Hi Verona and Shane,
It's quit a story you all get trough!
Of course I recognize a lot of it.
I am convinced that the suffering for the family is much heavier than for the patient.
We got thru it, but the family is aware about everything is going on, special when you hear about the critical moments.
I went to hospital in Februar 2009 for an echo and they saw what I already feld, the condition of my heart was so bad that they dessided to keep me en started the screening for an heart transplantation.
That took about a month and thank god, my condition was good enough to get on the transplantation list.
Two times I went home to see if I could wait there.
Two times it went wrong and I was hopetalised again.
The second time my condition was so bad, I lost my mind and was not able to understand what they said to me.
On 30th of May they implanted the Heart Mate.
After 2 days I awoke at the intensif care and didn't know what they did to me.
I stayed there for 16 days, then after another 14 days I get home at 29th of June.
I feel very good now!
My condition gets slowly back and I can already do more than I did 1 or 2 years ago!
I did not had any pain, I'm very thankfull for that.
The place where they implanted the VAD feld, what we call, deaf... The nerves were not working.
Slowly the feeling gets back, but without any pain.
I do 2x a week fysiotherapy and 1x a week my Chinese pracktise. I also walk with my dog every day 15 till 30 minutes.
I can sleep on both sides.
The side where the led gets out, I organise with my hands so it will not be in a wrong position.
The other side is no problem, the only thing is that I feel the pump moving (it's like a baby turning around
Is his back hurting him becouse of the weight of the battery's (mabey I can gif some tips how to ware it better), of is it in combination with the pain onder his ribs.
Is it possible to have fysiotherapy for that... or what do the doctors say about it?
We send to all our friends and family e-mails and we are also convinced that theire thougts and praying helped me through all thise!
I just wrote this without checking all the time if my English was correct, I hope I did not make too many strange mistakes
Best wishes and all my love