Er zijn 8 resultaten gevonden

door Landan
di mei 06, 2014 7:38 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: 26 year old with Dilated Cardiomyopathy
Reacties: 16
Weergaves: 22107

Re: 26 year old with Dilated Cardiomyopathy

My vitamin D is 19 which is on the low end of normal

My BNP is 57 which is normal

Magnesium is 2.2

I don't have a CRP measured. Are CRP and CPK linked? Because I would think that since my CPK is high due to muscle breakdown/inflammation, then the CRP would be high from inflammation.
door Landan
ma mei 05, 2014 5:53 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: 26 year old with Dilated Cardiomyopathy
Reacties: 16
Weergaves: 22107

Re: 26 year old with Dilated Cardiomyopathy

the myopathy is called alpha dystroglycanopathy and caused my cardiomyopathy. I recently went to the Mayo Clinic and found this out in mid April. Im not sure if you knowing that the cardiomyopathy was caused by an alpha dystroglycanopathy will help to better treat my situation but I thought I would ...
door Landan
ma mei 05, 2014 5:14 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: 26 year old with Dilated Cardiomyopathy
Reacties: 16
Weergaves: 22107

Re: 26 year old with Dilated Cardiomyopathy

I just had a checkup in February I don't believe they have ever told me about my BNP, or they have never brought it up so I would assume it's ok. My EF was at 25% My Vitamin D was low and may be due to me living in Minnesota triglycerides were of normal value and I am not sure about CRP but my CPK l...
door Landan
vr mei 02, 2014 12:47 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: 26 year old with Dilated Cardiomyopathy
Reacties: 16
Weergaves: 22107

Re: 26 year old with Dilated Cardiomyopathy

That sounds great, I will change my plan as soon as I run out of MSM and L-carnitine. What's the reason to stop MSM? I thought you should take it for more energy especially if you aren't feeling side effects from taking it. I appreciate the help!
door Landan
do mei 01, 2014 5:49 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: 26 year old with Dilated Cardiomyopathy
Reacties: 16
Weergaves: 22107

Re: 26 year old with Dilated Cardiomyopathy

I'm 6'5" and weigh 180 pounds so I'm not over weight. As of now I'm taking L-carnitine 1000mg 3 times a day. CoQ10 100 mg twice a day. Dribose 10,000 mg a day.( 5000 in the morning and 5000 in the afternoon). And L-arginine at night. I'll have to double check the dose but I believe it's 5000 mg righ...
door Landan
wo apr 16, 2014 4:36 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: 26 year old with Dilated Cardiomyopathy
Reacties: 16
Weergaves: 22107

Re: 26 year old with Dilated Cardiomyopathy

CoQ10 200mg once a day
MSM 1000mg once a day
Chromium 200mg once a day

I have been taking them for 5 days and just increased from 500 to 1000mg MSM as of yesterday. Everything seems to be going ok. I'm not getting any side effects from the MSM
door Landan
di apr 15, 2014 1:33 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: 26 year old with Dilated Cardiomyopathy
Reacties: 16
Weergaves: 22107

Re: 26 year old with Dilated Cardiomyopathy

I do not have any arrhythmias. I will sometimes get PVCs but do not have anything else. I dont get enough of them to be bothersome though.
door Landan
ma apr 14, 2014 3:11 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: 26 year old with Dilated Cardiomyopathy
Reacties: 16
Weergaves: 22107

26 year old with Dilated Cardiomyopathy

Hello I am a 26 year old who has been living with dilated cardiomypathy since I was 16. I was diagnosed during a physical and showed no signs or symptoms but my EF was at 25%. Over the years, my EF has gone up and down and has gone from 20 to 40%. It is currently at 25%. The symptoms that I have not...