Er zijn 493 resultaten gevonden

door Aleta
wo mar 25, 2020 7:21 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

HI Willy! I hope you are doing well. What our cardio said is that the tests on ACE inhibitors related with Covid19 has been done with rats and there is no evidence on humans. So, she wants to do more than less and in just in case, she changed the medication to the patients who could do so. She told ...
door Aleta
vr nov 29, 2019 4:57 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

I believe Shortening fraction max is 50? Lara weighs 18,700 kg and is 1,14 mts tall Meds are the same, enalapril 1,87 at day. I believe she will stay with enalapril, we´ve talked a few months ago about take off but now she said that will not adjust for now, so maybe is planning to keep Lara on Enala...
door Aleta
do nov 28, 2019 5:37 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! I hope you are doing great! Lara has her check up, everything went well. Her shortening fraction now is 36%-39%, even better than the last time, but doc said that Lara is withing notmal range so 1 or 2 numbers up or down is the same. Did not make the Z Score, so i´m not so sure how big her...
door Aleta
zo sep 15, 2019 5:19 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Thanks Willy!
And thank you for the beautiful song, she loved it :)
door Aleta
ma jun 10, 2019 4:54 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! I have no permission to read that link... Lara is having 1/3 of one jigsaw tablet (100mg) in the morning and 1/3 at night, someting like 33mg in the morning andd 33mg at night. 66mg at day. Lara's weigh is 17,200kg, so 17,200 x 3 = 51,6. You say that we get lower dose now with jigsaw or wh...
door Aleta
za jun 08, 2019 7:03 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! Yes this is a good team! Yo asked: Why did we decide to go for JigSaw magnesium time released? Diarree? Yes, but she was a baby, maybe now she could handle other options like citrate. I get Malate magnesium only jigsaw and Now food. Citrate has more options, I couls even get some brand her...
door Aleta
ma jun 03, 2019 4:45 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Wiily, I hope you're doing great. I have a quick question, Lara is having 42mg twicw at day (84mg total), of magnesium. We use jigsaw health magnesium which is magnesium malate. I'm having truble getting that brand. Now foods os ok? Is there any other brand? She hast to take malate or can have ma...
door Aleta
vr mei 03, 2019 11:48 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! Lara did great at check up, the numbers are still the same, her left atrium and ventricle are still dilated, but very little. Cardio told us that the atrium probably is bigger than normal in consequence of the mitral ring that had to be reduced in the surgery. The valve is good and the siz...
door Aleta
za apr 27, 2019 8:28 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy, great timing!

Our check up is may 3, next friday. Already freaking out.
She looks great with lot of energy but this year started preschool 7 hours at day, I hope this wont be too much for her.

I'll thell how it goes, and thank you for think about us!

Aleta.
door Aleta
vr dec 28, 2018 6:34 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Sounds great, jan 16 she has pediatrician appointment, we'll tell you the knew. On jan 23 she turns 5 years old!!!
Have an amazing 2019, you deserve all the best of the world!
door Aleta
di dec 04, 2018 8:30 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

I love to read "that is not a big problem"!
door Aleta
ma dec 03, 2018 2:45 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Not for now, but I wonder if those acids means that Lara counld never leave supplements.
door Aleta
za dec 01, 2018 3:02 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy< I was just reminding you how things were at the beggining with thos blood tests.
door Aleta
do nov 08, 2018 4:50 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1001
Weergaves: 261213

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! At the biggining of all, in diagnosis time, in the first clinic we were reffered, they did a lot of tests. On of those was asked by the pedriatric methabolism specialist. Those tests results was some acids a little high, and in case Lara has a mitocondrial desorder, they prescibed 150mg of...