Shane - Diagnosed in June with Dialated Cardiomyopathy

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shane
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Shane - Diagnosed in June with Dialated Cardiomyopathy

Berichtdoor shane » Di Okt 16, 2007 10:02 am

Hello! I have been studying your boards and website and would love to get some info on what I need to do for my son Shane. He is only 22 years old and weighs around 145 lbs and is 6'1". The last visit to the cardiologist said that his heart is not getting any smaller and his EF was less than 20% and hadn't changed since June.

I would like to get a personal treatment protocol for him if I could.

The cause of his onset is uncertain, we thought he had the flu and had been not feeling good for quite a few months before June. His father died of dialated cardiomyopathy at 39. He didn't take care of himself and smoke and drank. So Shane's condition could just be hereditary.

Shane's statistics:

*Blood pressure: 102/64
*Diet restrictions: No salt over 2000 mg. a day
*Not taking dueretics at the present time, but was in the beginning
*Not taking any beta blockers that I know of, but I have listed his meds below just to be sure.
*He is frequently tired and has a difficult time sleeping.
* He craves sweets and eats them too much and drinks soda
*Yes, he can skip a meal or wait to eat

His medications are:

*Warfarin Sodium (Coumadin) 7.5 mg six days a week - 5 mg one day a week
*Carvedilol Phosphate (Coreg CR) 40 mg once a day
*Lisinopril 10 mg one tablet two times a day
*Spironolactone (Aldactone) 25 mg. 1/2 tablet once a day
*Digoxin (Lanoxin) 250 mcg one tablet a day
*Hydrocodone-Acetaminophen (Vicodin) 5-500 take as needed

Thank you so much for your help! I am so glad that I found your website. I feel my son has hope. :)

Verona

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Di Okt 16, 2007 11:15 am

Hello Verona,

A very warm welcome on this forum :D
It has succeeded, youre on the forum :D

Cardiomyopathy refers to abnormalities of the structure or function of the heart muscle. There are 3 major types of cardiomyopathy: dilated congestive, hypertrophic and restrictive. The most commonly encountered form is dilated congestive cardiomyopathy (DCM). In this type of cardiomyopathy, the heart muscle is damaged, commonly as a result of coronary artery disease, and gradually loses its efficiency as a pump.

Causes & Development
DCM can be triggered by diabetes, alcohol abuse, infections, exposure to certain drugs and toxins, nutritional deficiencies, connective tissue diseases, hereditary disorders or pregnancy. Although rare in developed countries, protein-calorie malnutrition may cause cardiomyopathy.

COREG CR is in the class of drugs called beta-blockers.
Lisinopril (lye-SIN-o-pril) is a drug of the angiotensin converting enzyme (ACE) inhibitor class.
Digoxin is used to treat congestive heart failure and the associated symptoms of shortness of breath when lying flat, wheezing, and ankle swelling. Digoxin is also used to slow heart rate in rapid atrial rhythm disturbances such as atrial fibrillation and atrial flutter.

Vicodin
This medication is a combination of a narcotic (hydrocodone) and a non-narcotic (acetaminophen) used to relieve moderate to severe pain. Hydrocodone works by binding to opioid receptors in the brain and spinal cord, and acetaminophen decreases the formation of prostaglandins, therefore relieving pain.
spironolactone (Aldactone) is a potassium-sparing diuretic that was approved many years ago. Until recently, it was used primarily to treat edema resulting from liver cirrhosis, primary hyperaldosteronism and nephrotic syndrome. It has been used in combination with potassium-wasting diuretics to prevent hypokalemia.

Warfarin is an anticoagulant (blood thinner). Warfarin reduces the formation of blood clots.

Warfarin is used to prevent heart attacks, strokes, and blood clots in veins and arteries.

Warfarin may also be used for purposes other than those listed in this medication guide.

Lisinopril (lye-SIN-o-pril) is a drug of the angiotensin converting enzyme (ACE) inhibitor class that is primarily used in treatment of hypertension or high blood pressure, congestive heart failure, heart attacks and also in preventing renal and retinal complications of diabetes.

spironolactone (Aldactone) is a potassium-sparing diuretic that was approved many years ago. Until recently, it was used primarily to treat edema resulting from liver cirrhosis, primary hyperaldosteronism and nephrotic syndrome. It has been used in combination with potassium-wasting diuretics to prevent hypokalemia.

Digoxin is used to treat congestive heart failure and the associated symptoms of shortness of breath when lying flat, wheezing, and ankle swelling. Digoxin is also used to slow heart rate in rapid atrial rhythm disturbances such as atrial fibrillation and atrial flutter.

For so far the meds.

I will suggest that Shane starts with the following supplements, this is the first step of the heart protocol.


If he has some kind of arrythmias then there is a special test he can do to see if he is have a shortage of potassium, this is often a cause of the problem.
He can see if this is the case with him by eating 4 or 5 ripe bananas a day. If he have cardiac arrhythmia and it gets less by eating the bananas then we can always proceed to taking potassium tablets.

I suggest that you start with 200mcg Chromium GFT, you can start this without a problem.
MSM, the final dosage is 3000 mg but we’ll build it up slowly, I suggest 500 mg for the first few days, If this goes well then 500 extra untill you are at the 3000 mg.
You have to build it up slowly because MSM detoxifies and it can cause headache, diarrhoea or tiredness.
Msm and chromium are not a part of the heart failure protocol but they are meant to give you more energy.

Furthermore I would like to advice you to start with acetyl L-Carnitine 3x 500 mg a day. (are you allergic for aminoacids?)

The link below gives you more info on L-Carnitine

http://www.ncbi.nlm.nih.gov/entrez/quer ... t=Abstract

http://www.candida-fibromyalgie-hypogly ... php?t=3607

If you have any questions please dont hesitate,

regards,
Corrij
Those who do not have enough time for good health,
will not have good health for enough time.

shane
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Berichtdoor shane » Di Okt 16, 2007 5:21 pm

Corrij, Thank you so much for your reply! I am pretty sure my son is allergic to bananas. Is there another way to test him if he does have low potassium? I will call his cardiologist today to verify if they recorded any arrythmias.

I read about a doctor in the USA that uses D-Ribose or just called Ribose (alpha-D-ribofuranose) to help with heart failure and EF. I wondered if you had heard of this supplement.

Again, thank you so much for your help, and I will stay close by on these boards to report my son's progress and read all posts!

Take good care and thank you so much for giving my son hope,
Verona

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Di Okt 16, 2007 5:27 pm

Hello Verona,

Instead of bananas you can give him dried apricots or biologic fruitjuices, there full of potassium.

D- Ribose is also a supplements of our protocol, but we will added in a later stage.

D-Ribose improves diastolic function and quality of life in congestive heart failure patients: a prospective feasibility study.Omran H, Illien S, MacCarter D, St Cyr J, Luderitz B.
Department of Medicine-Cardiology, University of Bonn, Sigmund-Freud-Street 25, D-53105, Bonn, Germany. omran@uni-bonn.de

Patients with chronic coronary heart disease often suffer from congestive heart failure (CHF) despite multiple drug therapies. D-Ribose has been shown in animal models to improve cardiac energy metabolism and function following ischaemia. This was a prospective, double blind, randomized, crossover design study, to assess the effect of oral D-ribose supplementation on cardiac hemodynamics and quality of life in 15 patients with chronic coronary artery disease and CHF. The study consisted of two treatment periods of 3 weeks, during which either oral D-ribose or placebo was administered followed by a 1-week wash out period, and then administration of the other supplement. Assessment of myocardial functional parameters by echocardiography, quality of life using the SF-36 questionnaire and functional capacity using cycle ergometer testing was performed. The administration of D-ribose resulted in an enhancement of atrial contribution to left ventricular filling (40+/-11 vs. 45+/-9%, P=0.02), a smaller left atrial dimension (54+/-20 vs. 47+/-18 ml, P=0.02) and a shortened E wave deceleration (235+/-64 vs. 196+/-42, P=0.002) by echocardiography. Further, D-ribose also demonstrated a significant improvement of the patient's quality of life (417+/-118 vs. 467+/-128, P< or =0.01). In comparison, placebo did not result in any significant echocardiographic changes or in quality of life. This feasibility study in patients with coronary artery disease in CHF revealed the beneficial effects of D-ribose by improving diastolic functional parameters and enhancing quality of life.

http://www.ncbi.nlm.nih.gov/entrez/quer ... med_docsum

youre very welcome verona thank you for your kind words :wink:

Can you tell me how you find us?

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

shane
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Berichten: 109
Lid geworden op: Zo Okt 14, 2007 1:30 pm
Locatie: Northwestern USA

Berichtdoor shane » Di Okt 16, 2007 6:14 pm

Wow! Thank you for all your knowledge. After finding out my son's heart wasn't improving after his cardiograms last week, and months of worrying, I went online and googled "cardiomyopathy healing" and your wonderful website and forum came up. I feel that my prayers were answered!

I thought that the only alternative was a heart transplant which is what the cardiologist was saying to my son might be a possibility if things don't improve soon.

Thank you for being there!
Verona
Laatst gewijzigd door shane op Wo Dec 05, 2007 6:27 pm, 1 keer totaal gewijzigd.

shane
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Lid geworden op: Zo Okt 14, 2007 1:30 pm
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Berichtdoor shane » Di Okt 16, 2007 6:46 pm

Corrij,

About the L-Carnitine, should Shane take one pill three times a day or all at once? Does it matter whether or not he has an empty stomach?

And does it make a difference what the extra ingredients are in any of the supplements?

Thanks so much,
Verona

shane
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Berichtdoor shane » Di Okt 16, 2007 7:07 pm

Sorry to bombard you with so many questions, but Shane has been taking Co-Q10 and another heart supplement from a natureopath doctor, should he stop using these for now while he begins the protocol?

Thank you,
Verona

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Di Okt 16, 2007 7:45 pm

Hello Verona,

If he`s already start taking the O10 then keep taking that in the amount of 2 x 100 mg a day.

Wait a little while with starting the carnitine.
I can understand that things seem to go a bit slowly for you but let his body get used to the supplements.Believe me this is the best way :D

You don`t have to do this on your own Verona, together we fix this. :D

What kind of ingredient is in it?

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

shane
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Lid geworden op: Zo Okt 14, 2007 1:30 pm
Locatie: Northwestern USA

Berichtdoor shane » Di Okt 16, 2007 8:48 pm

Corrij,

I just called the cardiologist and asked it it were okay for him to start taking the supplements you recommended and they said to wait until he has the Stress Echo test done in less than two weeks where he walks on a treadmill, etc. They said he hasn't had any arrythmia, but they recommended getting a defibulator right away for him just to be on the safe side. They said that after he gets these two things done, it would be better timing to start on the extra supplements.

Oh, and when he does start the L-Carnatine, are the three pills taken together or separately?

Thank you for your reassurance,
Verona

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Wo Okt 17, 2007 10:33 am

Hi Verona,

I am glad that your cardiologist improve the use of supplements, but I don`t agree with waiting to start the protocol, the sooner the better.

I can not understand if Shane don`t have any arrythmia`s, why they want to implant a defibrulator.
If Shane have arrythmia`s he feels them right away, its a very unpleasant feeling, and if he is saying he don`t have one that is great, and in my opinion he don`t need a defribrilator.

The carnitine must be L-Carnitine 500 mg.
The amount is 3 x 500 mg a day.

Take the carnitine always on a empty stomach, 1/2 hour before eating or two hours after.
He can take the three pills together or one before every meal.

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

shane
Verslaafd aan het forum
Berichten: 109
Lid geworden op: Zo Okt 14, 2007 1:30 pm
Locatie: Northwestern USA

Berichtdoor shane » Wo Okt 17, 2007 4:56 pm

Corrij,

Your recent post said to wait a while before taking the L-Carnitine. How long before he can start taking them? He has been taking CoQ-10 approx. 150 mg. daily, but changed to 200 mg. yesterday.

So I will have him start on the rest of the Protocol ...correct?

Thanks so much!
Verona

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Wo Okt 17, 2007 5:23 pm

Hi Verona,

Shane must start taking the chromium and the MSM.The MSM build up slowly.

After introduction of MSM to its therapeutical dosis of aprox. 3000mg go as quickly as possible to the complete protocol.

At the moment chroom and MSM will provide more energy but will NOT prevent progression of CMP. A Q10 only protocol will only provide you a 30 - 40% change of success.




greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

shane
Verslaafd aan het forum
Berichten: 109
Lid geworden op: Zo Okt 14, 2007 1:30 pm
Locatie: Northwestern USA

Berichtdoor shane » Wo Okt 17, 2007 5:38 pm

Hi Corrij,

Okay, I will start Shane on the Chromium and MSM. He will stay on 200mg of Co-Q10 also.

I hope his Stress Echo test results show that he is doing fairly well. They said that all his testing is to find out whether or not a heart transplant is needed or when. This testing is stressful for a worried mom, but your Protocol makes so much sense and gives me hope.

I have healed other chronic conditions for myself before with supplements so I feel very good about helping my son as well with your expert guidance.

Take good care!
Verona

Corrij (therapeut)
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Berichtdoor Corrij (therapeut) » Wo Okt 17, 2007 5:48 pm

Hello Verona,

I believe that the EF will be improved, so a transplantation is not a option for us :D

I can understand that you are worried and that this is a stressfull period.
Stay positive :D

greetings,
Corrij
Those who do not have enough time for good health,

will not have good health for enough time.

shane
Verslaafd aan het forum
Berichten: 109
Lid geworden op: Zo Okt 14, 2007 1:30 pm
Locatie: Northwestern USA

Berichtdoor shane » Do Okt 18, 2007 4:59 pm

Corrij,

Shane is going in for the Stress Echo test a week from this Friday. Will starting this Protocol affect the results? I know it would be fairly early.

Thank you!
Verona


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