Er zijn 25 resultaten gevonden

door sasje1903
di okt 24, 2017 10:59 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willy! We went to Lara's check up after two weeks of decrease Carvedilol and stop Espironolactone. Well, LV was about 1 or 2 mm smaller, and shortening fraction was %35/36, a little better. Could be a better day for her or something because the difference was small, but still, function at normal...
door sasje1903
di dec 06, 2016 10:06 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Great news!!!

Emma's check-up is december 19th!
door sasje1903
za nov 26, 2016 1:11 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

WoW Aleta great news!!! Told you Lara is a strong girl ;-)

X
door sasje1903
za dec 12, 2015 12:15 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Gisteravond is de beademing gestopt en is Lara wat meer wakker. Ze heeft nog wel zuurstofbril (optiflow) Ze drinkt al zelf water en klein beetje melk. Gelijk na operatie was SF 19% en gisteren al 25%! Artsen zijn allemaal erg tevreden en Lara is zo sterk als een stier zeggen ze. (Aleta i translated ...
door sasje1903
do dec 10, 2015 9:34 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Goeie morgen

Aleta heeft gevraagd of ik namens haar wil updaten (zij gaat nu naar bed, 4uur eerder daar)

Laras surgery went well she is in recovery now on a lot of meds but doing fine!
door sasje1903
vr nov 20, 2015 8:18 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Willie & Corry

Aleta asked me to update you...

She just send me this message...
---
Cardio called us, she talked to the sergeoun and they said Lara should. Have surgery next week or one after. We are going to clinic to make pre surgery tests. I'm going nuts.
--
door sasje1903
ma aug 10, 2015 10:23 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Corrij

I love your positive speech! Hoe beautiful written!!

Saskia
door sasje1903
wo jul 29, 2015 8:24 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Aleta

Have you looked at www.iherb.com ?
I order some there And have them at home in a few days!!!

Best wishes
Saskia
door sasje1903
ma jul 20, 2015 10:25 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Argentina, need help

Hi Emma is 14kg And gets 1x 100mg ubiquinol And 1x50mg ubiquinol This is high dose but we discussed since Emma's LV was Still large And slow improvement The carnitine we now give Acetyl Carnitine Its 588mg And we give one Every other day. D ribose about 3gram Ubiquinol And d ribose we have from heal...
door sasje1903
wo aug 06, 2014 11:04 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Im sorry i thought i posted but dont see it...

Emma gets 5ml carnitine twice a day

She weighs 12,5 kg and gets 1gram a day...
door sasje1903
wo aug 06, 2014 7:29 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Willy

Emma was on 4ml twice a day
And now 5ml twice a day (so Total of 1g a day)
And she weighs 12,5kg
door sasje1903
wo aug 06, 2014 5:13 pm
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Aregentina, need

The carnitine we have is 1g/10ml

Check this on the bottle, it should what the dose is!
door sasje1903
wo aug 06, 2014 12:08 am
Forum: Treatment Heart Failure (cardiomyopathy)
Onderwerp: Baby girl, dilated miocardyopathy from Argentina, need help
Reacties: 1006
Weergaves: 357107

Re: Baby girl, dilated miocardyopathy from Aregentina, need

Hi aleta, Glad you can start with these supplements allready!! The q10 is really high dose and lucky you said the carnitine is only 2,5 since Emma gets 5ml!!! If you over dose carnitine you could get diarrhea we had that with Emma.. So keep that in mind... Good luck tomorrow with cardiology visit!!!...