts of U.S., Vaccine Doesn't Match Strain Doctors See.

[v] MMWR. November 9, 2001 / 50(44);984-6

[vi] MMWR Nov. 9, 2001/50(44); 984-6

[vii] Hugh Fudenberg, MD, is Founder and Director of Research, Neurolmmuno Therapeutic Research Foundation. Information from Dr. Hugh Fudenberg came from transcribed notes of Dr. Fudenberg's speech at the NVIC International Vaccine Conference, Arlington, VA September, 1997. Quoted with permission.

[viii] The Relationship of Toxic Effects of Mercury to Exacerbation of the Medical Condition Classified as Alzheimer’s Disease by Boyd E. Haley, PhD.

[ix] NeuroReport, 12(4):733-737, 2001

[x] http://www.testfoundation.org/

[xi] MMWR. 2002;51[RR-3]:1-31

[xii] Package insert. Influenza Virus VaccineFluzone® 2003 – 2004 Formula

[xiii] MMWR. 2002: 51 [RR-3], pg. 19

[xiv] All forms of refined sugar depress white blood cells' ability to destroy bacteria. See Sanchez A, et al. Role of sugars in human neutrophilic phagocytosis. Am J Clin Nutr 1973;26:1180.

[xv]CDC—Handwashing: An ounce of prevention keeps the germs away.

greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

shane
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Berichten: 109
Lid geworden op: zo okt 14, 2007 1:30 pm
Locatie: Northwestern USA

Bericht door shane » zo nov 11, 2007 7:56 pm

Corrij,

Thank you for the flu information! Shane is now up to 3000 mg of the MSM. Should he just start adding the L-Carnatine?

Any certain brands preferred?

Thank you,
Verona

Corrij (therapeut)
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Bericht door Corrij (therapeut) » zo nov 11, 2007 8:40 pm

Hi Verona,

If he has no problems like headache or diarrhea he can start taking the carnitine.


Acetyl-L-carnitine should be taken on an empty stomach with water. If you are using the average of 3 per day, take two in the morning 30-45 minutes before breakfast, and one 30-45 minutes before lunch.

He can also start taking,

Taurine 3 x 500 mg a day
Q10 2 x 100 mg a day (he`s allready taken)

The taurine should also be taken on a empty stomach and seperate from the carnitine.

He can take the taurine before diner(all three pills together)

The brands are not that important as long as you take the big brands like, Solgar,Now,Pharma Nord etc.

greetings,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

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