Baby girl, dilated miocardyopathy from Argentina, need help

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Aleta
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Aleta » Di Jan 31, 2017 5:15 pm

Hi Willy!

I hope you are doing great.

We had Lara's check up yesterday. Lara's shortening fraction is 33%-%35, but echo was made with Lara crying and kicking, so doc explained to us that is like a stress test, and things tend to get "bigger" in that situation, so the measures are the same but could be smaller if would be quiet, and function maybe is 34%, not 35%.Even so, Doctor saw Lara better, she took it like an improvement.

Mitral valve is with the same little defficiency like after surgery, but looking great.

Meds: we are taking fursemide off!!! we have to give Lara only four drops until Feb 19, (she was with 7 drops=7mg) and then, go again on feb 23 to see if everything is ok, wich doc thinks is gonna be great.

She also wants to take of Espironolactone, and leave her just with carvedilol and enalapril. The carvedilol dose will be up because the current dose is to low, but she is doing great anyway.

Doc said Lara can start school without any restriction but low sodium diet! Classes starts here on march 6, I'm happy and scared about it, because viruses in school are there anyway! But also doc said that lara has the same riskes as any other child.

This is so good that i still can't believe it willy!

she wsiched the hours of meds, so I wanted to ask you if we can make supplements changes too, in order to give Lara all the meds and supplements but in less take.

This i how we do it now:

9am
enalapril, spironolactone, carvedilol, fursemide, ubiquinol, ribose. (lara no longer drinks milk after this on any other time of the day)

12pm
carnitine, magnesium

5pm
iron, supradyn (3 times at week), D3 (2 times at week), ribose.

9pm
enalapril, carvedilol, carnitine, magnesium, ribose.

We like to give her carnitine and magnesium with all the meds of 9am. Cand we put those together?

And also we want to ask you if the ribese dose of the day, can we divide in 2 takes, not in 3, so Lara would have less "meds time".

The new plan would be like this:

9am
enalapril, spironolactone, carvedilol, fursemide, ubiquinol, ribose (with half more of the 5pm dose), carnitine and magneium.

5pm
iron, supradyn (3 times at week), D3 (2 times at week), THIS WE WANNA PUT IT AT 9AM OR 9 PM, BUT NOT SURE IF SUPRADYN AND IRON CAN BE MIXED WITH OTHER SUPPLEMENTS. AND TAKE OFF RIBOSE AND DIVIDE THE DOSE IN THE 9 AM AND 9 PM.

9pm
enalapril, carvedilol, carnitine, magnesium, ribose (with half more of the 5pm dose).

So with this plan Lara will have two med takes, no five! Can we do this? is there any interaction between supplements? can we give her all together?
Can we give Lara the ribose dose per day in 2 takes and not in 3?
Supplemets are for life or that will decrease some day too? If it is for life we are ok with it, just asking!

I hope I've made myself clear about doses, is really messy!


So, new are good, still a road to go, but doc thinks that Lara might be meds free some day... this is so amazing. I just can't believe it sometimes. (and then of course i get depresed). And this is in a great part thanks to you and the protocol, and the amazin person you are, THANKS!!!!

Cheers,


Aleta.

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Willy
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Wo Feb 01, 2017 11:58 am

It is always a good sign if cardio reduces medication.

Is it alright if I post one of Lara's birthday pictures on this forum?

Lots of questions

See posts below
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

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Willy
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Wo Feb 01, 2017 12:00 pm

Supplements do not have interaction with medication

Carnitine should be given on an empty stomac 30 minutes before mealtime

D-ribose is water soluable, so 3 x a day is better but...............

Put the complete day dosis in a small bottle of water and give her that during the day
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

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Willy
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Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Willy » Wo Feb 01, 2017 12:04 pm

If she is progressing like this I suggest that we not compensate for the increase in weight

So slowly she gets a lower dosis / kg

If she is completely cured I suggest waiting one year and then slowly reducing supplements

UNDER STRICT CONTROL OF THE CARDIO

Q10 and Carnitine last
Met vriendelijke groeten,

Willy Witsel

Ben je blij met ons gratis advies doe dan
een tweet of een like bovenin deze forumpagina

Aleta
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Berichten: 452
Lid geworden op: Zo Aug 03, 2014 6:39 pm

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Berichtdoor Aleta » Wo Feb 01, 2017 4:47 pm

Willy!

thanks so much for your patience in this long post of mine. (and all the patience you always have)

Of course you can post the birthday picture :)

I'll give Lara carnitine and magnesium with morning meds then, and the ribose still in 3 doses, because she drinks water when ever she wants, sometiemes a lot and some other to little. :(

I'm very happy about all of this! I hope and pray this keeps getting better or like this!!!!


Thank you so much Willy, you are the best!

Aleta.


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