BEHANDELING HART EN VAATZIEKEN

Thank you :/

Hi willy! I wanted to write you sooner but I'm a canguroo mom this days. We are a little sad, we realized that after all of this, DCM is still there and we don't know what path is gonna take. The surgery took off a risk factor, but the part of her heart wanting to improve and not doing it cause of m...

Hi willy and Corrij! We came home yesterday, Lara is amazing. Her mitral ring was closed so now has the right size for her age. Still a mild deficiency, doc said that always stays some deficiency, is to soon but maybe it goes, even so it supouse that will not be a problem. Her heart is already small...

Her baby has DCM too?

I hope she decide start it. I have no problem in talk to her if you like.

Martine's son recovered fast?

I know is no complex surgery...
My fear is that her ventricle don't recove from surgery, external ox, those things.

You've always right, pray for this time too!

Hi Corrij and Willy Update on Lara,s surgery: First of all, she probably don't recieve carnitine and ubiquinol in recovery. Our cardiologist told us that we don't have to worry about that because both made deposit on Lara,s body. Magnesium she will get a lot with the other drugs she get. Yesterday w...

Life get hard somethimes...

I know you will be Ok, I wish that soon

send you biig hugs!

Thank you Willy ans Corrij! I've sent an email to cardio with all the info Corrij sent me about magnesium. We have appointment on monday, still no schedule surgery, I hope not more than 2 weeks more because my head is gonna burn or something. Thanks for be here with us. Willy, I hope you are feeling...

Hi Corrij We still don't know the date, because the team has a lot of surgurys, but cardiologist said we should calculate in the December 7 week. Lara is doing fine but has a cold and is breathing faster, and a while ago had °38 fever. I gave her ibuprofen and looks much better. I'm very scared abou...

Hi Corrij! Yes we had check up appointment. As you and willy predicted, SF has improved :) now is %28-30, the lowest of normal. The bad part of that is, as the ventricle is working better, the mitral valve works harder and got worse. So valve is stopping atrium to get better and smaller is the guess...

Yes I know, but she is almost always with a little fast breathing, but she is almost always with mocus, and she gets fast breathing because of that.

But I don't like it and is scary

I am having more faith

Aleta.

Willy, I'm so sorry to read that.

If there is anything we can do for you, please let us know.

Maybe we could help you as you help us

Hi Corrij! Everything is going fine here. A little cold here and there because of changing season, but nothing to bad. But when Lara has mocus she becomes a little little little agitated. Even so, she seems to doing great. She had a big flu a month and a half ago and lost some weigh, but she gained ...