Er zijn 504 resultaten gevonden

door Aleta
vr nov 25, 2016 10:53 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy ! We have great news to share, on monday we went to our cardio appointment, and Lara has reach the normal range of SF! She is now 32%-35%, can you believe it?????? Those numbers are not to acurate, because Lara was crying a lot because she was having a cramp in the hand (she have those some...
door Aleta
vr nov 04, 2016 4:25 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

I hope the meds changes work for Lara!

And I hope they work for you as well, sometimes the psych method is not working as the begining and you have to change. I happened to me...

If you think we could help you somehow we are here for you!

Aleta.
door Aleta
do nov 03, 2016 4:49 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! Thanks, Sebastian is an ecxelent artist :) And of course i love him! Next cardio appointment is november 21, and I'm already starting to worry, last time doc reduced the furosemide to half dose, so I'm worried that might be to much work for her heart. I trust our doctor but even so, I worr...
door Aleta
wo okt 05, 2016 7:43 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! I'm sorry to read you have blood poissoning!!! But very glad you're ok now!!! Do you really think Lara it's almost cured? I'm happy to read that, but to be cured it doesn't need to be size and function normal? What is cured axactly??? Doc said that she thinks Lara might need carvedilol and...
door Aleta
ma okt 03, 2016 8:22 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! I hope you are doing ok and great this days! We had our cardio check up. Lara is a little bit better :) Her heart is 2mm smaller and SF is now 29-33%, low normal range. Not very inside normal numbers but close or inside to the low normal, so that is great!!!! Doc decrease fursemide from 25...
door Aleta
ma aug 08, 2016 5:27 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! So glad to know that depression is going!!! :) I was kind of worry... We are fine, Lara is growing beautiful ad strong, and has a stron character too! I'm thankful for that but sometimes she got me running! Is funny, charming, clims and plays, and draw and doing so good :) So, I have no ex...
door Aleta
wo jul 13, 2016 7:51 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy,

We've done calculations again, and the doses are the same.

Next week we have pediatrician check up, I'll tell you how it goes.

I hope you are doing super great

Big hugs!

Aleta.
door Aleta
ma jul 11, 2016 8:11 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! Last week we had a improvised visit to cardiologit, because Lara was breathing with some fatige, and the first thing we think about when she shows some sympthom is the heart. It turned out to be a bronchospasm but we got to see Lara's heart. Function still the same, %28/%32 SF, but it was ...
door Aleta
zo jul 03, 2016 10:40 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Finally! Robose. Looking for all of this and reading, I was thinking about the BIG help you are giving us and how supportive you are, specially in the diagnosis first times. THANK YOU SO MUCH!!! For an adult with 70 kg the ribose doses is 12 gram 12 / 70 = 0,17 gram For Lara with 8 kg 0,17 x 8 = 1,3...
door Aleta
zo jul 03, 2016 10:29 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Aregentina, need

For Magnesium I advise 200 - 400 mg magnesium to an adult like me 70 kg That means 2,9 - 5,7 mg / kg / day Lara is at the moment around 8 kg tha dosis for her is 22,8 - 45,7 mg / day So a dosis between 30 - 50 mg is fine per day. That means 2 x (15 - 25) mg because it is better to devide the daily d...
door Aleta
zo jul 03, 2016 10:19 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Aregentina, need

For Carnitine: I do not understand de carnitine dosis because I do not understand what you wrote about it A 70 kg adult will get 3 x 2 x 330 mg = 1980 mg per day That is 282 mg carnitine / kg So 300 mg carnitine / kg is fine and I would not argue with the doctor if the dosis is higher But NOT LOWER ...
door Aleta
zo jul 03, 2016 10:17 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Aregentina, need

This is for Qo10 This is the FIRST TIME EVER in my experience that a docter gives Q10 and carnitine for this condition EXCELLENT The q10 dosis is high as saskia explained already. But Q10 is extremely safe so do not worry What kind of Q10 is she giving to your child? Can you ask that? This is how yo...
door Aleta
di jun 21, 2016 9:13 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy and Corrij, I hope you are doing great. I have a question that you might know the answer. In the parents group where I met Saskia, a mom found a conection between the rotavirus vaccine and DCM, is that possible??? Lara is doing great, has a cold but she is a ninja girl :) When you have time...
door Aleta
do jun 09, 2016 4:03 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! Yes, there are some good news, I hope the good ones keep coming! I say thanks for have found you (via Saskia, of course), every day :) Lara's weigh is 12kg, is having 1/3 of a jigsaw tablet in the morning and 1/3 at night. Is that enough for her? Did I told you that she does not wear diape...
door Aleta
vr jun 03, 2016 5:07 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1025
Weergaves: 682765

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Corrij and Willy! We haven't spoke in a while, so I hohpe you to are doing great. Lara had her check up with the cardiologist yesterday. This time her SF numbers are the same than the last check up, two months ago (SF 28-32%), a little below the normal range. I was hoping be inside the normal thi...