Er zijn 505 resultaten gevonden

door Aleta
vr jun 03, 2016 5:07 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Corrij and Willy! We haven't spoke in a while, so I hohpe you to are doing great. Lara had her check up with the cardiologist yesterday. This time her SF numbers are the same than the last check up, two months ago (SF 28-32%), a little below the normal range. I was hoping be inside the normal thi...
door Aleta
ma apr 18, 2016 5:43 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi!

Then we are ok with all suppements. I hope to see Lara improve more.

Thank you so much for your advise, you are so awesome.

Next cardiologist appointment is at June 2.

have a great week!

Aleta.
door Aleta
vr apr 15, 2016 3:50 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy and Corrij!

Lara is havin L-Carnitine from Now Foods, 500mg two times at day. Her weigh is 11.650kg, maybe we should increase dose? Metabolism doc said it was 100mg every each Lara's Kg.

Congratulations and thanks to you both too!!!

Aleta.
door Aleta
ma apr 11, 2016 10:59 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy and Corrij! I hope you are doing very well. We had our check up appointment with cardiologist on thursday, and Lara is even better :) The little-stronger-awesome-lady reached %28-%32 SF, so now she is at low normal range!!! This is so awesome because at diagnosis time she was at %19, I can'...
door Aleta
ma mar 14, 2016 5:03 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

yes right? I was thinking about how better she got when I was writing the reply to you!

I don't have enough words to thank you both!!!
door Aleta
zo mar 13, 2016 6:57 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Thanks Corrij! I believe cardiologists want tu make sure a child is inside the normal and count from %30, but i read several times that normal is %28. One thing our cardio explained to us, is that she measures SF in several ventricule's places, and the lowest number we see in the report is the lowes...
door Aleta
do mar 10, 2016 7:35 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Yes, the normal Shortening fraction is between %30 and %60. So we still aren't totally inside the normal, I hope we get there soon!
door Aleta
di mar 08, 2016 9:55 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! Sunny Argentina in in the way to autum, it feels like summer is going, school has began, so my virus panic has began too :( So far so good, our Lara, if she keeps this way, can attend to kinder next year. This year we have permission from cardiologist to attend to a play-with art-dance-wor...
door Aleta
wo feb 17, 2016 1:41 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi willy! Lara looks great, today i took her to pediatritian to know her actual weight because in to days we have cardio check up. She weighs 11,450 kg, almost 1kg after surgery! I hope her heart looks good too! We' been crazy making small pieces of magnesium to get 70mg, and today i remember that w...
door Aleta
do feb 04, 2016 12:32 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Ok i will, now I'm scared!

I divide 68mg in two dosis or can i give her 68mg at once?
door Aleta
wo feb 03, 2016 10:12 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Corrij!

But if she is doing fine with 125mg, do you think we should decrease the dose?
She started with 1/3 of gigsaw tablet, and we increased to 1/2, but i don't remember what
Calculation we made...
door Aleta
di feb 02, 2016 4:56 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

magnesium dose adult of 70 kg 200 - 400mg Lara --> 29 - 58 mg per day ribose adult 70 kg: 15 gram Lara --> 2,16 gram per day I hope you made a mistake with your ribose dosis you wrote 3 x 3mg, Do you mean 3 x 3 grams? If so you can reduce it to 3 x 1 gram per day Hi Willy and Corrij! I was looking ...
door Aleta
wo jan 06, 2016 4:47 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi willy and Corrij, happy new year. We have not tested Lara's D3 since a while ago. Last week cardiologist send a bloodwork and everything was great (but no D3 tested). We had pediatrician two days ago, and cardio check up yesterday. Lara is doing fine, she gained weigh, like 800mg since surgery, s...
door Aleta
zo dec 27, 2015 12:01 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1027
Weergaves: 712996

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Corrij and Willy! First of all, merry chritsmas! I know it was yesterday but is getting hard to focus in this days! I hope you had a wonderfull time. We not so much, on tuesday we went to cardio check up, Lara's SF is %26, measures a little less mm, but still Lara's heart is taking real shape and...